avonex support

While I understnd the potential benefits of avonex, I am concerned that the side effects from avonex and once again facing everything will set him back again. He tends to get depressed at times so I am specifically concerned about that aspect. In addition, he works in a very high pressure job and I am concerned that this may leave him sidelined from work (in an environment that he does not want to open up to about the situation yet)....

I'm a graduate student in bioethics, and I'm researching MS support services like MS Lifelines, Shared Solutions, etc. I'm interested in speaking with people who have had experiences with these services -- in particular the nurse hotlines and the peers/mentors/ambassadors. If you've had any experiences with these services and would be willing to discuss them with me, I'd be really grateful for your help. Thanks very much.

Hi guys, has anyone not heard from the AVONEX people once they were put on it.??? I have heard from heath nurses, and today, got my WELCOME package, but still no product. I don't know what is going on, and of course the lady or the rep from Avonex is away on holidays till the 2nd. of Dec..... so, I guess we will do it next week ... Just to let you guys know, they stopped my antiobiotic IV today, and said that it was an MS attack. Wherever there are nerves, MS can strike.

Hi I am new to MS. My doctor prescribed Avonex. I have little to no drug insurance. I went to a site which offered discount coupons. I called them to ask them if this is a come on price or is this within reason the price every month. They would not give me an ansewr. Does someone here have any experience with this?

Wondering if Avonex can cause itchiness & rashes throughout body after a few mos. of using. Was on it for 1 1/2 yrs., stopped for 8 mos. & resumed. Started getting some rashes & itchiness throughout body. Thank you !

Hi, I was recently diagnosed with MS and had my first Avonex injection Friday. Friday night was tough (fever, chills, pain and eventually heavy sweating) but I felt pretty good by Saturday morning. Saturday afternoon I started feeling kind of down and by Sunday morning I feel even more so. I can't decide if this is a result of the drug or just the situation as a whole.

She summed up that I was having more issues with Avonex than MS. She recommended that I switch from Avonex to Gilenya. I like the fact that it is oral, but I would like to hear opinions from others. I don't know much about Gilenya because my old neuro said that it was not for me. I am in the process of reading all the stuff the neuro gave me. Please respond and let me know what you think.

Hi, I have been taking Avonex for 6 yrs on and off. I stopped for 2 yrs when I had my third child and have been back on it for the past 2 1/2 yrs straight. I was diagnosed in 2005 and have been fortunate to have little to no changes in my MRIs. That is until I recently experienced vertigo which triggered an order for some MRIs. I have a new active lesion in my brain and one in my spine. My doctor thinks tysabri would be a great next choice.

Hi anuj, I read ur question. I also diagnosed ms just few days ago, nd I also prescribed injection avonex. But I wish I could give u exact answer but I don't have any personally experience about avonex coz I don't start avonex yet but I know I will.Just m saying that i found on google that when ever u inject just relax, don't take any stress, u may get flu like symptom so take ibruphen, take rest how much u can, then of course, u can manage it.

t find much about this as a side effect on-line) or am I in that lucky 4% of Avonex users who have hair loss. If it is the Avonex, will it stop as my body gets used to the drug? Good God I hope so! Any insight is appreciated, as this is really stressing me out.....which can also cause hair loss!!!

s known that some people on the Interferons, Avonex and Rebif have had no additional lesions, that have lasted years. That was my experience when I took Avonex. Since I now take Copaxone and have only been on it for a little over a year, I cannot give you a personal view of how well the drug is working for me. I am beginning to notice less relapses, though. How DMD's work is not fully understood.

Just a quick update, I did my 4th Avonex full shot last night, and it was fine. With the Tylenol and Ibruprofen every 6 hours, I'm doing well today. So, there is always hope......

I am so disappointed no one has given you the support to start this the right way. Please check some old posts here about avonex dosing and see if you can adjust what you are doing to make it better. As I said, it is going to take a while for your body to adjust, but this is a good medicine and I hate to see you so discouraged after just one shot.

Thanks everyone for the support, am looking forward to stories of the Avonex users, or at least someone who has tried it..... (((HUGS))) to all, I'm hanging in there, and Alex, you take care too, my friend, as with everyone else, please be good to yourselves...

Sigh, I have a question from a friend. She would like to know if avonex causes calcium deficiency? She is diagnosed with ms. Not like me.

Is anyone on avonex? My dr. wants to switch me to avonex, but with having lupus, I really don't want to go on an interferon. I'm on copaxone, now but because I have large welts on my arms he wants to switch me. I don't want to switch. Do I have the right to deny a new medication I feel would be detrimental to me?

Flu-like symptoms are a fairly common side effect during the initial weeks of Avonex treatment. It is recommended that you take your Avonex injection before bedtime. Immediately before your injection, and for the 24 hours that follow the injection, patients have found that use of over the counter pain and fever reducing medications can help with this common side effect." You could also get on the Avonex website for further info. good luck. hope that you feel better soon.

I have been on copaxone for little over a year its not working for me so my neuro has asked me to try avonex. My avonex nurse is coming this evening but I am wondering how long you actually gave it to get the symptoms of the shot to calm down. I am crossing everything to hope I dont get the flu symptoms so bad but we will see. I have a husband that works away and 3 small kids to care for, I dont want to be in bed all weekend when its the only time we get to spend as a family.

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