avonex therapy support

How do you determine whick injection therapy works best, by trial and error? My Neurologist gave me books on three of them: Rebif, Copaxone, and Avonex.

If a woman becomes pregnant or plans to become pregnant while taking AVONEX® , she should be informed of the potential hazards to the fetus, and discontinuation of AVONEX® therapy should be considered. If a woman becomes pregnant while taking AVONEX® , consider enrolling her in the AVONEX® Pregnancy Registry by calling 1-800-456-2255.

She said the side effects hopefully will reduce and she think te depression is from the avonex. As for the physical therapy, I am more than happy go be proactive about it. I am 25 so I have a long road a head and considering I'm limping and can't feel it I think it's best to try some PT. As for my arm, she said that she was expecting more of a recovery than what I have, and that I'm so young to have this much disability from one attack.

I have figured out that if I take my injection out of the frig at least 6 hours before I inject, then the next day goes much much better. But, I am starting to wonder if the Avonex is working for me because I am having more symptoms. I am also looking for a new neurologist. The last visit with my neurologist left me feeling baffled. He just didn't know why I am feeling vibrations in my body especially when I am lying down.

But he offered me AVONEX and after one year all symptoms were gone and he did stop my AVONEX therapy. From that moment till now I had some times some special feeling in my legs but from 6 months back I feel slight disability in my left leg. The thing is, my right side is totally normal but I have problem with my left side. BTW, I think, if I am right, the number of lesions in my mind was between 6 and 8. I don't remember exact number. Again thank you for your time.

I was not aware of the data that many/most PML victims had priorly been on immunosuppressive therapy. Your desire to help support and inform MSers is so welcome here. This is far more a community than one of the forums that serves as a site for individual soapboxes. Jason - I, too, am sorry to hear about the new lesions, but I would like to voice a word of caustion about discarding Avonex just yet.

While I understnd the potential benefits of avonex, I am concerned that the side effects from avonex and once again facing everything will set him back again. He tends to get depressed at times so I am specifically concerned about that aspect. In addition, he works in a very high pressure job and I am concerned that this may leave him sidelined from work (in an environment that he does not want to open up to about the situation yet)....

There's a great Gilenya support group on Facebook. People are on there that have been on G for many years. It's a very helpful group with lots of experience between all the members. You can post questions there too.

I'm a graduate student in bioethics, and I'm researching MS support services like MS Lifelines, Shared Solutions, etc. I'm interested in speaking with people who have had experiences with these services -- in particular the nurse hotlines and the peers/mentors/ambassadors. If you've had any experiences with these services and would be willing to discuss them with me, I'd be really grateful for your help. Thanks very much.

Hi anuj, I read ur question. I also diagnosed ms just few days ago, nd I also prescribed injection avonex. But I wish I could give u exact answer but I don't have any personally experience about avonex coz I don't start avonex yet but I know I will.Just m saying that i found on google that when ever u inject just relax, don't take any stress, u may get flu like symptom so take ibruphen, take rest how much u can, then of course, u can manage it.

I have been on Avonex for the last 15 years and have finally reached my limit. I am taking a 6 week break from the Avonex and will be starting Copaxone at the end of April. I actually have two questions: 1) Has anyone taken a break from their medication for that long (and if so, any consequences) and 2) Has anyone switched from Avonex to Copaxone, and if so, how did you do?

I have a friend who went off her DMD (Avonex) to try bee sting therapy. Six months or so after going off the Avonex, she had a major relapse and ended up in a wheelchair. She is now diagnosed as RPMS.

I hate to change my therapy since I think I am handling the Avonex rather well otherwise. Could this be a MS issue alone? I am currently waiting for a call from my neuro's office which I felt downright ridiculous calling to tell them about this issue. But I have put it off for quite some time and I fear I am going to seriously offend someone if I don't get to the bottom of my problem.

Hi guys, has anyone not heard from the AVONEX people once they were put on it.??? I have heard from heath nurses, and today, got my WELCOME package, but still no product. I don't know what is going on, and of course the lady or the rep from Avonex is away on holidays till the 2nd. of Dec..... so, I guess we will do it next week ... Just to let you guys know, they stopped my antiobiotic IV today, and said that it was an MS attack. Wherever there are nerves, MS can strike.

) Also, Avonex is only once a week. Biogen Idec, maker of Avonex, is also offering Plegridy, which sounds exactly like Avonex but maybe shallower shot, and I believe only once every 2 weeks. You might read up on this. My neuro is not big on Gilenya, because of possible cardio effects, though for me that could be age-related, as I'm now about 500 :-) I don't know much about Aubagio, and it isn't often discussed here.

Hi I am new to MS. My doctor prescribed Avonex. I have little to no drug insurance. I went to a site which offered discount coupons. I called them to ask them if this is a come on price or is this within reason the price every month. They would not give me an ansewr. Does someone here have any experience with this?

I'm 45 yrs and I feel like I have achieved absautely nothing. To get to the point////// the best years of my body looking good is over!!!! Since I been injecting copaxone in my thighs the have truly taken on a whole new shape...not the most flattering....my neuro said I don't have that deformity that is associated with copaxone, I gueas with my weight gain, from the differnt x's of using prenisone, zoloft, and I'm not sure but copaxone has steroids in it as well ???

t see my neuro until next month, and I have had more difficulty with allergic reaction to Avonex. For the last couple of months, I've been able to control it with 10mg of oral prednisone, and two benadryl tablets- along with the usual pre medication for interferon. Last week, the rash persisted for an additional day. This week, the rash/itchiness is still present, three days later. I don't want to give up! Other than the skin rash, this dmd has been the most tolerable for me.

m finding it all a little overwhelming. I ignore all of the calls from Avonex, the specialty pharmacy, the Avonex nurse, and the nurse at the doctors office. I just can't deal with it. I don't really know if, when or how to move past this. I just figure that I will eventually because I will have to.

Wondering if Avonex can cause itchiness & rashes throughout body after a few mos. of using. Was on it for 1 1/2 yrs., stopped for 8 mos. & resumed. Started getting some rashes & itchiness throughout body. Thank you !

Hi, I was recently diagnosed with MS and had my first Avonex injection Friday. Friday night was tough (fever, chills, pain and eventually heavy sweating) but I felt pretty good by Saturday morning. Saturday afternoon I started feeling kind of down and by Sunday morning I feel even more so. I can't decide if this is a result of the drug or just the situation as a whole.

Avonex therapy support

Common Questions and Answers about Avonex therapy support

avonex