We know the tumor is in a slightly different area than it was originally. He is in treatment (Temodar for the second time) for the third recurrence of his tumor. We have always been told it is in an area where surgery has not been an option. The oncologist does say he believes it is a higher grade. We think he believes it is glioblastoma but he won't say that definitely without doing another biopsy.
Since the diagnosis of Glioblastoma grade 4 in August, my husband has had the tumor removed and completed the round of radiation and chemotherapy - temodar. Recently I have noticed him being very short fused and argumentative. The slightest thing sets him off as if he had been personally attack. I have also noticed depression setting in. I'm assuming this is all part of the treatment and diagnosis.
ve never prayed before and be there for him, as he will need you now more than ever and take help from anyone that wants to help you because you are going to get tired as well.you are going to feel so overwhelmed,it's only natural. please talk to someone you feel comfortable with talking to, it does help, and if you don't have anyone, you can talk to me i really do understand.
I had an uncle with the same form as your mom, the glioblastoma multiforme - he also found it late and passed quickly but glioblastoma is a different form. It is the words after it, if any, that make for prognosis - as well as stage, previous health, location of tumor and a host of other factors.
I have a cousin with a thalmic cancerous tumor, and he is doing ok so far.
I posted a LOT in 1998 or so, under the Addiction forum. During my back surgery, I got into trouble with taking too much vicodin,and the folks on the forum here held my cyber hand and helped me get back on my feet. I'm recovered from that part of my problem now, but do need to take pain medication to manage the large and overwhelming pain of brain surgery and cancer.
It was and probably still is a great forum.
I have been going through dry md for last 8-9 years and now wet md for more than a year. I have been treated with avastin (6) injections so far.
Although avastin had been useful last year, I see recently my last injection is not being very effective. I would like to know is there any other treatment available? My current retina specialist recommended avastin over laser last year.
Thank you very much.
"Genentech withdrew its psoriasis drug Raptiva from the market yesterday, citing the risk of developing progressive multifocal leukoencephalopathy (PML), a rare, often fatal brain infection. The drug will be phased out by June 8 of this year, according to a statement by the US Food and Drug Administration (FDA)."
http://www.the-scientist.com/templates/trackable/display/blog.jsp?
Here's some websites I found that talk about it:
At this VA website, in the search rectangle at the top, type in "Agent Orange"
http://www.vva.org/
This is another VA website, on your computer keyboard hold down Control and F, a rectangle will come up at the top, type in "Agent Orange," and a bunch of articles about it will be highlighted on the page, and one post is by a vet who talks about glioblastoma
http://www.facebook.com/posted.php?
Cytoxan, does not seem to give any side effects to me, lost couple of hairs for about three days and stopped. Avastin gave high blood pressure, but can be controlled. So far so good.
operative and post radiotherapy state of right temporal Glioblastoma. Pre and post contrast MR imaging of BRAIN was done using following protocol: Evidence of right sided craniotomy is noted. Irregular CSF signal intensity area is noted in all sequences in right temporal region with mild exvacuo dilatation of right lateral ventricle. Small nodular enhancing area with surrounding gyriform enhancement is noted in posterior aspect of right temporal lobe and there is adjacent dural enhancement.
s been hospitalized for the weekend because the drug she was forced to switch to is absolutely wreaking havoc on her blood and platelet counts. I hope the Avastin works for your wife and she can stay on it. If your doctor can shed anymore light on this issue..specifically the Creatinine test being sufficient..that would be excellent. Unfortunately her doctor is the only show in town, hence why I'm here.
I am on Avastin and Cytoxan. I have taken a little break, while I waited for my CT results - I have to pay out of pocket for the drugs and wanted to make sure they were working before I continued on! I will now be recieving the Avastin (10mg/kilogram) every three weeks, and I continue to take my daily cytoxan pill, 50mg. I haven't really had problems with either. The pill doesn't bother me at all, and the Avastin just makes me a little tired for a couple days after the infusion.
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