We know the tumor is in a slightly different area than it was originally. He is in treatment (Temodar for the second time) for the third recurrence of his tumor. We have always been told it is in an area where surgery has not been an option. The oncologist does say he believes it is a higher grade. We think he believes it is glioblastoma but he won't say that definitely without doing another biopsy.
Welcome to the medhelp neurology forum. Thanks for writing in. I empathise with you for what your husband is going though. Gliobastoma multiforme is the most common and most malignant of the glial tumors. Changes in personality, mood, mental capacity, and concentration may be observed along with the other symptoms of a brain tumor. Also the disease, its treatment must have been so very taxing for him, for depression to set in.
I had an uncle with the same form as your mom, the glioblastoma multiforme - he also found it late and passed quickly but glioblastoma is a different form. It is the words after it, if any, that make for prognosis - as well as stage, previous health, location of tumor and a host of other factors.
I have a cousin with a thalmic cancerous tumor, and he is doing ok so far.
I hope your husband gets the best treatment he can get and recovers. I would try any treatment possible. I wish I had done this when my mother was diagnosed with a grade 4 glioblastoma multiform tumor. There isn't much hope for someone with glioblastoma, however, I wish I had allowed her to be treated rather than opting for hospice care. There's a famous doctor at Duke University's Tisch brain tumor center named Dr. Allan Friedman.
my mum died of glioblastoma. I wish I had better news for you but I'm afraid it's a hard road. The survival rate for that is dismal at best. This kind of explains it. Scroll down to mortality/morbidity.
http://emedicine.medscape.
please send any info to larry eugene smith 2254 vine ave muskegon mi 49442, larry was in korea and vietnam and now he has glioblastoma multforme, we need help for him.
Here's some websites I found that talk about it:
At this VA website, in the search rectangle at the top, type in "Agent Orange"
http://www.vva.org/
This is another VA website, on your computer keyboard hold down Control and F, a rectangle will come up at the top, type in "Agent Orange," and a bunch of articles about it will be highlighted on the page, and one post is by a vet who talks about glioblastoma
http://www.facebook.com/posted.php?
Has anyone had a loved one with Glioblastoma multiforme? My husband has been diagnosed with this and had a tumor debulking last month. He is now on radiation treatment and is experiencing fatigue and his mind is now childlike. Will radiation reverse his cognitive thinking? Also, has anyone had a loved one who survived this cancer?
Glad to hear she is doing better. The steroids may have a bit of side effect themselves so if she gets a bit moody - it is the pills.
Keep us posted and we wish you both well.
I understand your concern regarding this. The management plan for glioblastoma varies and factors such as the type, location, medical history and symptoms are important considerations. It is best that you discuss this with his attending physician for proper evaluation. Take care and do keep us posted.
part is problematic cause healthcare here works in such a way that we need their official statement before progressing with the treatment and for that they need to do a joint consultation, for which they need the histopathology results.
Totalling it all up, it looks like we'll be able to have an appointment with the oncologist (which is a mandatory step before starting RT around here) not sooner than in the last week of April.
He is currently taking his suboxone but is not getting any relief for his head pain. The oncologist put him back on a steroid last week for swelling in his brain. That is adding to his sadness and anger. He feels awful and is extremely depressed. We have gone back and forth with his oncologists, GP and yesterday his pain clinic (whom he doesn't like). We just can't give him any relief. I am very worried about him and would like any advice on what we should do.
my husband was diagnosed with brain cancer in may, Glioblastoma. He is reducing the steroind in in so much body pain. is this normal?
My husband was recently diagosed with glioblastoma multiforme brain cancer. The neurosurgeon put him on Dilantin "for life." He isn't even going to check blood levels. My husband has not had any seizures. Does this seem appropriate?
23 years ago my father was diagnosed and died with a glioblastoma. Is there a reason to get a second opinion, or am I worrying unnecessarily?
Recommended
