I have also been diagnosed with lupus, but I don't have the rash
. My face will get red, but not the raised rash
I know how
you are feeling. It took me 8 years to get a dx. Most drs just gave up and said they didn't know. I haven't been able to get a handle on my symptoms yet. They just started me on the meds for lupus last month, so I am still waiting for them to kick in.
I am photosensitive. I can be in the sun for 5-10 minutes and look like I have a sunburn, headache, and very tired.