valganciclovir for cfs

Triggering agents/factors for CFS: While early studies of CFS sought to identify a single agent that caused the illness, most researchers now appear to agree that CFS can be “triggered” by a number of different insults including microorganisms (bacteria, viruses, etc.), environmental exposures and severe injuries (such as closed head trauma). At this conference, researchers reported data on a number of agents that set off a CFS-like illness.

Has anyone tried Valganciclovir? Dr. Jose Montoya says a5 year treatment can help patients with CFS brought on by EBV.

CMV is the most common infection is post transplant patients which is why we recipients are prescribed Valcyte for a period of months after our transplants as part of the anti- fungal, anti-bacterial and anti-viral regime of meds along with out immunosuppressants. In the vast majority of patients, CMV disease responds to treatment with intravenous Cytovene/ganciclovir.

ve learned to follow the physicians that keep up to date and KNOW about these conditions and are interested in the causes and treatments for fibro/CFS. Some of these physicians, like Dr. Shaw and Teitelbaum, have fibro & CFS themselves.

Hi my son has fm/cfs and has had for 4 years he seems to be getting worse or at least the attacks seem to. Some days he seems like my old son he is 31 by the way but the next day he can be in as much pain as ever. I appreciate all of you who suffer with this will have as many and varied painful and irritating symptoms as he, but he has started to twitch in bed at night. His legs have started to jerk and he cannot control it. It has frightened him as this is new.

Many people may have a high EBV titer and perhaps symptoms of EBV for years.... I honestly think these people should see a CFS physician and get it addressed ASAP. Of course CFS symptoms are : A CFS diagnosis should be considered in patients who present with six months or more of unexplained fatigue accompanied by other characteristic symptoms.

I would ask the neuro if you can continue to see him for your CFS or can he refer you to someone who can be responsible for the CFS, then switch to a new primary for your regular medical care.

I still have symtons and get shingles about 5 times a year, after many appiontments and prescriptions for aviculor for shingles and complaining about my symptons, and blood tests for everything in the book later, the doctor said last week it sounds like cfs but wanted 2 check my thyroid levels yet AGAIN 1st and rushed me out the door. How can I be taken seriously what should I do next?

Hello Michael, welcome to MedHelp's forums. Thank you for your question. Working with your doctor is important and are glad you have been followed. Remember, you can always get second opinions from another doctor. Some give up and some continue to search for answers for their patients as they solve a medical mystery. Have you ever considered visiting a nutritionist? They may help with a diet plan to correct any deficiencies. Vitamin deficiencies are also associated with fatigue.

ve known my exhausted state of being to be a CFIDS for the past several years. I searched for some definitive cause to prove otherwise, but I'm free from any major ailment. Lucky enough . . . but for this syndrome. I'm convinced that CFS is set off by prior infections with major bugs and MRSA certainly is one of them. Your symptoms sound familiar - I feel like I'm dying from the flu on really bad days. It's like being sick on some level all the time.

Hello everyone. An Australian on the thyroid board said that there is a test for CFS in Australia. Does anyone here know what it is and if they can do it in the USA, and what kind of doctor would do it? Also, are there any other tests, particularly blood tests? Thank you.

Thank you for the book recommendation.( I have a lot of time to read now that I have a broken foot.)Thank you for the reminder to slow down. You'd think CFS would do that automatically, but a lot of us seem to have this built in drive to push, push, push. When I do get some energy, I'm right on it, spending it like it's the first money I've had in years. Did you have to' work up' to doing light Yoga?

hi everyone, i have fibromyalgia,, my niece has lupus and my brother has cfs, i do think that there must be a genetic link somewhere in there , {either that or we a unlucky lot} but with fibro it does make you feel, chronicly fatiguied,i also know about the whttemore institute and belive they are doing a great job! kenderyl with/for a positve diagnosis for lupus you have to have a antinuclear body show possitve in your blood ,but in saying that lupus is a family member of fibromyalgia..

I think this also applies to people with CFS and fibro... I wish they would mention infections though: http://health.msn.com/health-topics/pain-management/arthritis/articlepage.aspx?

Jose Montoya and Martin Lerner, have published previous studies suggesting that valganciclovir therapy may be effective for the subset of CFS patients suspected of having smoldering or low-level infections of HHV-6, EBV and CMV. http://hhv-6foundation.org/associated-conditions/hhv-6-and-chronic-fatigue-syndrome take care, and let me know if you have any questions.

We have several CFS patients in the fibro / CFS forum. They don't post here, so maybe I should send them an invite to this poll ?

I have had CFS often on for about a year. It has drastically improved with good sleep, exercise but do feel fatigue once in a awhile. I also think that I have yeast infection with heavy white coated tongue, tingling sensation on my feet and hands. I also feel weakness in legs after exercise and have some problem with balance. Are all these part of CFS? and anyone have any good treatment for yeast infection. I m hiv neg and not diabetic. Thanks in advance.

I would say at this point, you do not meet the CDC's criteria for CFS. (good news !) One thing you may consider is seeing a Naturopathic physician. From my experience, I have found that they usually know how to help people who are fighting post-viral illnesses. Also, you may want to get tested for allergies if you have allergy symptoms.

I haven't been on Medhelp for a while. But you have to remember that the CFS are a tired bunch and we may not answer as quickly as others. There are so many things that could be the root of your problems. So it's impossible to say for sure that it is CFS. CFS is a diagnosis of exclusion. It's diagnosed after all other possibilities have been excluded. It is entirely possible that you have CFS. But its entirety possible that there is something else wrong.

and be very very strict with yourself to not exceed your energy levels because that makes your CFS worse. You can for example stop the time you can walk daily (without relapse or worsening), and then always stay at this level. When your treatment works, you can increase by e.g. 1 minute daily ... depends on how severe youre CFS is. Keep track of this. I am not a doctor, I can only tell you what gave me back my health after having suffered from very severe CFS. Whish you all the best!

I am currently being treated for CFS with a medication called Modafinil. It’s the one medication that’s a stimulant, that’s not in the same class as Adderall or Ritalin with a very low abuse potential. It helps out a lot, but I feel while it is helping it does damage as well considering you get used to the medication and the CFS is 100 times worse then when it started. My question is this : What medical procedures are done to rule out it being an underlying medical condition ?

So I have been battling CFS symptoms for the past 2 years. I came down with a severe viral infection in 2008 and than some form of internal yeast infection. Its very strange because my symptoms are based on the type of food I eat or strenuos exercise. These following food have given me fatigue symptom sometimes immediately or a day after. sugar, yeast related food, fermented food, coffee, alcohol, and soy sauce. can this be CFS or just yeast infection?

Valganciclovir for cfs

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