We have attached these documents for your informational uses only. Although our initial results have been promising, use of Valganciclovir for this indication has not been approved by the FDA and we cannot recommend using the drug outside clinical trials.
In addition, due to the large volume of patient requests we cannot and will not offer unsolicited medical advice to individual patients at this time.
Has anyone tried Valganciclovir? Dr. Jose Montoya says a5 year treatment can help patients with CFS brought on by EBV.
Also oral Valcyte/valganciclovir has been shown to be effective in treating mild to moderate cases of CMV disease in transplant recipients. Reduction in the degree of immunosuppression should complement the antiviral treatment of CMV disease.
Best of luck to your mom!
The fine print about the bioequivalence, shown at the bottom of this letter, is all we know about the comparison between the old and new formulations.
5. They received a call yesterday from someone asking if aspartame had been added to the new formula.
6. Pfizer thanked me for my "concerns" (God, how I hate that word), and they got an earful from me about their failure to communicate effectively with their customers.
Mark Yannone
SplendaSickness.blogspot.com
AspartameSickness.
Regarding ribavirin I agree with others; there should be letters of bioequivalence available from various manufacturers and again, no clinical difference in product efficacy.
There are a lot more factors that go into generics vs. brands (like its pharmacokinetic profile and bioequivalence (BE) and bioavailability (BA).....but it's a tad more complicated than is appropriate for this forum)
There has been a VERY long lived debate about the efficacy of generic vs brand name meds. For most people, they seem to be able to use either interchangeably with little or no difference in the effectiveness.
Jose Montoya and Martin Lerner, have published previous studies suggesting that valganciclovir therapy may be effective for the subset of CFS patients suspected of having smoldering or low-level infections of HHV-6, EBV and CMV.
http://hhv-6foundation.org/associated-conditions/hhv-6-and-chronic-fatigue-syndrome
take care, and let me know if you have any questions.
Jose Montoya at Stanford University has had successful results with another anti-viral... valganciclovir in CFS patients. The co-founder of PetsMart was on the original study and from what I understood... he went from being disabled to jogging again. There are, however, risks with that drug and I'm sure side-effects with the other anti-virals.
To confuse you even more... there are antibiotic protocols for CFS patients that are having success.
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