In addition, due to the large volume of patient requests we cannot and will not offer unsolicited medical advice to individual patients at this time.
We are working very hard to confirm our initial success with this treatment in our current randomized, double-blind placebo-controlled study and hope to publish our results in 2008. Please visit our study website at www.vicd.info as well as http://clinicaltrials.gov/ct/show/NCT00478465 for more information.
Sincerely,
Jose G.
could anyone give me ideas as to where or who i would contact to get some patient assistance for acute hep c treatment? I am not working, cannot wait on s.s. disability. I try to do some construction work when available, but it is really rough.
I just joined this forum and have a question regarding my EBV tests and Valcyte. My doctor wants me to start Valcyte for my elevated HHV6 and EBV antibody levels. I will post them and if anyone here has any thoughts on them I would very much appreciate it. I know this isn't an HHV6 forum but I will post the test results as well.
HHV6 Ab IgG 21.44 (range 0.1-1.
I have heard of Ampligen before... heard it was a research drug and very expensive. There was one CFS patient who relied on Ampligen. Without taking the anti-viral medication, she was wheelchair bound.
I do plan on adding Ampligen to the list of CFS treatments. I also need to add that Valcyte trial. But of course... some of these treatments for CFS are risky. I want to include my personal thoughts on that as well (and anyone elses).
s (Stanford University) Valcyte trial. Fortunately... he was one of the lucky ones. The first Valcyte trial was a success, but I've heard (without seeing the results) that the second trial wasn't. One woman claimed on the internet that she became worse after taking Valcyte. Of course Valcyte is a nasty drug and this trial and many physicians won't prescribe it unless you are disabled.
CMV is the most common infection is post transplant patients which is why we recipients are prescribed Valcyte for a period of months after our transplants as part of the anti- fungal, anti-bacterial and anti-viral regime of meds along with out immunosuppressants.
In the vast majority of patients, CMV disease responds to treatment with intravenous Cytovene/ganciclovir.
The only two treatments that I am aware of that has apparently cured some CFS patients would be the antibiotic protocols (I listed some of them in the health pages) and Valcyte, a very powerful anti-viral drug. The co-founder of PetsMart was on the original study and he is now jogging again. He said he had CFS after a flu-like illness and I believe he was disabled when he participated in the study. I believe Dr.
This is my understanding of the patient assistance programs for Incivek. The list price, which no patient will have to end up paying, is $49,200 for 12 weeks. HOWEVER, the patient assistance programs, are more than generous. Typical Co-pay for the three prescriptions that will be needed will be between $50 and $250 each.
Without the patient assistance program I probably wouldn't be SVR - when my insurance refused to let me extend, they coudln't have made it easier and didn't even make me feel bad about needing them to help.
I am also on Copaxone - can I suggest that you talk with them again at Shared Solutions and ask what criteria they use for patient assistance? They fund for people without insurance or underinsured through NORD - national organization of rare disease. Unfortunately it sometimes takes more than one phone call to connect with the right people at SS to get help.
If you can't work it out with SS you might talk to your neurologist about other options.
If in need, call the Schering-Plough Patient Assistance Program at 1-800-521-7157 and/or the Roche Patient Assistance Program at 1-877-757-6243.
November 10, 2008
http://www.hepatitis-central.com/mt/archives/2008/11/choosing_and_af.
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