I just joined this forum and have a question regarding my EBV tests and Valcyte. My doctor wants me to start Valcyte for my elevated HHV6 and EBV antibody levels. I will post them and if anyone here has any thoughts on them I would very much appreciate it. I know this isn't an HHV6 forum but I will post the test results as well.
HHV6 Ab IgG 21.44 (range 0.1-1.
s (Stanford University) Valcyte trial. Fortunately... he was one of the lucky ones. The first Valcyte trial was a success, but I've heard (without seeing the results) that the second trial wasn't. One woman claimed on the internet that she became worse after taking Valcyte. Of course Valcyte is a nasty drug and this trial and many physicians won't prescribe it unless you are disabled.
CMV is the most common infection is post transplant patients which is why we recipients are prescribed Valcyte for a period of months after our transplants as part of the anti- fungal, anti-bacterial and anti-viral regime of meds along with out immunosuppressants.
In the vast majority of patients, CMV disease responds to treatment with intravenous Cytovene/ganciclovir.
Please get a complete hormone panel ESH, LH, estrogen, progesterone and see if there is an imbalance. Hormone replacement therapy will help. With metal toxicity, certain chelating agents are given which bind with the metal and remove them from the body. Normal detox diet will not take care of that. It basically increases the antioxidants in the body.
Hope this helps. Take care!
However after about a week and a half to two weeks the pain went away. I was started on Valcyte about 2-3 weeks after all this. I also had a blood vessel rupture in my eye towards the back making it almost impossible to see anything when I went to try and find out what was going on (Have been seen by three different optometry clinics). I Have also been using Predisonal 4-6 times a day and Cyclopentalate 2 times daily.
Why do that when we have Valcyte (also a little bit frightening, but probably not as bad as the chemotherapy treatment) ?
I do plan on adding Ampligen to the list of CFS treatments. I also need to add that Valcyte trial. But of course... some of these treatments for CFS are risky. I want to include my personal thoughts on that as well (and anyone elses).
Antivirals suppress the immune system and as jason said, "keep the bugs at bay". There is one antiviral, Valcyte, that apparently is either curing or putting some CFS patients in remission... but the risks involved with Valcyte are too risky for me.
(about Valcyte: http://www.drpodell.org/chronic_fatigue_syndrome_hhv6.
The only two treatments that I am aware of that has apparently cured some CFS patients would be the antibiotic protocols (I listed some of them in the health pages) and Valcyte, a very powerful anti-viral drug. The co-founder of PetsMart was on the original study and he is now jogging again. He said he had CFS after a flu-like illness and I believe he was disabled when he participated in the study. I believe Dr.
It is working, although it takes years and can make you feel worse. But it is intended to cure CFS... just like the drug Valcyte. But Valcyte is an immunosuppresant and has some very toxic and possibly deadly side effects.
If you have any questions for Dr. N... zip them my way before 5 PM (Pacific Time) today. Send them via PM or note.
The other viruses showed latent infection controlled by the immune system. I was given Valcyte 450mg a day for 4 months.. after that 2x1000mg valtrex (valacyclovir).. my CMV titers fell down the half and i stopped the medicine.
Now im thinking.. that all the time, all my problems are caused by the ebv virus.. and i think im right because all other things.. like:
vitamins (also vit D, B12 .....)
Infections (really all kind of Infections.. babesia, bartonella, toxoplasmosis...
I have had really bad issues with walking, now requiring a can, for about a year. Diagnosed with Spinal Stenosis. It's gotten so bad that I started doing research. I have been doing 5-day energy shots daily for 6 months now - about 40mg of B6 per day (was doing emergen-c's before that). I'm thinking my walking, tingling may indeed be B6 toxicity and am going for a blood test this afternoon. I've gotten a lot of good information from this group - thank you.
I am having all of the symptoms related to B6 toxicity. I do not take vitamin supplements and have a healthy diet. What can cause me to have such a high b6 level if I am not taking supplements? My doctor asked me to give him a month to figure it out but I am in pain and want some answers.
I have been diagnosed with B6 toxicity. My doctor said that exercise would be good because it would speed metabolism. However, I'm concerned about doing what is best to heal my nerves. Since walking makes my feel hurt, throb, and twitch, I'm guessing that walking would actually hurt the healing process, not help. What has everyone else's experience been with healing from B6 toxicity and exercise? Do you think exercise helps or hinders the healing process?
Is it possible that my antimony level, more that twice and a half the normal range, could be causing me toxicity symptoms?
Recommended
