s (Stanford University) Valcyte trial. Fortunately... he was one of the lucky ones. The first Valcyte trial was a success, but I've heard (without seeing the results) that the second trial wasn't. One woman claimed on the internet that she became worse after taking Valcyte. Of course Valcyte is a nasty drug and this trial and many physicians won't prescribe it unless you are disabled.
I just joined this forum and have a question regarding my EBV tests and Valcyte. My doctor wants me to start Valcyte for my elevated HHV6 and EBV antibody levels. I will post them and if anyone here has any thoughts on them I would very much appreciate it. I know this isn't an HHV6 forum but I will post the test results as well.
HHV6 Ab IgG 21.44 (range 0.1-1.
The only two treatments that I am aware of that has apparently cured some CFS patients would be the antibiotic protocols (I listed some of them in the health pages) and Valcyte, a very powerful anti-viral drug. The co-founder of PetsMart was on the original study and he is now jogging again. He said he had CFS after a flu-like illness and I believe he was disabled when he participated in the study. I believe Dr.
I have heard of Ampligen before... heard it was a research drug and very expensive. There was one CFS patient who relied on Ampligen. Without taking the anti-viral medication, she was wheelchair bound.
I do plan on adding Ampligen to the list of CFS treatments. I also need to add that Valcyte trial. But of course... some of these treatments for CFS are risky. I want to include my personal thoughts on that as well (and anyone elses).
if so, there is a lot of information on antivirals for FM on the immunesupport.com message boards and on the internet.
CMV is the most common infection is post transplant patients which is why we recipients are prescribed Valcyte for a period of months after our transplants as part of the anti- fungal, anti-bacterial and anti-viral regime of meds along with out immunosuppressants.
In the vast majority of patients, CMV disease responds to treatment with intravenous Cytovene/ganciclovir.
9)
EBV VCA Antibodies (IgG) 98 (Reference lower then 1)
EBV EBNA1 Antibodies (IgG) 98 (Reference lower then 1)
Well the Lab told me, that was an old infection, and for your information, 98 was the top of range the lab could detect. I thought ok, when the lab says old infection, then it should be like that. Today i know, that this constellation of Antibodies against EBV is showing a reactivation of the virus.
Prior to that my thyroid was checked and adrenals too... everything fine.
m actually here is to catch people who I think may have CFS and try to give them information and get them to join the fibro/CFS community. Sometimes I get frustrated because members don't respond.... but I understand. Thinking that you may have an illness called "Chronic Fatigue Syndrome" is a BIG pill to swallow.
I asked MedHelp to add the fibro/CFS board in this forum (check under "related communities") and they did do that.
However after about a week and a half to two weeks the pain went away. I was started on Valcyte about 2-3 weeks after all this. I also had a blood vessel rupture in my eye towards the back making it almost impossible to see anything when I went to try and find out what was going on (Have been seen by three different optometry clinics). I Have also been using Predisonal 4-6 times a day and Cyclopentalate 2 times daily.
We declined, which is a good thing now because I have a surrogate that is pregnant with twins and they are due in Feb of 2009. I have been thinking about trying the valcyte. The only problem with me and valcyte is that I have chronic low white blood cell counts. Mine are always in the 3.2-4.5 range. I have had a bone marrow biopsy and some other tests to rule out any kind of blood cancer.
I am hoping for suggestions about what I should be tested for any helpful information suggestions what type of doctor I should be seeing? In January I will be seeing a doctor who specializes in internal medicine.
Thank you for your help, I appreciate it!
I recently asked a quesrion regarding a patient with a small rectal cancer that could have been treated with radiation, but the radiologist consulted with does not recommend radiation as the patient had a cobalt implant 40 years ago for cervical cancer & thinks she has had too much radiation. She is 79 years old & NEEDS TO KNOW if there is another way to treat it without surgery requiring a colostomy.
After body has immuno response, such as produce antibody and huge amount of hiv specific killer T-cells, CD4 will have slightly increase, but CD8 has more significantly increase. Positive patient has CD4/CD8 ratio <1.
You might want to print that page... perhaps also find the information on the Valcyte trial info as well. (Dr. Jose Montoya at Stanford University)
I don't think most people realize the heroic efforts that CFS & FM patients make on the daily basis.
It is working, although it takes years and can make you feel worse. But it is intended to cure CFS... just like the drug Valcyte. But Valcyte is an immunosuppresant and has some very toxic and possibly deadly side effects.
If you have any questions for Dr. N... zip them my way before 5 PM (Pacific Time) today. Send them via PM or note.
I have CLL and was just dx with Papillary Thyoird Cancer-one cm nodule on isthmus dx by FNA. I also have several small nodule on the right lobe and lumpy lymph node on my right neck. I have had extreme fatigue prior to the thyroid dx. I'm schedule for a total thyroidectomy and select lymph node removal next week. Doc says no thyroid replacement therapy for thirty days post-op pending scan for metasteses. I worried about the thirty days. Any idea on what I can expect?
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