Trigeminal neuralgia support group
Common Questions and Answers about Trigeminal neuralgia support group
trigeminal-neuralgia
Dear susanjillian422,
What you are describing sounds so very terrifying and painful! Have they checked you for trigeminal neuralgia? That's what that sounds like to me (Im a nurse by the way). I hope you can find relief soon, as losing your vision is one of the worst things that can happen to someone.
I know someone who was recently diagnosed with TN and also has a lot of pain. It is a difficult condition.
There is a forum on medhelp for Trigeminal Neuralgia where you can find support and hear others' stories. Just click on Forums in the blue menu bar up top, and scroll down to the Ts.
I hope she finds relief soon!
My first attack of pain from what was diagnosed (after seeing two dentists and several Drs) as Atypical Trigeminal neuralgia took over two months to get the pain under control. The side effects from the medications were also very bad, although I was grateful for any relief from the extreme pain. I have been seen at the neurological centre and have had an MRI scan to determine if there was a vessel crossing over the Trigeminal nerve, which could be causing the pain attack.
Did you ever get a reply? Sounds like Trigeminal Neuralgia Type 1 or Atypical. There is help for this! Same needs used for seizures help condition and pain attacks. Tegretol is one but many more. Thank you
Neurologist treats TN. Studies happening now.
I believe I have some trigeminal neuralgia also. At least my chiro says I do and with as bad as my TMJ is I wouldn't doubt it. I also have a really bad neck so I wonder how many symptoms are from those two alone...
It's hard to be in limboland isn't it? I don't even know what kind of Dr. to see next.
Traumatic trigeminal neuropathy is generally not associated with trigeminal neuralgia. However, both entities may be responsive to pharmacologic intervention. Seeing a neurologist or orofacial pain specialist misadvised.
I've only had trigeminal neuralgia since Dec 17, 2008 and am 47 years old. I was told I'm "fairly young" for this disease, but I also have multiple sclerosis, so that may have been a contributing factor. Your son is much younger than me and that may be a big factor in what a doctor may advise.
My advice is that your son find a doctor who specializes in TN, preferably at a teaching hospital in the nearest big city.
Symptomatic trigeminal neuralgia is usually caused by multiple sclerosis or by tumours arising near the trigeminal nerve root.
Differential diagnosis of trigeminal neuralgia:
Cluster headache - Longer-lasting pain; orbital or supraorbital; may cause patient to wake from sleep; autonomic symptoms
Dental pain (e.g.
With MS, the most common jaw-area complaint is trigeminal neuralgia, though this is characterised by pain rather than a chattering as it involves the trigeminal nerve.
I did feel my teeth chattering yesterday, but that's because it hit below zero here!
Hi,
The common causes of shooting pains on right side of head are trigeminal neuralgia, temporal arteritis, tension headaches etc.In trigeminal neuralgia there are successive bouts of face pain. This pain occurs when a blood vessel compresses the trigeminal nerve as it leaves the brain stem. Temporal arteritis is caused due to inflammation of medium and large sized arteries bringing blood to the head.
I have been going to the doctor for several years for sinusitis, then I began to have facial pain. After several different doctors, I was told that I had trigeminal neuralgia as well as a deviated septum. I eventually had laser surgery for the trigeminal neuralgia, but the a facial pain continues. The nerve pain has subsided, but I continue to have facial pain on my left side. The pain seems to get worse if I lean my head to that side.
Hello unnerved,
Trigeminal nerve which is responsible for sensations of the face. The cause trigeminal neuralgia is probably a blood vessel pressing on the trigeminal nerve. Tumors and multiple sclerosis can also cause it, but in some cases the cause is unknown. The pain is sudden, severe, electric shock-like, stabbing that is typically felt on one side of the jaw or cheek.
Trigeminal neuralgia (TN) rarely occurs with sinusitis but it has been described. The persistent congestion and your severe headache suggest that, despite the "clear" sinus x-rays you may have sinusitis or an infection of the sinus that has extended beyond the sinus walls.
That you are still ill suggests a possible infectious complication. You would do well to consult with an ENT specialist and have a CT scan of your sinuses and the adjacent areas.
Good luck.
Hi, Thank you for your question. Trigeminal neuralgia may be presented with typical one sided facial pain extending to temple and eye( ophthalmic branch of trigeminal nerve may be involved) and sore gums of the teeth of same side (maxillary branch of 5th nerve). Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid.
Brain lesions can cause symptoms in various locations in your body, but are more likely to be the cause of trigeminal neuralgia, cognitive impairment, optic neuritis, vertigo, dysphagia, etc.
Does Trigeminal Neuralgia worsen with age. I've tried Tegretol but the pain has some back agaiin after about a year and is very, very intense. It is like a needle made of glass penetrating the right side of my nose and going into my head. What is the best treatment for this and can it be cured completely.
This discussion is related to <a href='/posts/show/894401'>Trigeminal neuralgia more help</a>.
One of the causes of Trigeminal Neuralgia could be tumors. The Trigeminal nerve and its branches touches many parts of the face including the sinuses. (Google Gray's Anatomy (bartleby.com) for good diagrams of where the Trigeminal Nerve is).
I personally have not heard that TN loosens teeth -- although pain in the teeth and gums (because of all the areas the nerve touches) is common.
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