hi, I have atypical trigeminal neuralgia. I am just wondering about the success rate of the rhizotomy procedure. Any experiences would be most helpful.
Trigeminal neuralgia can come and go but your statement suggests that you probably had some type of nasal surgery or what is called percutaneous stereotactic radiofrequency rhizotomy, an effective treatment for trigeminal neuralgia and one with lasting benefit. Thus the pain that you are now experiencing is unlikely to be related to the trigeminal neuralgia, as you yourself suggest.
Can you please tell me how long I can expect to have numbness following a rhizotomy? My surgery was yesterday (I have atypical trigeminal neuralgia) and I have been experiencing severe numbness on my bottom lip, the left side of my tongue (can't taste anything but salt), the inside of my cheek (keep biting it!), the outside of my face all the way up to my ear. I realize that it has been less than 24 hours since the procedure but I would like to know when I will regain sensation.
//www.fpa-support.org/ -- the Trigeminal Neuralgia Association. They sell a book on their site called "Striking Back" that has a lot of good information.
Best of luck!
I was just given a preliminary diagnosis of trigeminal neuralgia and, after spending too much time reading online about it, am completely terrified. I will be meeting with a neurologist next week to discuss treatment options. In most ways, my symptoms seem to match what I read online: it feels like dental pain, on one side of my face (usually in the lower molar area, sometimes in the upper), and is triggered by warm or cool food and drinks, or chewing, or sometimes even the wind.
I have had post-herpetic neuralgia for almost 5 years now. I have tried every drug on the market and some that weren't. I have also had gamma ray knife surgery which had no result at all. I am currently on the maximum dose of gabapentin. Is there anything else to try? Is the damage due to inflammation or some other type of damage to the nerve? Thank you.
This discussion is related to <a href='/posts/show/295728'>Trigeminal nerve damage</a>.
I have had 6 procedures on my Trigeminal nerve. 5 where Trigeminal gycerol rhizotomy - 1 worked for about 18 months to stop the pain the other 4 didn't and I have had gamma knife which was horrendous and did nothing.
Did you ever get a reply? Sounds like Trigeminal Neuralgia Type 1 or Atypical. There is help for this! Same needs used for seizures help condition and pain attacks. Tegretol is one but many more. Thank you
Neurologist treats TN. Studies happening now.
Traumatic trigeminal neuropathy is generally not associated with trigeminal neuralgia. However, both entities may be responsive to pharmacologic intervention. Seeing a neurologist or orofacial pain specialist misadvised.
In January, she was diagnosed with Occipital Neuralgia and was given a cortisone injection, - the pain got 10X worse. In February, she was diagnosed by another Doctor (Neorosurgeon), with the same condition and had a neve block performed, the pain increased by another 10X. She is now oin the hospital, the Neurodurgeon syas he can't perform surgery, pain management says they have nothing to offer. What are the alternatives? I have read abour Occipital Nerve sectioniong. Is that an option?
Symptomatic trigeminal neuralgia is usually caused by multiple sclerosis or by tumours arising near the trigeminal nerve root.
Differential diagnosis of trigeminal neuralgia:
Cluster headache - Longer-lasting pain; orbital or supraorbital; may cause patient to wake from sleep; autonomic symptoms
Dental pain (e.g.
Hi,
The common causes of shooting pains on right side of head are trigeminal neuralgia, temporal arteritis, tension headaches etc.In trigeminal neuralgia there are successive bouts of face pain. This pain occurs when a blood vessel compresses the trigeminal nerve as it leaves the brain stem. Temporal arteritis is caused due to inflammation of medium and large sized arteries bringing blood to the head.
Hello unnerved,
Trigeminal nerve which is responsible for sensations of the face. The cause trigeminal neuralgia is probably a blood vessel pressing on the trigeminal nerve. Tumors and multiple sclerosis can also cause it, but in some cases the cause is unknown. The pain is sudden, severe, electric shock-like, stabbing that is typically felt on one side of the jaw or cheek.
Trigeminal neuralgia (TN) rarely occurs with sinusitis but it has been described. The persistent congestion and your severe headache suggest that, despite the "clear" sinus x-rays you may have sinusitis or an infection of the sinus that has extended beyond the sinus walls.
That you are still ill suggests a possible infectious complication. You would do well to consult with an ENT specialist and have a CT scan of your sinuses and the adjacent areas.
Good luck.
Hi, Thank you for your question. Trigeminal neuralgia may be presented with typical one sided facial pain extending to temple and eye( ophthalmic branch of trigeminal nerve may be involved) and sore gums of the teeth of same side (maxillary branch of 5th nerve). Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid.
she is 29 and has been diagnosed with trigeminal neuralgia. could her tn be from the meningitis? maybe a sid effect?? she is on very strong medication and can not have the dosage increased anymore. she suffers alot with extreme pain. thank you, i need to find out as much as i can about this disease.
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