Trigeminal neuralgia can come and go but your statement suggests that you probably had some type of nasal surgery or what is called percutaneous stereotactic radiofrequency rhizotomy, an effective treatment for trigeminal neuralgia and one with lasting benefit. Thus the pain that you are now experiencing is unlikely to be related to the trigeminal neuralgia, as you yourself suggest.
hi, I have atypical trigeminal neuralgia. I am just wondering about the success rate of the rhizotomy procedure. Any experiences would be most helpful.
Can you please tell me how long I can expect to have numbness following a rhizotomy? My surgery was yesterday (I have atypical trigeminal neuralgia) and I have been experiencing severe numbness on my bottom lip, the left side of my tongue (can't taste anything but salt), the inside of my cheek (keep biting it!), the outside of my face all the way up to my ear. I realize that it has been less than 24 hours since the procedure but I would like to know when I will regain sensation.
//www.fpa-support.org/ -- the Trigeminal Neuralgia Association. They sell a book on their site called "Striking Back" that has a lot of good information.
Best of luck!
I was just given a preliminary diagnosis of trigeminal neuralgia and, after spending too much time reading online about it, am completely terrified. I will be meeting with a neurologist next week to discuss treatment options. In most ways, my symptoms seem to match what I read online: it feels like dental pain, on one side of my face (usually in the lower molar area, sometimes in the upper), and is triggered by warm or cool food and drinks, or chewing, or sometimes even the wind.
I have had post-herpetic neuralgia for almost 5 years now. I have tried every drug on the market and some that weren't. I have also had gamma ray knife surgery which had no result at all. I am currently on the maximum dose of gabapentin. Is there anything else to try? Is the damage due to inflammation or some other type of damage to the nerve? Thank you.
This discussion is related to <a href='/posts/show/295728'>Trigeminal nerve damage</a>.
I have had 6 procedures on my Trigeminal nerve. 5 where Trigeminal gycerol rhizotomy - 1 worked for about 18 months to stop the pain the other 4 didn't and I have had gamma knife which was horrendous and did nothing.
Traumatic trigeminal neuropathy is generally not associated with trigeminal neuralgia. However, both entities may be responsive to pharmacologic intervention. Seeing a neurologist or orofacial pain specialist misadvised.
Your symptoms do not exactly match the clinical picture of trigeminal neuralgia but you should continue with the treatment and do notgo in for complicated details.The treatment consists of medicines, surgery, and complementary approaches.
For more information refer http://www.ninds.nih.gov/disorders/trigeminal_neuralgia/detail_trigeminal_neuralgia.
Do you think this can still be Trigeminal Neuralgia? Is a neurologist the best type of Doctor to seek treatment from?
Thank you again.
i have a reaserch on mangment of trigeminal neuralgia , but i cann't know until now which the best medical or surgical treatment and i couldn't found which have high rate of recurrance.
Does Trigeminal Neuralgia worsen with age. I've tried Tegretol but the pain has some back agaiin after about a year and is very, very intense. It is like a needle made of glass penetrating the right side of my nose and going into my head. What is the best treatment for this and can it be cured completely.
This discussion is related to <a href='/posts/show/894401'>Trigeminal neuralgia more help</a>.
Hello,
In your case, I think that it can be trigeminal neuralgia. Trigeminal neuralgia is very painful swelling (inflammation) of the nerve (trigeminal nerve) that delivers feeling to the face and "surface" of the eye. Trigeminal neuralgia causes severe, short-lasting (only a few seconds) facial pain on the side of the affected nerve even by slight touch. Mostly affects elderly females. May be caused in multiple sclerosis also.
Does anyone know an Acupuncturist who specializes on the relief of pain from Trigeminal Neuralgia in the UK/ France/Germany?Brussels?
Any feedback on this appreciated.
Hello,
From your symptoms the possibilities of trigeminal neuralgia and temporal arteritis need to be ruled out. Trigeminal neuralgia is painful swelling (inflammation) of the nerve (trigeminal nerve) that delivers feeling to the face and "surface" of the eye. Trigeminal neuralgia causes severe, short-lasting (only a few seconds) facial pain on the side of the affected nerve even by slight touch. Mostly affects elderly females. May be caused in multiple sclerosis also.
org/posts/Multiple-Sclerosis/Attack-of-trigeminal-neuralgia--OMG/show/2646953#post_12856616) I moaned about it, but I have to say it was excruciating. Fine now, at least from that standpoint.
The standard treatment is Tegretol (carbamazepine). It turns out I can't tolerate that, as a reasonably effective dose wiped out my balance and had me staggering all over the place. It also almost destroyed my platelet count, which was down to 23.
i have been treated for tmj for 5 years with no relief and then i had an arthrocentesis done and still no relief. now my doc tells me i have trigeminal neuralgia and is going to give me an injection into that nerve. what i want to know is there side effects of this injection? and can trigeminal neuralgia cause pain in the back of the head where the skull meets the spine. i have had continuous pain there worse then ever. i am now on neurontin and baclofen and it helps extremely.
Symptomatic trigeminal neuralgia is usually caused by multiple sclerosis or by tumours arising near the trigeminal nerve root.
Differential diagnosis of trigeminal neuralgia:
Cluster headache - Longer-lasting pain; orbital or supraorbital; may cause patient to wake from sleep; autonomic symptoms
Dental pain (e.g.
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