I have tried many medications, physio, acupuncture, chiro. I have been told it is not MS or Trigeminal Neuralgia even though a lot of my pain patterns seem to follow branches of the TN nerves or nucleus from brain, into tmj joint, face, teeth and nucleus at cervical spine. I have had three neurologists rule on trigeminal neuralgia. However, couldn't there be nerve impingement somewhere along the trigeminal nerve path?
Did you ever get a reply? Sounds like Trigeminal Neuralgia Type 1 or Atypical. There is help for this! Same needs used for seizures help condition and pain attacks. Tegretol is one but many more. Thank you
Neurologist treats TN. Studies happening now.
I do have TMJ problems as well as trigeminal neuralgia. The TMJ was mainly a result of grinding my teeth in my sleep and clenching my teeth during the day. I used a night guard at night and it stopped the pain. I still get tense muscles occasionally, if I am clenching my teeth or have my mouth open at the dentist or eat really chewy candy. I had an xray of my jaw to confirm the TMJ problem. I also experienced clicking and popping in my jaw, and sharp pain that felt like it was in my ear.
Ok Listen I have TMJ, I got it after some dental work was done on my teeth last year, The nerves in my face are killing me. my mouth burns on the inside as well on the outside my lips burn and sometimes I get stabbing pain in my cheekbones, I will have burning even on my nose.This so miserable. Has anyone had this. The doctor tells me my bite if off that's causing this.
Does anyone out there have neuralgia pain along with their TMJ or TMD pain??? I've been tested for trigeminal neuralgia several times and they are telling me I don't have it, or facial neuralgia, yet it fits the description according to the pain I am having. My pain is extreme, and I am taking various meds that are making me sick... Wondering if anyone else is in this position..
seekandfind46..
However, I had the same symptoms you were having and was diagnosed with Trigeminal Neuralgia. Its where one or more of the three main nerves in your face cause nerve pain, or neuralgia. The first nerve lays across the eyebrows, the second lays across your cheek bones and the third nerve lays across the chin. My doctor put me on Lyrica and Klonopin and it seems to help a little, although the pain does intensify and the pain medication does not work for it since it is nerve pain.
Headache and tingling and pain in left side of face could be due to trigeminal neuralgia, temporal arteritis, inner ear problem or TMJ. In TMJ there is pain on clenching the teeth. In Trigeminal neuralgia the point in front of the ear is usually painful on pressing. It could also be due to cold and sinusitis. It is difficult to comment beyond this at this stage. Do discuss this with your doctor and get yourself examined
Hope this helps.
But since you have such pain and are trying to be thorough, you likely still should think seriously about visiting either an oral and maxillofacial specialist who deals with TMJ or a TMJ specializing dentist. Do you clench or grind your teeth at night? (If you grind, your dentist should be able to perceive from the shaping of your teeth.) You don't necessarily have to have any sore teeth to have a clenching or grinding problem.
Look up info on Trigeminal Neuralgia...That is the "Tic" I think they were referring to..There is a web site TNA devoted to explaining this facial pain that often starts from tooth or eye problems and causes the trigeminal nerve to act up...It is a very painful condition that can "come and go" , stay, etc...Best of Luck..
Sharp pain in the side of face could be due to injury to a nerve or pinched nerve, an infection or a trauma. Hence it could be Trigeminal neuralgia, abscess in tooth, exposed root canal, internal ear infection, maxillary sinusitis, TMJ, migraine, herpes (recurrent) without rash or fibromyalgia localized to face.
If the pain is due to TMJ, you will find it linked to either opening your mouth wide or to chewing. Also, touching the swelling on the joint aggravates the pain.
Hi, Thank you for your question. This may be Trigeminal neuralgia as you have typical one sided facial pain extending to temple and eye( ophthalmic branch of trigeminal nerve may be involved) and sore gums of the teeth of same side (maxillary branch of 5th nerve). Trigeminal neuralgia may have a triggering factor like recent history of tooth extraction, touch, cold breeze or hot sensation etc. which you need to evaluate and avoid.
Hello to fellow sufferers. I was just diagnosed with either Trigeminal Neuralgia or TMJ. Yes, it's true, Dr doesn't know. I checked TMJ and the stabbing, excruciating pain that feels like there's an icepick being jammed into my ear, Sounds like TMJ but I also am VERY touch-sensitive when it happens. I can't even feather touch anywhere on my ear or area around it. So, if anyone could shed any light on this, it'd be greatly appreciated.
Thinking of it all now, I feel the facial tingling and the pain are due to the TMJ. Trigeminal Neuralgia looked less likely.
The TMJ has to be taken care of. Your doctors should be able to tell you how much more time you need to get TMJ under control. Anemia (low hemoglobin) should also be ruled out.
What are you taking now for the TMJ ?
Please let me know if I am missing any other symptoms. I was trying to put together all the symptoms.
Your descriptions suggest trigeminal neuralgia. Seeing a neurologist or orofacial pain specialist is advised.
Numbness of lower left lip is not a common manifestation of trigeminal neuralgia or tmj issue. If your tmj specialist does not know how to diagnose and manage, you may need it see an Orofacial pain specialist.
I have no actual pain, just an achy discomfort. Does this sound like trigeminal neuralgia or something more TMJ related? Any answers would be great. Thank you!
I have no actual pain, just an achy discomfort. Does this sound like trigeminal neuralgia or something more TMJ related? Any answers would be great. Thank you!
i have been treated for tmj for 5 years with no relief and then i had an arthrocentesis done and still no relief. now my doc tells me i have trigeminal neuralgia and is going to give me an injection into that nerve. what i want to know is there side effects of this injection? and can trigeminal neuralgia cause pain in the back of the head where the skull meets the spine. i have had continuous pain there worse then ever. i am now on neurontin and baclofen and it helps extremely.
Regarding the symptoms that you have, they sound like a neuralgia, and more specifically a trigeminal neuralgia. Without being able to get a detailed history an examine you I cannot give you an exact diagnosis. Trigeminal neuralgia is pain that presents in a paroxysmal fashion in the distribution of the trigeminal nerve (frontal region, maxillar region and mandibular region).
Sharp pain in the side of face could be due to injury t a nerve or pinched nerve, an infection or a trauma. Hence it could be Trigeminal neuralgia, abscess in tooth, exposed root canal, internal ear infection, maxillary sinusitis, TMJ, migraine, herpes (recurrent) without rash or fibromyalgia localized to face.
It is difficult to comment beyond this at this stage. A comprehensive investigation is required keeping all the points in mind.
I have no actual pain, just an achy discomfort. Does this sound like trigeminal neuralgia or something more TMJ related? Any answers would be great. Thank you!
Hello.
For a few months my trigeminal nerve has been irritated. It's the first and second branch. I experience the electrical shock (more like a tickle) that I've experienced with Trigeminal Neuralgia but there's no pain. It seems to happen often when my head is tilted forward/down and that makes me wonder if it could be an issue with my cervical spine. I really don't have any unusual discomfort in my neck. I don't have headaches or sinus pressure or anything.
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