Did you ever get a reply? Sounds like Trigeminal Neuralgia Type 1 or Atypical. There is help for this! Same needs used for seizures help condition and pain attacks. Tegretol is one but many more. Thank you
Neurologist treats TN. Studies happening now.
I do have TMJ problems as well as trigeminal neuralgia. The TMJ was mainly a result of grinding my teeth in my sleep and clenching my teeth during the day. I used a night guard at night and it stopped the pain. I still get tense muscles occasionally, if I am clenching my teeth or have my mouth open at the dentist or eat really chewy candy. I had an xray of my jaw to confirm the TMJ problem. I also experienced clicking and popping in my jaw, and sharp pain that felt like it was in my ear.
Ok Listen I have TMJ, I got it after some dental work was done on my teeth last year, The nerves in my face are killing me. my mouth burns on the inside as well on the outside my lips burn and sometimes I get stabbing pain in my cheekbones, I will have burning even on my nose.This so miserable. Has anyone had this. The doctor tells me my bite if off that's causing this.
Headache and tingling and pain in left side of face could be due to trigeminal neuralgia, temporal arteritis, inner ear problem or TMJ. In TMJ there is pain on clenching the teeth. In Trigeminal neuralgia the point in front of the ear is usually painful on pressing. It could also be due to cold and sinusitis. It is difficult to comment beyond this at this stage. Do discuss this with your doctor and get yourself examined
Hope this helps.
So if you do not have TMJ, you might want to bring up Trigeminal Neuralgia to your physician and see what they say. I went through 4 doctors and dealt with the pain for over a year before I finally found a doctor who instantly knew what it was and started me on a medication to help the pain. I hope this helps you some.
t say for certainty what was the issue is the neurologist says trigeminal neuralgia and the ENT says TMJ. The pain is horrible and is daily. Where my mouth hurts there isn't even a tooth there! So far I have been on tegretol, Neurontin, 800mg ib profufen, Tylenol, vicodin, Tylenol 3, and Norco's and acyclovir (in case it was shingles) not all at the same time. NOTHING works. Well, the ib proufen works but it only lasts maybe 2 hours and I can only take it every 12 hours.
Does anyone out there have neuralgia pain along with their TMJ or TMD pain??? I've been tested for trigeminal neuralgia several times and they are telling me I don't have it, or facial neuralgia, yet it fits the description according to the pain I am having. My pain is extreme, and I am taking various meds that are making me sick... Wondering if anyone else is in this position..
seekandfind46..
As you mentioned, one of them is trigeminal neuralgia. This is a type of pain that comes and goes on one side of the face and is severe and sharp when present. When there is no pain, most people are symptom free. It is in the distribution of the trigeminal nerve, hence its name. The pains are usually on the cheek and jaw regions. It usually occurs in people older than 50 years of age. Triggers can include washing the face, shaving, smoking, talking, brushing teeth, etc.
4) I was referred to a Neurologist and and ENT, where both flt it was TMJ, not Trigeminal Neuralgia, and I stopped the Tegrotol. I was not weened off the medication which I now understand I should have been. I took it for about 3 weeks.
5) After I stopped the Tegrotal, I started having muscle twitching, but the facial tingling/numbness began about 4 days into the medication.
which you need to evaluate and avoid. Drug of choice for trigeminal neuralgia is carbamazepine but as the dose may vary according to severity therefore I would advice an oral medicine specialist consultation or at least a physician to confirm this diagnosis and get you treated accordingly. Take care.
i have been treated for tmj for 5 years with no relief and then i had an arthrocentesis done and still no relief. now my doc tells me i have trigeminal neuralgia and is going to give me an injection into that nerve. what i want to know is there side effects of this injection? and can trigeminal neuralgia cause pain in the back of the head where the skull meets the spine. i have had continuous pain there worse then ever. i am now on neurontin and baclofen and it helps extremely.
Hello to fellow sufferers. I was just diagnosed with either Trigeminal Neuralgia or TMJ. Yes, it's true, Dr doesn't know. I checked TMJ and the stabbing, excruciating pain that feels like there's an icepick being jammed into my ear, Sounds like TMJ but I also am VERY touch-sensitive when it happens. I can't even feather touch anywhere on my ear or area around it. So, if anyone could shed any light on this, it'd be greatly appreciated.
Your descriptions suggest trigeminal neuralgia. Seeing a neurologist or orofacial pain specialist is advised.
Numbness of lower left lip is not a common manifestation of trigeminal neuralgia or tmj issue. If your tmj specialist does not know how to diagnose and manage, you may need it see an Orofacial pain specialist.
I have saver headaches, jaw pain , and TMJ. I take Lyrica and it helps most times. I find that I need to increase the Lyrica medication very often. I take a large amount of Magnisium because my left part of my face is tight and hard to open. MY question is,
I do not understand my pain, Do my pain originate in my jaw or my head? In the past I had symptoms of Try mingle Neuralgia. Could that contribute to my facial pain? Why does the Lyrica wont work all the time?
The main symptoms are pain in the jaw and temple region and malocclusion of teeth. Yu can try wearing a tooth guard and see if it helps your symptoms. Meanwhile please schedule an appointment with your dentist and discuss this possibility with him.
http://en.wikipedia.org/wiki/Temporomandibular_joint_disorder
Take care!
i looked up the symptoms for trigeminal neuralgia and the pain i have is not excruciating and last a lot longer than a minute
Regarding the symptoms that you have, they sound like a neuralgia, and more specifically a trigeminal neuralgia. Without being able to get a detailed history an examine you I cannot give you an exact diagnosis. Trigeminal neuralgia is pain that presents in a paroxysmal fashion in the distribution of the trigeminal nerve (frontal region, maxillar region and mandibular region).
If so, then it is most likely TMJ, I have it as well and my left ear gets the clogged feeling A LOT and will stay for weeks at a time. It is so frustrating. One thing that helps is to sleep with a mouth guard. You can either get it from a dentist or W-M or any pharmacy should have one. TMJ is just basically arthritis in your jaw. And the main cause of it is grinding your teeth, hence the mouth guard. Other causes are chewing gum or candy.
Hello.
For a few months my trigeminal nerve has been irritated. It's the first and second branch. I experience the electrical shock (more like a tickle) that I've experienced with Trigeminal Neuralgia but there's no pain. It seems to happen often when my head is tilted forward/down and that makes me wonder if it could be an issue with my cervical spine. I really don't have any unusual discomfort in my neck. I don't have headaches or sinus pressure or anything.
Possible trigeminal neuralgia or Temporo-mandibular-joint(TMJ) problem. Do not worry, can be treated with medication. Do consult doc.
Yesterday i experienced from waking stabbing like pains just above the area of the top of my ear. They lasted seconds but happened very regularly throughout the day until it finally settled yesterday evening. It wasn't shooting anywhere else but little stabbing pains in one area. Is this neuralgia? maybe Trigeminal?
I have been having a lot of jaw clicking, pain in upper teeth from constantly clenching them & ear blockage/tinnitus which my doctor is thinking is all related to TMJ.
If all these are normal, then you would need CT scan of the brain. TMJ, temporal arteritis and trigeminal neuralgia too should be investigated.
Consult a good neurologist and rule out these possibilities.
Hope this helps. Do let me know if there is any thing else and keep me posted. Take care!
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