trigeminal neuralgia and ms

Where exactly is your pain? I have trigeminal neuralgia which can be mistaken as TMJ. That was one of the things I had to have ruled out before I received my diagnosis of TN.

I have these symptoms and a diagnosis of RRMS. Bilateral trigeminal neuralgia is almost exclusive to MS. I have it as well to match my brainstem lesions. As noted on one of my recent posts, dysautonomia can occur in MS with brainstem lesions so it may be tough to parse out the different symptoms to different diagnoses. The bilateral trigeminal neuralgia points to MS. The rest of the symptoms I can't be so definite about. But I have done much research on the trigeminal neuralgia.

Hi, guys. I hadn't looked at this site for more than a year. STN is a new categorization. Clearly my TN is STN also. This does not mean that we don't a form of Trigeminal Neuralgia. The "Powers That Be" have conferred and determined that they will separate TN from MS from the classic TN which is caused from Compression of the nerve. This makes sense and does NOT change what we have been saying about TN, its incidence in MSers or its meaning.

A related discussion, <a href="/posts/Trigeminal-Neuralgia/vague-symtpoms-related-to-trigeminal-neualgia/show/2710425">vague symtpoms related to trigeminal neualgia</a> was started.

I had a car accident on 6-2-08 and was ejected from my vehicle. So on top of the trigeminal neuralgia I have broadbased bulge to c4-c5 and bulge with annular tear to L4-L5 and bulging L6-S1. I wonder if the c-spine could contribute to some of the pain in the facial nerve Anyone know?

Hi there...I have what is called Paratrigeminal Neuralgia and it is related to Trigeminal Neuralgia which this could be related to. I am also thinking that it could be a paresthesia which is caused by nerves in your face. I think this is something worth mentioning to your neuro next time you see one.

org/posts/Multiple-Sclerosis/Attack-of-trigeminal-neuralgia--OMG/show/2646953#post_12856616) I moaned about it, but I have to say it was excruciating. Fine now, at least from that standpoint. The standard treatment is Tegretol (carbamazepine). It turns out I can't tolerate that, as a reasonably effective dose wiped out my balance and had me staggering all over the place. It also almost destroyed my platelet count, which was down to 23.

Infection or any increase in body temperature can cause a pseudo exacerbation (and exacerbations as well) of ms, however it can also worsen symptoms of other conditions as well. I'm not a doctor - I don't imagine tattooing eyebrows could cause trigeminal neuralgia but I imagine it could set of peripheral neuralgias. Any surgery or invasive procedure can nick a nerve. The trigeminal nerve lies across your face, and you would generally have pain in other areas than your nose.

Thank you Patsy. That eases my mind a bit. I don't have total numbness, and actually the tingling, pins and needles, and burning sensations are the least of my worries and don't happen to often. I'd say my most bothersome frequent symptoms are the dizziness, weakness (not true weakness as you say, I don't think cause I still have strength, but it just feels really heavy, and tired), and pain. I get all sorts of pain..

Hi again, my dear. I should have looked to see that you lived in Santa Cruz. Sorry 'bout that. You're pretty! And thin! And look like a fun person. So sorry this trigeminal *&@^()# is in you picture at the moment. I have had it - but for very short bouts. And long periods in between. Hope you get some relief soon. And don't get it again- EVER!! Has anyone had "chopsticks being jabbed into their eardrums" type of pain from this?

I forgot to mention that Trigeminal Neuralgia is 300 times more common in MS than it is in the general population. So, yes, it would be related to the MS.

My neuro ordered the typical blood tests for the disorders that mimic MS: lupus, Lyme's, B12, sarcoidosis etc. All have come back negative. So I guess the UBOs in my periventricular and deep white matter, subcortical, as well as the brainstem and cerebellum are a mystery. Today is the day I " up" my dose of Trileptal to get relief from this trigeminal neuralgia. Looks like a groggy weekend is ahead!I just wish I had some closure on what is going on right now.

For this, well need help of the other symptom, the face. To me, it looks likes the pain and hypersensitivity to touch as seen in Trigeminal Neuralgia. You have described the facial pain in exactly the manner in which Trigeminal Neuralgia strikes. I am concerned here. If this is trigeminal neuralgia, and you do not have any other indication that would tell that this is a herpes virus infection, the next option is MS. I feel this should be kept in mind and ruled out accordingly.

which you need to evaluate and avoid. Drug of choice for trigeminal neuralgia is carbamazepine but as the dose may vary according to severity therefore I would advice an oral medicine specialist consultation or at least a physician to confirm this diagnosis and get you treated accordingly. Take care.

I decided to do a search on MS and trigeminal neuralgia, and found some interesting articles; I believe I mentioned that my neuro-opthalmologist noted that I have a lesion in my pons? :o) I wonder if I should print these out for my MS specialist? I doubt that it would make much difference to her, but it might make me feel better, and it might make my next neurologist take a closer look at my brain MRIs, and maybe order that 3T a little sooner.

So if you do not have TMJ, you might want to bring up Trigeminal Neuralgia to your physician and see what they say. I went through 4 doctors and dealt with the pain for over a year before I finally found a doctor who instantly knew what it was and started me on a medication to help the pain. I hope this helps you some.

Ugh, I wish I even knew what to do. My hands and feet have been burning and tingling since last Thursday. I called my current neuro to see if it was a side effect/reaction to Trileptal which I take for trigeminal neuralgia. I finally got a call back from him 3 days later. He says it could or could not be related to the medicine, but basically said to deal with it because the medicine seems to be helping some. My MRI showed lesions and the report states the lesions are consistent with MS.

Dear Friend, Trigeminal Neuralgia is a really painful condition.However the lesion in your white matter may not linked with the same.If , after numerous MRI's nothing conclusive has been found about your brain's white matter lesions,then it's better to pause the things. However the alarming thing is the sporadic weakness in your legs.I would suggest you to get a MRI screening of the full back.Maybe it will reveal more findings rather than multiple brain MRI's.

Hi neuralgia--yes, the connections and overlap between fibromyalgia and autoimmune disorders, the connections with stress, etc. are interesting (and confusing). Too much for me to figure out. :) I wouldn't say I have trigeminal neuralgia as it typically occurs, because I have had very little in the way of pain.

When I was released from the emergency room they diagnosed me with Trigeminal Neuralgia and that I should see a Neurologist. I was scared and still did not believe them, so instead I went to an ear, nose and throat doctor and he took a look at my bite and said you have TMJ. That was it. It has always happened on my left side. Within the last year it is starting on the right side.

Trigeminal neuralgia and ms

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