We know the tumor is in a slightly different area than it was originally. He is in treatment (Temodar for the second time) for the third recurrence of his tumor. We have always been told it is in an area where surgery has not been an option. The oncologist does say he believes it is a higher grade. We think he believes it is glioblastoma but he won't say that definitely without doing another biopsy.
Someone said that Topotecan worked better when combined with thalidomide -- don't know much more about it than that, although when I have chemo again (when the Arimidex doesn't hold my counts steady anymore) they are threatening me with topotecan next.
A month ago my husband (41) had a tumor resection of a GBM in the left temporal/frontal lobe. He is still recovering from surgery and has begun cancer treatment (temodar& radiation) a week ago. He has a previous accident injury where he has struggled with neck pain for ten years. He has been on suboxone for probably 7 years now. He is currently taking his suboxone but is not getting any relief for his head pain.
thalidomide used in the past was thought safe.
The only thing I can think of would be nerve ending damage which can happen while having treatment. Ask your doctor about that. I had it and it is not nice.
It is very difficult to treat, but current therapies include steroids, vitamins, cryosurgery, thalidomide and UVB light. If staphylococcus or other infection is present, then antibiotics may be needed.
It is very difficult to precisely confirm a diagnosis without examination and investigations and the answer is based on the medical information provided. For exact diagnosis, you are requested to consult your doctor. I sincerely hope that helps.
Just to be on the safe side. You never know... Thalidomide was once considered safe too, but the result was catastrophic!
Patient made decision to treat his anaplastic astrocytoma with surgery and Temodar only. No radiation! What is the prognosis for this 33 yr.old male.
Since the diagnosis of Glioblastoma grade 4 in August, my husband has had the tumor removed and completed the round of radiation and chemotherapy - temodar. Recently I have noticed him being very short fused and argumentative. The slightest thing sets him off as if he had been personally attack. I have also noticed depression setting in. I'm assuming this is all part of the treatment and diagnosis.
Hi,
Prurigo nodularis is very hard to treat, but current therapies include steroids, vitamins, cryosurgery, thalidomide and UVB light. In the event that staphylococcus or other infection is present, antibiotics have proven effective.
A physician may administer a strong dose of prednisone, which will almost immediately stop the itch/scratch cycle. However, cessation of steroids allows relapse to occur, usually within a few weeks.
I have been treated with several meds, including, but not limited to Iodine drops, Thalidomide, Prednisone, and topical steroids. I am now on 10 mg of Prednisone. I have been on that dosage for 6 years now, and the medication is not treating my body very nicely with weakened joints that ache, bad bruising on my arms and legs, weight gain, and a host of other problems that go with the steroid use. One of the best things for the E/N is the application of a topical steroid, Lydex cream.
One thing I can tell you is beware of certain chemos, like temodar , it can cause lukemia in people with NF, and radiation is also a no go for people with NF. Good luck.
Has anyone found anything else that lessons the symtoms of this? I recently started the Topotecan/Thalidomide course which could add to this problem.
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