We know the tumor is in a slightly different area than it was originally. He is in treatment (Temodar for the second time) for the third recurrence of his tumor. We have always been told it is in an area where surgery has not been an option. The oncologist does say he believes it is a higher grade. We think he believes it is glioblastoma but he won't say that definitely without doing another biopsy.
A month ago my husband (41) had a tumor resection of a GBM in the left temporal/frontal lobe. He is still recovering from surgery and has begun cancer treatment (temodar& radiation) a week ago. He has a previous accident injury where he has struggled with neck pain for ten years. He has been on suboxone for probably 7 years now. He is currently taking his suboxone but is not getting any relief for his head pain.
Patient made decision to treat his anaplastic astrocytoma with surgery and Temodar only. No radiation! What is the prognosis for this 33 yr.old male.
Since the diagnosis of Glioblastoma grade 4 in August, my husband has had the tumor removed and completed the round of radiation and chemotherapy - temodar. Recently I have noticed him being very short fused and argumentative. The slightest thing sets him off as if he had been personally attack. I have also noticed depression setting in. I'm assuming this is all part of the treatment and diagnosis.
One thing I can tell you is beware of certain chemos, like temodar , it can cause lukemia in people with NF, and radiation is also a no go for people with NF. Good luck.
ve now been through radiation and temodar, consults with Dr. Prados at UCSF. The tumor was still growing at last month's MRI. Now I'm on IV chemo, Avastin and cpt 11. Next MRI is in a week and we''ll see.
I'm so scared. I'm married, no kids, love my husband and can't bear having to say goodbye to him and all my beloved friends.
I don't know how to run my house any more.
The doctors at the reputable renowned hospital in Chicago claimed to have never seen a tumor this large in an adult. He received radiation and chemo for six weeks and remained on temodar for almost 18 months. The last ten percent of his tumor (near the brainstem but according to images not infiltrating into) did shrink a bit during treatment and has remained “dormant”. This all sounds amazing but he seems to be getting worse.
Schering-Plough CEO Fred Hassan said in an interview that those drugs include Nasonex, Pegintron for hepatitis, cancer drug Temodar, the Nuvaring contraceptive and the two cholesterol drugs, all of which have patent protection until 2014 or later.
Doesn't appear Pegintron will be any cheaper for a long time.
The patient has been undergoing chemotherapy with Avastin, which was discontinued in 12/2010. The patient has also undergone treatment with Temodar. Now with worsening dysphagia and speech impediment.
Findings: Multiplanar and multisequential MR images of the brain are done with and without contrast.
He begins another round of chemotherapy 5 days per month for next 6 months. It is oral chemo called Temodar. His next MRI is in 3 months. It has been very difficult finding any information on adults that have a tectal tumor so it is nice to find your posts. Life changed over night for us but we are finding hope in our doctors & in people like you have seem to be getting along just fine! I think the initial shock is wearing off. How often do you have MRI?
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