I was curious if anyone else has had long term issues, including nerve pain or numbness after Steven Johnson's Syndrome. I had SJS after taking an antibiotic years ago and have had sensations of being electricuted, stabbed, and pin and needles since a few months after the episode. It occurs in my extremities and face. I have muscle spasms and weakness. Large areas of skin on my thigh are completely numb.
Thank - I did but have to wait until Tues or Wed for the Home Access results and worry about false positive because their test is the simple version and can be false positive with SJS and Sjogrens Syndrom. I should say that I also went into acute renal failure and lost the entire lining of my vagina and intestines and had the typical SJS blisters on my mouth, inside my nose and eyes. I am just kicking myself for being so stupid.
put me on Omnicef (I am an SJS survivor so antibiotics are a dangerous area for me as I developed SJS after taking Bactrim.. for an ear infection, no less!) During this same appointment, I had the bumpy, itchy rash on both sides of my labia in the creases of my legs, right where regular panties touch and told him a week of using Nystatin cream had done nothing. My sugar is in fair control, so it's not that.
I’m so scared if it’s sjs syndrome or something else that dr doesn’t know and just getting worse each time,please help me if anyone experienced same thing or knows about it.
so I went to the ER and they confirmed that it is NOT anything like SJS or warts... its a classic case of an Allergic Reaction to Penicillin. The ER Doctor was just so much more certain of what I had...
The Urgent Care Doctor left too many doors open that it made me paranoid... and that night I started thinking do I have Herpes? Do I have HIV? Do I have SJS? It just looked so horrible you think it has to be something horrible. But I'm healing now, no more blisters are appearing...
And find a GOOD rheumy if you do not have one allready as this will require monitoring as the illness carries almost the same issues as Lupus but just also adds in moisture depletion in all areas possible-this is not to say all will be affected usually people seem to have one worse than the others(mine is eye also-mouth is dry but not enough that I would use Salagen or Evoxac)also make your dentist aware that you have it as it will cause issue with the teeth.
Last year I was hospitalized with Stevens Johnsons Syndrome(SJS), which left me with chronic dry eye and chronic bronchitis although I did not experience any obvious respiratory symptoms. Prior to that I was absolutely healthy and played sports and worked out fairly regularly. After a few months recovering from this, when I started strenuous exercises i.e. running, sprinting, I felt my chest tightening up.
He did talk to my husband in doctor terminology, all I remember besides the 2nd opinion was SJS and some other Switzerlin (sp?) name that started with an SJ...
My 17-year-old son just recently got over a bout of Stevens-Johnson syndrome. It didn't involve his skin, only his eyes, very severely, and his mouth, with horrible sores inside his mouth and his tongue. He also had them inside his penis, and it hurt to urinate. He wasn't hospitalized, although he lost 12 pounds, and he seemed to be on the mend. However, now he has aching all over, in his muscles, and even in his finger joints. He also has a few white spots on his hands.
Rare cases of serious or life-threatening rash, including SJS and toxic epidermal necrolysis (TEN), have been reported in adults and children in worldwide post-marketing experience with modafinil and NUVIGIL.
There are no factors, including duration of therapy, that are known to predict the risk of occurrence or the severity of rash associated with modafinil or NUVIGIL.
I have chronic eye inflammation due to sjs/ten and have been using a steroid drop and ivig drops to control the inflammation. If I add other types of eye drops that help with inflammation to my regiment will that further reduce the level of inflammation? Or is there a limit to how much the inflammation can be reduced?
In 2006, a medical reviewer found several cases of what he thought might be Stevens Johnson Syndrome (SJS) in children who took Provigil or modafinil. SJS and the related conditions erythema multiforme and toxic epidermal necrolysis (TEN) are life-threatening skin conditions where huge swathes of skin covering large sections of the body die and slough off and the mucus membranes are also affected.
hi Bandit, you're not supposed to ct off benzos, which Ativan is ... but as SJS said, it wasn't a very high dosage and you're 3 days in. i don't want to give you advice that you should ask a doctor though. i would consult your physician. yes, you will definitely have rebound insomnia. usually with benzos (I've taken practically all of them) the anxiety and insomnia come back twice as bad, or significantly worse, than the original issues ...
320 speckled/homogeneous but my test for MCTD, Lupus, Lyme and SJS were negative and the EBV was not significantly high. I am loathing another attack and have no clue whats happening, does anyone else feel like this?
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