rebif titration kit

Hi. I've just finished the titration stage and am now on 44 dose of Rebif using the rebismart. As the dose increased I've had really bad stinging like a bee sting when the drug starts going in. I'm starting to dread the injections already. I would be very grateful for any tips to reduce the sting as I'm a newbie to this. Many thanks, Sue.

Hi, I just began my titration of Rebif, with 8.8 mcg for 2 weeks, so I moved up to 22 mcg on Friday, January 29th. So far, my side effects were flu like symptoms and increased tremors (with 8.8 mcg). Today, Saturday 30th, my side effects include flu like symptoms, extreme aches and pain throughout my body, all the way down to my bones, like I have been beaten severely with a baseball bat, but also I'm running a fever. Normal body temperature for me is 96.

Last night I proceeded to do my 4th Rebif injection and wasted an entire syringe because I stupidly forgot to remove the cap. By the time I realized what I was doing it was too late; I pulled the end off of the autoinjector and the medicine came shooting out. Aargh! This happened with my first shot when the nurse was instructing me. She also forgot to tell me to pull off the cap remover so the very first syringe was ruined.

I took Rebif (very similar) for a while, and I made sure of a couple of things - I took 400mg Ibuprofen just before I took my shot, and I took my shot just before bed. Most of the time when I woke up, I felt fine. Occasionally I still felt a little "flu like" in the morning, and I just took a little more Ibuprofen and I was good to go. The rest of the next day went fine. Good Luck!

That is too bad - I was hoping after your long wait you would have good luck with the first one and being able to stick with it. It is in the back of my head that I heard a doctor put Avonex as the less potent of the interferons, but I may be wrong. If that is true, I think I would step up to Rebif. Did your doctor offer any ideas or can you schedule an appt with the MS nurses and discuss it further?

I've got the nurse coming out tomorrow to take me through my first Rebif injection but this morning I've woken up with cold sores covering almost my entire lower lip....is it still ok to go ahead with starting rebif or should I put it off til I'm less run down? sorry if this is a silly question but I want to get off to a good start being as I have waited so long to start a dmd!

I was given a prescription for Rebif near the end of the steriod titration. I have labs done every three months to keep an eye on how it affects things. Everyone is different as far as what DMD they will best tolerate. I have had past history of depression, although it had lifted some before going on the Rebif, and that may be why I am tolerating it fairly well. I do use the Rebiject autoinjector, though I have had to do two manual injections when the injector malfunctioned.

My neurologist recommended Copaxone or Rebif. I have choosen Rebif mainly because apparently I have an active lesion in my neck and he said that Rebif has been shown to be quicker in "healing" the lesion. I have read about Rebif and and its side effects and starting to get really nervous. Any comments, pro or cons?

I have been taking Rebif injections, since January 2010, and I have never missed a single one, until now. Up until January 1, 2012, I have received my Rebif injections, free of charge, due to the fact I had no health insurance. I became eligible for Medicare, on January 1, 2012, and so I have had to wait for MS Lifelines to decide whether I'm still eligible for their "free of charge" program.

Is anyone currently taking Rebif? And does anyone know anything about it? I was just (finally) diagnosed with MS, though my Neuro wouln't say which kind it was... and is planning on putting me on Rebif. It's been 2 years since my symptoms started, and haven't had any kind of relapse or relief in any symptoms, they just keep coming.

This is a question for any of you who are or have been on any of the interferons. Last evening I had a bit of a meltdown, a crying jag that lasted about an hour, and a really DEEP feeling of sadness. Not quite despair, but close. I felt a bit overwhelmed with everything: my double vision coming on six months now; being off work; feeling isolated; exhausted; annoyed at my 20 lb weight gain since my dx; not being able to make vacation plans, etc. etc.

Has anyone else experienced some incredible, ever-lasting bruising at their injection sites? I've been on a titration dose for about 5 weeks now and I can still see the the bruise from my first injection. A majority of the other injection sites are red blotches that are about 2 inches in diameter. These marks are mostly visible on my thighs and stomach. Sometimes I get a little residual pain and a red welt.

Hi all- I am just writing to let everyone know that I am about to start tysabri infusions in late June. My neurologist thought that based on the "large lesion load" in my t-spine that Rebif was simply not working for me. Because I am young, and he wants to "give me the best chance" for quality of life he thought tysabri is the best choice for me (despite the risky side effects).

am anticipating a call from my neuro tomorrow and though technically the PA couldnt give me a diagnosis at my last appt cuz the doctor was not available I am about 99% sure of what he is going to say...He's already had me research the different DMD's and told me at my 1st appt he wanted them started right away though I never really got an "official" diagnosis. I am leaning towards rebif and thats the one they suggested for me..

I had to titrate back up to the full dose much more slowly and then no more GI issues. I think a lot of neuros have adopted a slower titration than Biogen recommends (one week half dose then full dose after that I think). I started in May and had issues around week 2-3 then had to bounce back to starter dose. Took me until Aug/Sept to get things squared away with that side effect.

I started Rebif in January on the titration pack, everything was good, minimal side effects. Ive been up to 44s for a while now and I have just started getting some site reactions. Not every time, my belly and thighs seem to be more reactive. Until about 5 minutes ago I thought they were limited to red, tender spots and bruising but now I have found an area on my thigh that appears to have a large (3 inch?) knot deep under the skin. It doesnt hurt, Its not red, but it is pretty solid.

Well I guess somethings as head depends of any person. Today I got the Rebif kit with the injector and all the specifications , well I guess today i'll be reading to find out a little bit more. I'm new around here but I really like it becasue there's a ton of information that any MS patient could find really usefull. I will probably have some new doubts about Rebif once i get the first shot and I really hope find some answers here . Thanks!

Still not a matter of my brain but my spine looks bad to say it simply. I have started Rebif, so far so good, I have been taking baclofen, gabapentin, etc for a long time already. I just wanted to finally get around to putting myself out and saying thanks for the help.

could help with a disability claim. I have a betaseron kit and a rebif kit, which I was urged to research. I'll follow up in December, at which time we will discuss my options. He highly recommends that I begin treatment and explained that today's treatment will be my hope ten years from now. Opinions, experiences, advice, wisdom . . . all coveted. Please share.

i have posted something similar not too long ago- as my -additional- problem is recurrent major depression for more than 10 years so far.

Am starting on rebif and I guess the doctor faxed the prescription to the MS life-lines program. it has been at least a week. I have reeived the welcome kit and a call that said to return the phone call however when i call I seem to be on hold every time for 30 plus minutes waiting and then noone has any info or "its too soon" My question is..how long did it take for people to get a call about starting therapy and actually get the meds delivered and get started.

I started on the Rebif Titration, accepting of what was now my life, and broken hearted. We are more than six-weeks into the Rebif now, and my acceptance has turned to outright frustration and depression. I have heard from friends of friends that they cured their M.S. with dietary changes and lifestyle changes. If this is possible, and how I would like to believe it is, then could I get off the Rebif boat?

I did get flu-like symptoms that included headache, slight fever, some aches and pains, etc. But, with REbif the give you a titration dosing schedule which makes you barely feel them coming on and they were very bearable for me. They will monitor the chance of it affecting your liver and blood cell counts. I've been fine so far. I took advil, tylenol or naproxen right before bed so I could sleep through any possible symptoms and it worked.

I just read more posts on the Rebismart and will give a bit more info. The comfort settings are more than injection depth.It controls how fast the needle goes, how fast you want the medication to be injected, how long you want to wait before taking the needle out & of course depth. ( there are four different depths to choose from) The machine will only inject if skin is touching it ( there is a skin sensor) And makes sure that you only inject with 48 hours between shots.

Rebif titration kit

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