National fibromyalgia research association

Common Questions and Answers about National fibromyalgia research association


2126606 tn?1346348724 While alternative therapies may be helpful, it is always recommended that patients consult their doctor before starting any treatment program. National Fibromyalgia Awareness Day is sponsored by the National Fibromyalgia & Chronic Pain Association (NFMCPA). On May 12 and throughout the month of May, the NFMCPA will work to raise awareness for the condition by offering activities and other opportunities for local communities to participate.
242516 tn?1368227505 Three separate federal cases denied any association between vaccines and autism, according to rulings on Feb 12, 2009. I pray that these rulings reassure parents who limit vaccination of their children, since decreasing rates of vaccination have led to U.S. outbreaks and preventable deaths from measles and Haemophilus influenzae type b. http://www.uscfc.uscourts.
181575 tn?1250202386 I am reposting articles / summaries on the treatment management of chronic HepB. "cajim" located these articles which are quite informative. I thought about putting them on a seaprate Health Page but didn't think it was appropriate since we didn't write them. Let's make this a sort of "Unofficial Research Thread" or "URT" for this type of information. Let's keep this URT free of comments.
Avatar n tn Fibromyalgia Network PO Box 31750 Tucson, Arizona 85751 National Fibromyalgia Research Association PO Box 3000 Salem, Oregon 97302 The Arthritis Foundation 1330 W Peachtree St Atlanta, Georgia 30309 National Institute of Arthritis, Musculoskeletal, and Skin Diseases (web site: Followup with your personal physician is essential.
217229 tn?1192766004 Some researchers suspect that viral illness could be a trigger, for both fibromyalgia and a similar condition called chronic fatigue syndrome. Research has shown that a subset of people who get Lyme disease, parvovirus, or Epstein-Barr virus—which causes mononucleosis—may later go on to develop one or the other.
Avatar n tn Since I found this site and have read much more on the subject, I came across info from a popular search engine at the NFRA (National Fibromyalgia Research Association) which have a Comparable Symtoms Chart for Fibromyalgia / CFS - Chari Malformation - Cervical Spinal Cord Compression. After using this chart, I have great suspiciousions I may have both Fibro/CFS and Chiari Malformation. I will go with printed info to my Dr. next week. Thanks for the insight.
Avatar f tn I have FM for over 12 years now, I've read numerous books, I belong to the National Fibromyalgia Network, The Fibromyalgia Association, and follow the latest research on many aspects of FM. These include, medical and pharmaceutical research. There is NO evidence that people with FM have brains that age faster. There is a neurological aspect to FM that can affect our brains. Our neurotransmitters may not be firing right to put it simply.
Avatar f tn In today’s issue of Science Express, researchers at the Whittemore-Peterson Institute (WPI), the Cleveland Clinic and the National Cancer Institute report that 67% of 101 chronic fatigue syndrome (CFS) patients tested positive for infection with xenobiotic murine retrovirus (XMRV), a gammaretrovirus associated with a subset of prostate cancer." For the article... check out:
Avatar n tn Emka, I would not be surprized if your temp really does go that low, have heard other people report similar temps with hypo. Yours may go up to the 97.s, once up and around, plus the anxiousness most of us have at the Doc's office. ________________________________________________________ While I'm on here, I just thought I would list some things of interest for all you autoimmune thyroid disease patients, I've been finding on one main website these past three years.
329994 tn?1301666848 Here is a recent film from "Today Family" where Fibromyalgia and the National Fibromyalgia Assoc are the focus. (highlight, right click ,copy and then paste to your browser) It shows what is being done in Washington DC. about opening up people's awareness to Fibromyalgia and CFS. It profiles the illnesses symptoms from physical to social difficulties. OH IT IS a very real illness, those that are skeptics should watch this clip.
Avatar f tn These scandals were reported by the Washington Post and other respected news sources around the country. CDC officials diverted research funds away from CFS research and misled Congress about the matter, according to the Inspector-General's report. There is good news though... as a result of these scandals, the CDC did a public awareness campaign on Chronic Fatigue Syndrome and there were commercials and even ads in magazines about this disease. (it is a disease.. IMO).
Avatar m tn I hear you loud and clear. I was diagnosed with sciatica when I was 17 years old by my primary care doctor. It wasn't until my foot went completely numb and I tripped over it and fell down the stairs that she finally decided to take an X-Ray and MRI of my lower back. I was 31 years old that day. It was then that I learned about my scoliosis, my bulging and torn disc, my degenerative disc disease, and a whole array of other things.
Avatar m tn One-Third of Diabetics Have Sleep Apnea MONDAY, July 30 (HealthDay News) -- People with type 2 diabetes who drag themselves through the day may be among the 36 percent of diabetics suffering from obstructive sleep apnea, according to new research. Sleep apnea occurs when impaired breathing due to collapsed airways triggers multiple nighttime awakenings. Researchers at The Whittier Institute for Diabetes in La Jolla, Calif., analyzed health data from 279 adults with type 2 diabetes.
1125587 tn?1259716816 Rheumatologist are the doctors who created the standards to actually diagnose Fibro, so if ever you were to need to take a leave of absence from work, or file for any kind of disability, you need to have a Rheumatologist see you. I found my doctor by searching the National Fibromyalgia Association website. You do have to register to sign up with them, which is free, but once you do, they allow you access to search for health care providers within your state. The site address is http://www.
1100837 tn?1267672275 Hello, Your Rheumy should be able to prescribe the Ritalin if you so choose this option, or the Topamax if decide to dump the Savella and switch. Fatigue is a common symptom of both RA and Fibro, so I would think you wouldn't have to go to a psychiatrist to get that prescription.
500238 tn?1255134814 Lyme is often misdiagnosed as Fibromyalgia, Multiple Sclerosis, Lupus, Parkinson's disease and ALS, (Lou Gehrig's disease). In one study by Alan MacDonald, MD Pathologist, he looked at 10 Alzheimer brain DNA that he received from the Harvard Brain Bank and found the Lyme bacteria in 7 of those 10 brains. His studies can be viewed at the National Institutes of Health as well as other reputable institutions and journals. My symptoms: Erythromelalgia - Erythro means red and algia means pain.
214544 tn?1201150990 I've had almost every test possible done including thyroid with the exception of an LP which was never performed. I've been diagnosed with Fibromyalgia and have been taking Lryica, Zanaflex, and Tramadol while being weaned off of Gabapentin and have had no relief of my symptoms yet.
Avatar f tn Support groups will be your best resource for good attorneys. The National Fibromyaglia Association, and Cfids of America also have documents, written by attorneys, which will accept business or sometimes tell you who to contact. The biggest mistake people make is waiting too long into the case to get an attorney having already made mistakes the attorney has to undo. What matters in these cases is usually much harder for a non-attorney to see.
Avatar f tn National Fibromyalgia Association Wolfe F et al. The American College of Rheumatology preliminary diagnostic criteria for fibromyalgia and measurement of symptoms severity. Arthritis Care & Research 2010 May; 62(5): 600 Melanie. You MUST take charge of your health matters. because your doctor will NOT! There are no guarantees, and doctors take no responsibility for one's life being in Limbo, because of the aforementioned controversial approaches.
Avatar f tn There is a laboratory in Nevada that can test people for both CFS and fibromyalgia. However, their test is still in the research phase, so I'm sure insurance companies will not cover this test. The name of the lab is Red Labs USA and they have a website. Also, the University of Nevada School of Medicine just broke ground last week to build a new facility that will conduct research and provide clinical care to patients' with CFS and fibro.
Avatar n tn I believe in treating the entire person and am a preferred provider for the National Fibromyalgia Association. Best wishes.
163305 tn?1333672171 1979-1982, University of Colorado School of Medicine Honors and Awards •Phi Beta Kappa •National Institutes of Health Clinical Investigator Award, 1983 1986 •American Gastroenterological Association Research Award, 1983 1984 •American College of Physicians Teaching & Research Scholarship, 1983 1986 •Polycystic Kidney Research Foundation, Research Award, 1992-1993 •Best Doctors in America Award, 1999 •Fellow, American College of Physicians (FACP), 1999 •Fellow, American Gastroenterological
Avatar f tn Canola BTW is not even a real plant. The canola industry is a major sponsor of American Medical Association, American Dietetic Association and their Canadian counterparts! Even the "Heart and Stroke" Foundation are promoting BECEL -a margarine made from canola oil- as heart healthy. You think that coconut oil is on a level playing field?
3060903 tn?1398568723 Conflicts of Interest Color Pain Treatment In February, Senator Ron Wyden (D-OR) wrote a letter to Sylvia Burwell, the head of the Department of Health and Human Services (HHS), about the glaring conflicts of interest at the Interagency Pain Research Coordinating Committee, convened as part of the Affordable Health Care Act3 to improve pain-related treatment strategies.
3060903 tn?1398568723 Conflicts of Interest Color Pain Treatment In February, Senator Ron Wyden (D-OR) wrote a letter to Sylvia Burwell, the head of the Department of Health and Human Services (HHS), about the glaring conflicts of interest at the Interagency Pain Research Coordinating Committee, convened as part of the Affordable Health Care Act3 to improve pain-related treatment strategies.
3060903 tn?1398568723 Conflicts of Interest Color Pain Treatment In February, Senator Ron Wyden (D-OR) wrote a letter to Sylvia Burwell, the head of the Department of Health and Human Services (HHS), about the glaring conflicts of interest at the Interagency Pain Research Coordinating Committee, convened as part of the Affordable Health Care Act3 to improve pain-related treatment strategies.
Avatar f tn My first thought was MS, but I did a little more research about fibromyalgia and found that this has happened to other patients, sometimes as a reaction to Flexeril. Other patients said they coordinated falling with extreme episodes of brain fog. There were other suggestions of atonic seizure aka "drop attack". But I persisted in begging her to have her doctors test her FREEs for hypothyroidism. Today she sent me her labs, which were done on October 15th.
Avatar f tn Infectious Mycoplasmas are a contributing factor/give all the symptoms of a AI illness. So does Lymes. And research why Lymes tests through standard labs are worthless. Research IGENEX labs and Lyme and coinfection tests.
Avatar f tn Ha, looks like the robo-speller patrolling our humble site takes offense and blocks much of the last word of the name of the Texas Lyme Disease Association when, as I had typed it above, its last word 'Association' is abbreviated to A***'n, in order to avoid the appearance of a VULGAR word replacing the five letters "ociatio" -- ! Who knew that robospellers are so touchy! That gave me a laugh!
Avatar f tn but i do thank you you for taking the time, i have bought a few books that are accepted by the National Fibromyalgia association...but LOL! have also noticed since buying these books that i need glasses thats next on my agenda, to be able to see, lol! but i will definately check out the author you recommended.