Narcolepsy update

Common Questions and Answers about Narcolepsy update

narcolepsy

Avatar f tn Do you think you have narcolepsy? I wonder where your doctor got this idea. Narcolepsy is really interesting but can be dangerous. I have an uncle who has narcolepsy. He has had episodes that were kind of funny at the time, but when you think about it, it can get you hurt. How is the Provigil working for you? My neuro is willing to start me on it too to see if it helps with the fatigue. Fatigue is so challenging. It affects everything.
Avatar n tn I finally went in for a sleep study and was diagnosed with narcolepsy! Narcolepsy is really rare, but at least a sleep study will rule out or confirm narcolepsy, sleep apnea, restless leg syndrome, and probably other conditions as well. Good luck!
Avatar f tn Well I checked back in with the genius neuro that dx me with narcolepsy & cataplexy. Today was the scheduled EMG of my legs. The EMG of my legs was normal. That is good. That means no obvious muscular or nerve disorder. And I used the time of the EMG testing to go through my long list of questions! The doc was impressed! (I had been scribbling notes on the back of evelopes. Now I have an excel file that I use to track my doctor appts.
Avatar f tn Even if nothing shows up during the study, then the narcolepsy can be ruled out and doctors can focus on other things. When it comes to illnesses, conditions, etc., our bodies are like layers of stuff. One layer has to be peeled back one at a time, then go onto the next layer. Hope you find some answers.
Avatar f tn I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
1287446 tn?1313947638 Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly.
Avatar f tn I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Avatar f tn Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
Avatar n tn The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy. Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
Avatar f tn You seem to be suffering with narcolepsy due to probably obstructive sleep apnea. Excessive daytime sleepiness, interferes with normal activities on a daily basis, whether or not a person with narcolepsy has sufficient sleep at night. You may have mental cloudiness, a lack of energy and concentration, memory lapses, a depressed mood, and/or extreme exhaustion, sudden loss of muscle tone that leads to feelings of weakness and a loss of voluntary muscle control.
Avatar f tn i was wondering if i should be tested for narcolepsy, or if diagnosed with narcolepsy would they prescribe me to something similar to adderrall? if this were the case, being tested would not matter much if they would give me the same medications anyways. I just dont want to be misdiagnosed and on the wrong medication for the rest of my life.
208141 tn?1229873260 My neurologist has sceduled for an eeg and evoked eye potentials tests this week. I will post an update if and when I get a diagnosis.
3184083 tn?1347402143 How long have u been using it?....could be once ur oxygen levels rise u may no longer have the narcolepsy like issues....
416668 tn?1241742794 I was diagnosed with narcolepsy a few months ago. Since then, I have tried Provigil, which worked at first then seemed to make me even more tired! I was also tried on ritalin which did the same thing. Now I have been taking dextroamphetamine for about 2-1/2 months. At first it gave me incredible migraines and tension in my neck and shoulders. My doctor thinks that my body has adjusted to the medication because I no longer have these symptoms.
431151 tn?1204124882 I don't necessarily think I have narcolepsy, but I dunno. I get pleanty of sleep at night, but it seems no matter how much or little sleep I get I am always tired during the day. Sometimes I even find myself waking up from a light nap (at work). When I do sleep, I seem to be aware of everything that is around me. I had my fiance (who gets home from work when Im asleep) do different things in the bedroom. He said i never woke up, but yet I know exactly everything he did.
535822 tn?1443976780 A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.
Avatar m tn Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study). Dr.
1745492 tn?1320198340 My husband was diagnosed with severe obstructive sleep apnea and narcolepsy about 5 years ago and the narcolepsy is under control with 200 mg of Provigil. He had hypnogogic hallucinations, body jerks when falling sleep, imaginary conversations with no one, talked in his sleep, fell asleep driving, talking and even in activities you'd never imagine a male would fall asleep. He appears to always have had it since about puberty but it got worse as his sleep apnea did.
Avatar n tn has anyone heard what vaccination is reportedly linked to narcolepsy? i saw a show yesterday about narcolepsy and they mentioned a vaccination was given to a 13 year old girl and 2 hours later she was experiencing cataplexly (a paralyzing catatonic state that is a symptom of narcolepsy) but they did not say which vaccination.
Avatar m tn and at the same time it should not be happening. i do have narcolepsy and the reason i add this is because i know this in itself has a lot of symptoms ie cataplexy sleep paralysis.
Avatar f tn This is the symptom of a sleep disorder called Narcolepsy. This sleep disorder is characterized by excessive day time sleepiness, sleep paralysis, cataplexy where the person has episodes of loss of muscle function while awake, hypnogogic hallucinations and automatic behavior. You will need to consult your primary care physician, who may schedule you for a polysomnogram (sleep test) to rule out sleep disorders and initiate appropriate therapy. Hope this helped and do keep us posted.
729135 tn?1247495402 Regarding genetic testing for narcolepsy, positive test results indicate a susceptibility to narcolepsy but do not definatively diagnose narcolepsy. Positive genetic tests results are used to support a clinical diagnosis of narcolepsy. We recommend that you speak with your doctor regarding your symptoms and test results as well as to discuss the most appropriate course of treatment for your specific situation. We wish you the best.
Avatar f tn I was reading up about it and this lead me to read about Narcolepsy as Cataplexy is a unique symptom to this condition. I read about the symptoms and I am now afraid that I may be suffering from it. I have very vivid and sometimes lucid dreams and I wake up almost every hour of the night for short spans of time. Sometimes I cannot tell my dreams from reality and I often hear noises and see things during the night that aren't really there.
Avatar f tn Narcolepsy, how to find the severity of this sleep disorder? I am helping my friend with his disability claim. He has PTSD also and is not able to discuss the Narolepsy with doctors or me or anyone. How can I show the severity of his Narcolepsy. He goes out of way to look normal everytime he has an evaluation for mental stability. He has sleep Apnea #12 CPAP nightly. He is not able to tolerate the Narcolepsy medication. throat clossed, tongue swale, stomach blew up, stayed in toilet.