narcolepsy in childhood

by taking a very detailed history all the way back into my early childhood, they were able to determine that I had the narcolepsy BEFORE I had POTS, but the cataplexy only showed up when I started having syncope. It seems that for me, the syncope triggers the cataplexy most of the time; it almost never happens without me fainting first.

A new review published in the journal Public Library of Science ONE confirms that Pandemrix, a swine flu vaccine produced by drug giant GlaxoSmithKline (GSK), is responsible for causing an up to 1700 percent increase in narcolepsy among children and teenagers under 17 years of age. Based on their findings, a cohort of scientists has determined that narcolepsy rates increased significantly following mass vaccination campaigns with Pandemrix.

This isn't true. I have Narcolepsy that is controlled by medication. & I am a very skilled Surgical Technologist assisting in surgical procedures & managing a department. I perform my job very well & always receive Outstanding performance reviews. Do not let Narcolepsy control your life. You should be able to do what you want. At times yes I have to go back to my Nurologist & have my medications adjusted but my doctor knows what I do for a living.

Have you tried to see a neurologist who specializes in sleep medicine? That would be my recommendation. I have a different type of movement disorder during sleep, so I understand how frustrating these problems can be. Mine is secondary to a condition called narcolepsy, which affects the body's ability to control sleep and wake. Your English is excellent. No worries. I found some more information here: http://www.medlink.com/medlinkcontent.

I have this same problem, it's so weird! If I laugh in class or at work, I can't hold my pen to write anymore. It only lasts a few minutes, at the most 15 minutes. And it's only in my right hand, my left hand is totally fine. I found some articles talking about this type of symptom occurring in people with narcolepsy and/or cataplexy, but I don't have either of those problems- just the hand. I hope it's not progressive! Yours never got any worse did it?

I would describe the pain as deep (feels like it is in the bone), sharp/stabbing (Severity a 7-9 on a scale of 10 - where 10 is excruciating pain) and short in duration (lasts 3-10 seconds). It occurs frequently throughout my day and randomly in different places on my body (i.e. ribs, shoulder, upper and lower arms, fingers, upper and lower legs and sometimes my head). I'm also always fatigued, sleepy and low energy, but I keep myself moving and motivated.

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symptoms disappeared with some quality sleep over time. A diagnosis of narcolepsy can radically affect your life in regards to driving license rights and insurability. I wouldn't accept that label until there's nothing else to do to help your symptoms. Then after that, it is what it is.

I was diagnosed with CFIDS in 1994. Narcolepsy in 2005. I get basically no stage 4 or Rem sleep at night. Its no wonder why our mind and muscles can't heal themselves. I can go into almost instant dreaming during day (MSLT naps). I haven't been able to get anyone to help me figure out how to correct my sleep cycle. If you get any ideas, let me know. (I am on meds to help sleep and keep me awake at the right times, but it hasn't helped the sleep cycles.

Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.

Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly.

It recorded I had zero leg movements, but I kept popping off the leads on my legs from moving them. Venting aside, what is the path I must follow to get the underlying cause answered? Since childhood I have many symptoms of Narcolepsy and other sleep Disorders. My AVNRT (130 and 180 heart rate, two Re-Entrants) was ablated in 2000. November 9, 2008 my high heart rate of 130 returned at night.

I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?

Diagnosis is relatively easy when all the symptoms of narcolepsy are present.Two tests that are commonly used in diagnosing narcolepsy are the polysomnogram and the multiple sleep latency test which are usually performed by a sleep specialist. The drowsiness is normally treated using amphetamine-like stimulants.

There are sleep disorders such as Narcolepsy which is a condition that can develop in childhood or adolescent, and one can feel very tired, sleepy, cannot concentrate, and many other symptoms. Sleep apnea is when you stop breathing at night due to an obstruction while sleeping. A sleep study can help to figure out what's really going on. I hope this helps!

Take a look at this forum. You might have the same symptoms as many of these people and there are a couple suggestions. I found it interesting to know others had the same sensations and all around the same age. I was 17 or 18 when mine started. Still not sure what it is but have much better idea about possibilities I never even considered which is great since it's gotten much worse in short time.

I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?

Your history is suggestive of narcolepsy. In this condition there will be excessive daytime sleepiness. But in your case it seems milder form of it. In this condition there will be “automatic behavior" such as driving past a highway exit or go into sleep or writing off a page, with no memory of the previous few minutes. Classical narcolepsy constitutes of Hypnagogic hallucinations, Sleep paralysis and Cataplexy which is not seen in your case.

Yes, narcolepsy can result in disturbed nighttime sleep. Narcolepsy can only be diagnosed with a multiple sleep latency test during the day (usually preceded by an all night sleep study). Dr.

First of all, I'm sorry the doctor who ordered your testing didn't go more in depth in explaining the results to you. The information I'm going to give you here is based strictly upon the diagnostic criteria for different conditions; doctors use a combination of test results and diagnostic guidelines AND clinical expertise to reach diagnosis and treatment decisions, so there is no guarantee that this information pertains to your case in particular.

My medical records from that time have been destroyed so I have no way of knowing if this coincided with a vaccination. Narcolepsy typically occurs in the early teens. I have lived with it for 46 years. I too, am curious if this condition was induced by a vaccine. I wasn't diagnosed until I was 44 years old. Prior to that my condition was dismissed. I was regarded by the medical profession as a typical hystrionic, hypocondriac, attention seeking female. Now, there is medication available.

My husband was diagnosed with severe obstructive sleep apnea and narcolepsy about 5 years ago and the narcolepsy is under control with 200 mg of Provigil. He had hypnogogic hallucinations, body jerks when falling sleep, imaginary conversations with no one, talked in his sleep, fell asleep driving, talking and even in activities you'd never imagine a male would fall asleep. He appears to always have had it since about puberty but it got worse as his sleep apnea did.

and at the same time it should not be happening. i do have narcolepsy and the reason i add this is because i know this in itself has a lot of symptoms ie cataplexy sleep paralysis.

Over the last year I have had a serious problem waking up in the morning. I can sit the alarm clock beside me and have even tried sitting it across the room so I would have to get up out of bed to shut it off. The problem is I don't hear it. The alarm goes off for hours before I even hear it. I have even tried going to bed at the same time every night and still nothing has changed. People have tried to yell at me and shake me awake and I still don't wake up.

Narcolepsy in childhood

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