I was diagnosed with severe narcolepsy last year and this year with temperol lobe seizures. I am on provigil 400 mgs a day and Ritalin as needed. I am trying to take lamictal just 25 to start increase to 200, but having some problems, may switch me to Keppra I have digestive upsets after some seizures, but recently I blanked out and when I came to, I had written odd things all over the papers I was grading. I then, no way to make this sound pretty, had a bowel movement in my pants.
and at the same time it should not be happening. i do have narcolepsy and the reason i add this is because i know this in itself has a lot of symptoms ie cataplexy sleep paralysis.
t been doing so well, having a hard time dealing with things... but, I was just wondering, if narcolepsy is a common thing with Chiari 1, or if any of you happen to have it? I have tried to do some googling on it but, I haven't found too much on it.. most everything I found is on apnea.
Besides these relatively common problems, there are more than a few case reports of some unusual or rare sleep disorders in MS. These include secondary narcolepsy and central sleep apnea (“Ondine’s curse”- a failure to breathe during sleep).
Hello. My 11 year old son was diagnosed at 8 with TS. A couple of months ago, he started to collapse. There would be nothing that would trigger or warn of this collapse. You would just turn around and he would be on the ground. He would often be out for 1 to 4 minutes. When he came to, he would yawn, stretch and immediately go back to whatever he was doing. He is now experiencing 10 to 20 of these episodes a day.
What you suffer from is probably narcolepsy, which is a neurological disorder. This is thought to be caused by low protein called hypocretin, which is made in the brain. The symptoms are an urge to sleep especially after meals. Sleep studies and EEG are done to rule out other causes of poor sleep and insomnia. Eating light and frequent meals during the day helps. Also assigning a nap time during the day often helps. You can take a light meal before this.
One of these spells happened during a recent EEG. Immediately as it happened I told the tech this is what I was talking about. The neurologist said i fell asleep.
1. Could I have become toxic on generic Dilantin causing these problems? I am now on a lower dose of name brand.
2. Could estrogen level or Vitamin D level have affected what happened?
3. Should I consider changing meds?
What you suffer from is probably narcolepsy, which is a neurological disorder. This is thought to be caused by low protein called hypocretin, which is made in the brain. The symptoms are an urge to sleep especially after meals. If the symptoms are not very prominent then you may just feel fatigue and a need to lie down. Sleep studies and EEG are done to rule out other causes of poor sleep and insomnia. Eating light and frequent meals during the day helps.
When Somebody alerted getting back to normal and sometimes not. But this is not narcolepsy as he having NO SLEEP when no study at morning or physical work. Also during studies Pain @ neck area due to stiffness and may be neck tension or stress. These all making him unable to study and prosper well. Having memory loss to some extent of studied material. These all symptoms from last 12 years.
The problem shown to NIMHANS in Bangalore, India (Big neurological institute).
Been through every test(mri, catscan, mra, ekg,eeg,emg, etc.) including a sleep test which said my REMs were normal, but I fell asleep in less then 3 minutes each time( during the nap phase) and had no idea how long I slept...so narcolepsy was ruled out. But they told me to take my regular sleep aide before I went to bed that night andthen was told it could have screwed up my REMS.
I am photosensitive, although high-pitched sounds can also cause seizures. I also have narcolepsy. I take tegretol and provigil. I took dexedrine for over 20 years. Two years ago I was told I have a 'progresive degenerative brain disorder'. My brain was atrophying. I was almost always confused. Did things like turn on the water in the kitchen and go shopping for 5 hours. Stuff like that.
He also has a prroblem when he gets really scared he falls like a fainting goat. He had an ekg and eeg which seem to be fine. The only thing was his blood, he had high bilirubin and high iron. They checked him for hemochromtosis but that was fine. The funny thing is when he is not fasing his numbers are fine. I think he has gilbert symdrome. He has a sleep study coming up. I was just wondering what your opinion was. I myself have fibromyalgia and really worry about him.
I am diagnosis with narcolepsy and have had symptoms for 5 years now. I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere. I have sleep studies twice a year and it seems to get worse each time. Its very aggravating to me! It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what? Anyone have any suggestions?
I have Narcolepsy- My vitamin B 12 level is 235- should it be higher for my condition?
Although the pt has RLS and PLMS, the arousal associated with these do not likely explain EDS- given a short overall sleep and REM latency, consider narcolepsy clinically. I had 156 arousals, 110 spontaneous, the rest due to limb movement. I also spent most of my sleep time in sleep stages 1 and 2, whith REM episodes scattered randomly. I had no time in stage 3, and when I had REM sleep it was from wake to REM with no progression through the other cycles.
The combination of this study and my first MSLT nap study produced a perfect pattern for diagnosis of Narcolepsy.
Has there ever been a study to look at the coorelation between the 2 diseases. Would many CFS sufferers be classified narcoleptic if they took the appropriate test? Narcolepsy leads back to hippothalmus and lack of production of hypocretin/orexin(?). Seems like all things lead to hippothalmus. Thank you!
EKG, EMG, Muscle biopsy, EEG, TEE, ALL Blood work, CAT SCAN of the brain, MRI of the brain, MRA of the torso and in to my head. All artieries checked. They thought I had Periodic Paralysis disorder, biopsy neg. Have thought I had Narcolepsy with Cat. which I still believe is an option because of sleep issues since I was 12 including the nightmares and sleep paralysis, but my sleep study say I am extrmely tired but REM is normal.
However, if you are really concerned, you should think about having an EEG done, and you may even be recommended for a sleep study. There is the slightest posibility that you may have a type of epilepsy which only manifests in sleep, and it would be a good idea to either rule it out or see if it is present and needs treatment. Many people with nightime epilepsy never have fits during waking hours, so don't worry.
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