I am having a lot of anxiety for my upcoming appointments to get off of this medicine that has COMPLETELY taken over my life- I just kind of want to talk or get some input as to what to expect. My biggest fear is that the addiction specialist / internist is not knowledgeable with this class of drug (barbituates) - but she must, right?!!!!!! Just myself being pessimistic. I know I'm doing the right thing! My health is highly being jeopardized as well as having a LIFE!
He had been treated for epilepsy for 3 years without any control, and actually started having gran mal seizures while taking epilectic med Keppra I requested a cardiac work-up due to these gran mals occuring immediatly after exercise. He also had a hx of migraines after exercise, but these had subsided about the time I noticed these Absence seizure like activity. The cardiologist right away said he thought it was NCS, poss with a seizure disorder too.
I now have a VNS (vagus nerve stimulator) implant in my chest that sends electrical shocks to my brain along with 2 anti-seizure meds (sometime 3) and I still have seizures. For the last 2 years I have also had severe migraines that have sometimes last for weeks. I now also have a Neurologist that specializes in Migraines and headache disorders.Having 2 different Neurologist seems pretty redundant to me especially since neither can seem to find the problem.
I have no health insurance. I was finally got a really basic coverage, but it doesn't cover keppra. i've been taking keppra for a 2 months. I was switched to phenobarbitol for when I run out. since keppra is not on the charity's formulary.
I hope to God that I cant find some source of keppra before I run out. The phenobarb is scary.
So I'm excited about the links here:
http://brain.hastypastry.net/forums/index.php
http://www.needymeds.
I am, and have been on Keppra for almost 5 years. Started at age 23 and I am now 28. At the beginning they made me very sluggish, but after about 2 months I felt wonderful (since it was the first time in my life I wasn't having seizures!!)
I have noticed the following: quick to get angry, short tempered, excessive crying, like to focus on negative conversations rather than the positive, I complain a lot, and I take it out on the ones I love most.
I'm having a few of the same problems. I can take the magnesium, though, because I have IBS-C, so the magnesium helps with that. I'm still having many of the same symtpoms as you are. I would like to be able to offer you more help, but I can't right now, because I'm still looking for the right solution for my silent migraines. I have some that aren't silent migraines, but I mostly have silent migraines. It's a little bit scary, too.
Continued with Keppra and Di Tan Tang 2X/day each for another 8 days. Then took her Keppra down to 1/day for 2 weeks. Then she went one day with no Keppra and the next day she had a seizure. This seizure was longer, but her disorientation was shorter. Vet then said to go back to giving her Keppra for 30 days and we will re-evaluate. So for the next 30 days she was taking Keppra 1/day and Di Tan Tang 2/day.
I have been treated for tension headaches and migraines since 2009. I was diagnosed with JME when I was 13. I'm currently on 150 topamax and 500 lamictal for seizures. I have tried antimigraines, analgesics, muscle relaxants, nonsteroidal-anti-inflammatory and steroids, ssnri antidepressants and obviously acetaminophen and aspirin for headaches . I have one every single day but the severity of it varies. Within the past few days I have noticed slight shaking and weakness in my hands.
I have had these problems for 20 some years due to brain damage and keppra has not made it worse or changed anything for me though. I am on a high dose and on other seizure meds. You may want to see about a mood stabilizer for her I know she is young it may or may not work. If it is the med maybe switch meds no one needs to feel that way and I know from experience it's not fun not being yourself and putting others through it.
Ask your doctor about Topomax. It's not only used to prevent seizures, but it also is used for treating migraines. It's also used for weight loss. The drawback? It can make you pretty spacey.
I took Keppra for 3 weeks & it made me very sick. I should have told my Dr. that I was sick immediately. It has been 3 weeks 3 days since I stopped & I'm still nauseated & having chest pains. My Dr. said I should have stopped immediately. Now I am suppose to take Oxcarbazepine. I'm scared.
Good luck with keppra. I hope yur son tolerates it better than I did.
No matter how small or large the amount. At first I thought this a side effect of the anticonvulsant I take (Keppra) -- the instructions say to avoid alcohol because very serious interactions can occur, although they never specify what those interactions are.
A couple medical professionals I talked to about it said that it's because Keppra increases the level of enzymes present in my liver, thereby speeding up my liver's metabolic rate.
It started with a severe bout of nystagmus that I went to the Dr. for. I was sent for an MRI because of my history of migraines and it was a new doctor. The MRI identified more than 30 non enhancing subcortical and deep periventricular white matter hyperintensities within each cerebral hemisphere. There were greater than nine T2 hyperintense lesions located in both a juxtacortical and periventricular locations.
He always got headaches in the car and a few times needed to go to the ER for pain relief...they said they were not migraines’ and Cat Scans and MRI was always normal. At age 15 ½ he was coming off a sinus infection/antibiotics, when he had his first Gran Mal seizure after sleeping all night in a closed off bedroom with a new guitar case that was off gassing high levels of the neurotoxin, 1 methyl naphthalene. (Smelled like mothballs) They suspect it was the resin in the foam lining.
I find that I get migraines a week before my periods and the first few days. Stress, emotion and lack of sleep triggers migraines and seizures. Since I was put on keppra and tegretol 2003 I don't have so much seizures anymore. I also fell pregnant which I had less seizures and migraines. My girl has turned out fine. I could not ask any better because it took the depression away.
I hope you get better.
Also, I wanted to know if anyone has tried Keppra for seizure activity in dogs and if so, how did that work? Our 6 year old French Mastiff had a seizure on Thursday night - first one ever. He walked across our bedroom floor, stood in front of our open door and acted like he saw someone in the hallway. I sat up and said "Archie, there is no-one there. Go back to bed." Then he looked like he was rubbing his shoulder on the clothes hamper and I thought it looked really weird.
I suffered with depression for 11 years and came of the medicine fully just before I went on Keppra, and yes I have days where I do feel depressed but with any illness you do have days where you feel depressed even suicidal. So my advice is don't necessarily put it down to Keppra. Talk to the doctor who prescribed Keppra to you and see if you can be referred to a Psychiatrist to talk it through and find out if it is the tablets!
Hope this helps and stay focused.
Then I did the Chiari decompression, the laminectomy and a Occipital Neurectomy on the left and right. For two years I was pretty pain free, then for two more I was starting to get a bad migraine one to two a year, still pretty great.
Then 2008. I started getting daily headaches and one to two bad monthly migraines the first status migrainous was in November 3 weeks. Then starting March 11 I got this one and it has yet to let up.
I'm 39 yr old female. Recently had 1st tonic-clonic seizure. I have had migraines for years w/previous "clear" MRI done. MRI Summary of findings after seizure:
"Cluster of small left choroidal fissure cysts which demonstrate slight mass effect with flattening of the superior margin of the hippocampal body. Suggestion of small amount of gliosis of the superiorly adjacent parenchyma.
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