Hello I have been taking Keppra for migraines. It doesn't seem to be helping much and I don't want to put up with the side effects. In my research I see that people take it mainly for seizures and taper off of it very slowly due to the risk of their seizures returning. My question is since I don't have seizures and was taking it for migraines is there any need to taper? Thanks for any info!
lethargic--(the seizures were less frequent--went to every couple weeks but I could not function at all on the meds) the dose was lowered and Keppra added--I still got too strange to function at times ( I also took Flexerol) some when the neck pain would get so severe with the headeaches) and then I went almost 5 months without a seizure----the headaches still happened, but not as often and generally not as severe.
hi i really dnt have a answer to that?
SHE USE TO HAVE BAD MIGRAINES WHEN SHE TOOK DEPAKOTE AND NOW SINCE TAKING KEPPRA XR, SHE HAS NO MIGRAINES...ALSO, SHE HAD GAINED ALOT OF WEIGHT ON DEPAKOTE XR, KIDS MADE FUN OF HER THAT SHE WAS FAT...NOW, ON KEPPRA XR, SHE ONLY EATS HALF OF WHAT SHE DID ON DEPAKOTE AND IS A SLENDER 5'11 TEENAGE GIRL.
I find that I get migraines a week before my periods and the first few days. Stress, emotion and lack of sleep triggers migraines and seizures. Since I was put on keppra and tegretol 2003 I don't have so much seizures anymore. I also fell pregnant which I had less seizures and migraines. My girl has turned out fine. I could not ask any better because it took the depression away.
I hope you get better.
I have been treated for tension headaches and migraines since 2009. I was diagnosed with JME when I was 13. I'm currently on 150 topamax and 500 lamictal for seizures. I have tried antimigraines, analgesics, muscle relaxants, nonsteroidal-anti-inflammatory and steroids, ssnri antidepressants and obviously acetaminophen and aspirin for headaches . I have one every single day but the severity of it varies. Within the past few days I have noticed slight shaking and weakness in my hands.
He always got headaches in the car and a few times needed to go to the ER for pain relief...they said they were not migraines’ and Cat Scans and MRI was always normal. At age 15 ½ he was coming off a sinus infection/antibiotics, when he had his first Gran Mal seizure after sleeping all night in a closed off bedroom with a new guitar case that was off gassing high levels of the neurotoxin, 1 methyl naphthalene. (Smelled like mothballs) They suspect it was the resin in the foam lining.
The neurologist should star you on Clonidine to help with sedation and Topomax to avoid seizures and recurrence of migraines. You can also take an over the counter chelated magnesium that has been found helpful for migraines. I want you to make sure that you have a back up plan for dealing with your problems.
I have had intermittent neurological symptoms and what appeared to be exacerbations but they have never found any new or enhanced lesions. My neuro and I have when back and forth on the possibility of a misdiagnosis of MS and going off my Copaxone. In August I had several “seizures” that were a couple of minutes apart that only lasted 10-30 seconds when I was coming out of anesthesia. The EEG done the next day indicated seizure activity primarily in the left frontal/temporal area.
I now have a VNS (vagus nerve stimulator) implant in my chest that sends electrical shocks to my brain along with 2 anti-seizure meds (sometime 3) and I still have seizures. For the last 2 years I have also had severe migraines that have sometimes last for weeks. I now also have a Neurologist that specializes in Migraines and headache disorders.Having 2 different Neurologist seems pretty redundant to me especially since neither can seem to find the problem.
My daughter is now experiencing several side effects to keppra. She is extremely drowsy, very short tempered, depressed, and is reporting to me that her memory is 'foggy'. She's on a very low dose of keppra, only 250 mg at night and 125 mg in the morning. She's been on it a total of 3 weeks now. I've been with her and she seems to be very melancholy and also short fused over the many situations. She weighs 100 pounds and is 20 years old.
They said they believed it was eithier silent migraines or possibly seizures. I have been on topamax and that made teh symptoms worse. I have tried mag ox and I cannot take it due to having irritable bowel syndrome. They have changed one of my bp meds to verapamil to help prevent migraines. They also tried seroquel which kept me tired all the time to the point it was hard to function. I am now on 1500mg of keppra xr twice daily. The keppra has helped lighten some of the symptoms.
They are like a partial complex seizure. I saw a neurologist and was started on Keppra. I was up to 2,500mg a day and they were not stopping. I began to track them carefully and I believe I saw a pattern of only during the 2nd half of my monthly cycle, days 15 - 28 (and usually between 18 and 21) My neurologist decided to put me in the hospital to do a video EEG monitoring and I told him the dates it needed to be. We hit it right and it was determined that my seizures are NES.
Anyone else on Keppra to prevent myoclonic jerks (JME diagnosed)? I am, and have been on Keppra for almost 5 years. Started at age 23 and I am now 28. At the beginning they made me very sluggish, but after about 2 months I felt wonderful (since it was the first time in my life I wasn't having seizures!!
I am currently on Keppra and Topiramate and have just been told my latest tests are showing major kidney damage from the topiramate. I have been on these two meds since 2002. I have to admit, reading all this is very scary. NO Other Meds have worked to control my seizures ! PERIOD!! Plus I have severe Migraines and Short term memory is almost gone in a matter of seconds. What is a girl to do?
Signed....
Tami....
After a very frightening last 2 weeks of my boyfriend on Keppra my doctor did say to ween him off which I've done. Today is the first day off it and he still seems to have the dillusional aggressive side effects that I am hopeful after reading your post.....I pray to god that the old person before this drug comes back. How was those last few weeks for your son?
Was on lamicatal er when shaking started on right side of body but had a allergic reaction to it..
I to have been taking Keppra and told can't drive for six months, yesterday my Oncologist informed me that only a Neurologist can authorize driving and I will need to probably get off keppra to get permission to drive. Was also informed that you can not just stop this drug.
So after staying overnight and at the vet the next day he came home and has been on Keppra and phenobarbital. 500mg 2x a day Keppra and 60mg 2x a day pheno. He has the side effects which are lessening but hasn't been as bad as I read could be. He is very responsive and is pretty much himself besides the side effects(weak legs, tired). It's been 6 days and no seizures so far. Will be going to vet in a week for check up and blood test again. I am so on edge..
I then weaned off the Depakote and went on to 1500 mg of Keppra and 100 Mg of Seraquel and went off of the Trazadone as Dr. Aurora said Trazadone causes headaches. She also said try EMDR therapy. We did 2 Keppra infusions and it brought my headache twice down from a 10 to a 6. Then I still went back up to a 10 and I was told to go to the ER by the Swedish clinic. I went to the Swedish ER. They gave me a Keppra infusion, Benadryl, and Toradol.
I have no health insurance. I was finally got a really basic coverage, but it doesn't cover keppra. i've been taking keppra for a 2 months. I was switched to phenobarbitol for when I run out. since keppra is not on the charity's formulary.
I hope to God that I cant find some source of keppra before I run out. The phenobarb is scary.
So I'm excited about the links here:
http://brain.hastypastry.net/forums/index.php
http://www.needymeds.
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