I have tonic-clonic seizures, and absence seizures generally. I have headaches that cause blurry vision. I see these color blobs that move in my vision that shouldn’t be there, they don’t show any connection to stimuli so I don’t have synesthesia. I’m on levetiracetam aka keppra and clobazam aka onfi.
04/12 changed him to Dilatan and keppra more seizures. 05/12 put back on keppra only 3,500 mg. 06/12 seizures moved to keppra 4,000 mg a day! He has had only 1 seizures since been on 4,000, but this is a very high dosage. He is going to see an seizures specialist. Hoping he can get this dosage down.
My daughter started having seizures at 4 months....she basically starts to jerk on one side of her body and her eyes just stare off with one eyelid flutering. she is now 9 months and has had 4 seizures. they have her on Keppra but don't know what is causing the seizures.....How did they find out your childs diagnoses?
He had been treated for epilepsy for 3 years without any control, and actually started having gran mal seizures while taking epilectic med Keppra I requested a cardiac work-up due to these gran mals occuring immediatly after exercise. He also had a hx of migraines after exercise, but these had subsided about the time I noticed these Absence seizure like activity. The cardiologist right away said he thought it was NCS, poss with a seizure disorder too.
during one of these, he was conscious and able to write, but unable to speak and with labored, loud breathing. We realized that he had also had some barely detectable absence seizures prior to this also. Dr. is unable to make a differential diagnosis between Juvenile myoclonic epilepsy and generalized seizures upon awakening. 4 of his seizures occurred in the morning and 2 in the afternoon - 1 while relaxing and one while playing basketball. He has been seizure-free for 3 yrs. on Depakote ER.
How much Keppra do you take, and how long did it take before you seizures completely stopped?
Thank you for reading!
I am, and have been on Keppra for almost 5 years. Started at age 23 and I am now 28. At the beginning they made me very sluggish, but after about 2 months I felt wonderful (since it was the first time in my life I wasn't having seizures!!)
I have noticed the following: quick to get angry, short tempered, excessive crying, like to focus on negative conversations rather than the positive, I complain a lot, and I take it out on the ones I love most.
side effects of Keppra seem to contradict what our goals for mom are....memory loss, mood changes, mental changes and vision changes among others.
Is Keppra safe to use for this (it is not being used with any other seizure medication....just by itself)?
We want to wean her off, but the doctor is wanting to keep her on it.
Continued with Keppra and Di Tan Tang 2X/day each for another 8 days. Then took her Keppra down to 1/day for 2 weeks. Then she went one day with no Keppra and the next day she had a seizure. This seizure was longer, but her disorientation was shorter. Vet then said to go back to giving her Keppra for 30 days and we will re-evaluate. So for the next 30 days she was taking Keppra 1/day and Di Tan Tang 2/day.
My daughter became a new Person when she started Keppra. She was having Seizures every hour for over 6 months. She had no good babyhood/childhood. She suffered a lot because she wasn't diagnosed and treated until she turned 3 years old. We didn't know she was having seizures. I thought it was reflux problems. But NO they were seizures.
She started talking and living when she started Keppra. She was very slow. She wasn't doing the things a 2 year old is suppose to do at that age.
My son, 14, had a stroke in utero. Had absence seizures at birth - phenobarbital for first 6 months; weened off with no problems thereafter. Fast-forward to age 12: complained about eyes twitching; eeg showed a little unusual spiking but neurologist didn't feel medication was necessary. Age 14: absence seizures increasing due to stress. I saw him from a distance where his head went up, twitched and eyes fluttered for about 3-4 seconds.
The only times the seizures would happen was when I woke up suddenly, in the morning. The medication I was given is levitiractam (keppra) 500mg twice a day, which i have been taking for about two years, My questions are:
how does keppra help against seizures?
What does it mean to suddenly be diagnosed with seizures?(even though the MRI and EGG and other tests show normal)
Sometimes when i am walking to school i feel dizzy even though i take my medication. Why is that?
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