The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron. It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me.
My husband is insisting it is cuz I am not taking my shots. I don't see how that can be. We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs.
I have been taking Betaseron for over 14 years, with no substantial side effects. I was told I would have to switch over to Extavia after the first of the year. ???????????
I have a couple problems with the Extavia, One being it looks to me that Extavia may be trying to save some money ,[[ At the patients expense ] one--a possible cheaper syringe???
Okay, first of all, both of these drugs are interferons. That means that it modulates the immune system response to reduce the number of relapses. Both drugs are sub-cutaneous injectables, which means an injection every other day with a very small needle. (This may sound terrible, but it's not so bad. The injection is painless.)
I've recently become disenchanted with interferons in general, especially Betaseron.
I've been on Betaseron since a year after I was diagnosed in 2000. On August 20th, I quit taking Betaseron cold turkey when I finally received my new oral medication Tecfidera. For the last few days I have been dealing with horrible body aches, diarrhea, cold sweats & the inability to eat (not feeling sick, just not being hungry or interested in eating). I do not have a fever, a cough, allergies or anything else I can conclude to be at fault for these annoying symptoms.
I will try to answer your questions.
> Fingolimod isn't yet approved all over the world? so it cant be prescribed in hospitals yet? big chance i cant find in Australia and carry on with my betaseron injections.
Fingolimod is currently not available anywhere outside of clinical trials. I know they did large phase 3 trials and that they had trouble recruiting enough people. I don't know if they're still recruiting.
I started it in July of this year after giving Betaseron a try. My life became a living h*ll on Betaseron. It was definitely not the drug for me. My doctor went over all of my options, but at that point trying another shot was not going to happen. Ty I would never even consider since I have children to raise.
Anyway, I knew going into the appt that I wanted to try LDN and was prepared for a fight to get an RX for it.
I have been on Betaseron since 1995. I have not had an attack since I started using the Betaseron. 3 1/2 year ago I slipped on the stairs and landed hard on my tailbone. A pain shot up through my back and gave me a terrible headache. Over the next few days, my leg started going numb. Went to the doctor and he sent me for x-rays and gave me muscle relaxants. Nothing on the x-ray. Sent me to my neurologist. He examined me and said it was MS and had me take three courses of solumedrol.
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