betaseron history

When I had an allergic reaction to Copaxone after being on it for a couple of years I went on Betaseron. Now, for a couple of years, I've been having strange feelings with my heart - the fluttering associated with Afib, slight pressure, thudding beats I can feel, especially at night when I lie down to go to sleep. My doctor says to put up with it, but it scares me with the bad heart history in my family. Has anyone experienced this and what did you do?

I have been off of Betaseron for about 2 weeks now and my eyes are back to being very uncomfortable. Before I started Avonex eye pressure and pain was a huge problem. Now it is is starting again.

m not on betaseron, but am glad to hear you are making a change to see if you can find a combination to slow your MS. Getting the new MRI done on the stronger machine is so important for your baseline... it will give your new neuro a good view as to where you are coming from. And you're right, it might show where you have new damage that is causing your changes.

More importantly, I have pre-existing mild cancer that is kept mild by my immune system.

I too read in an article or publication on APS and MS. I've read that MS patients can have a low to medium positive result in the anticardiolipin IgG or IgM who are on beta-interferons.. It also stated a significant fraction of patients with true MS may have positive serology for IgG or IgM anticardiolipin antibody. My research has stated via Neurology books (googled them and you can get snippets of pages) that there are people with MS who have positive serology for IgG or M.

Hi all Just wanted to share how I am getting on with the Betaferon. First a bit of history: I was diagnosed with "mild" MS 15 years ago - (Good old UK neuros an their mild diagnoses!) Until 2 years ago I had only a few relapses is that time, and sensory symptoms that never really went away. Then early 2007 I started to get one relapse after another, about every couple months and mostly leaving me with sime residual effects.

I've been on Betaseron since a year after I was diagnosed in 2000. On August 20th, I quit taking Betaseron cold turkey when I finally received my new oral medication Tecfidera. For the last few days I have been dealing with horrible body aches, diarrhea, cold sweats & the inability to eat (not feeling sick, just not being hungry or interested in eating). I do not have a fever, a cough, allergies or anything else I can conclude to be at fault for these annoying symptoms.

My Neuro wants me to switch from Rebif to Betaseron. I have been taking Rebif since March 09 and have had to do one round of Solu Medrol in May and will find out tomorrow if I have to do another. I also have pretty bad injection site reactions which is why the Neuro wants the switch. I guess Rebif has acid in the injection and it makes the site reactions worse? My question is, I am under the impression that Betaseron is not pre mixed and also that there is not an auto injector?

I have gone from Rebif to Betaseron over this year cuz the Rebif caused really bad site reactions so I had to change. I have had 3 attacks since I started them. One was a couple weeks, one about 6 weeks and this last one has been since the first part of November and I am finally better this week. I am gonna stick with the Beta for another year and see what changes.

Sorry for your Copaxone troubles. So far, I haven't had major side effects from interferons (I'm on Betaseron) if that makes you feel any more optimistic. I'm only up to 1/2 dose right now because they're titrating me, 1/4 dose at a time. I've been through the first 2 weeks at 1/4 dose and am now on 1/2 and, other than a slight occasional headache (and who knows if that's attributable to the meds or not), I really haven't felt any different.

My Father was diagnosed with MS a few years back, but my step mother neglected to tell the Doctors of his history of drug abuse. I am just curious as to how it may have affected his diagnosis. Any resources available to help compare these are appreciated.

I have been taking Betaseron for over 14 years, with no substantial side effects. I was told I would have to switch over to Extavia after the first of the year. ??????????? I have a couple problems with the Extavia, One being it looks to me that Extavia may be trying to save some money ,[[ At the patients expense ] one--a possible cheaper syringe???

The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron. It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me. My husband is insisting it is cuz I am not taking my shots. I don't see how that can be. We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs.

He did warn me about the miscarage risk. The last visit, he said to get off Betaseron 1 month before ttc. The BetaPlus nurse said give it two months. My husband and I discussed this. The current plan is to get off the Betaseron at the end of next week. That would be 2 wks in to the last pack of bc pills. We are planning to use alternate methods of bc for the next cycle. That would put me off of Betaseron 8 wks prior to the hoped for conception, and off the bc pills for 6 wks.

I saw on your other post the mention that they want you to take Rebif instead. Be sure that your neuro is fine with that - they are both interferons and work the same way.

Pretty much said I wouldnt be sitting there looking like this if I had been on meds (not sure that that is entirley true only a 30% chance in my opinion) She gave me the option of another med covered by my health insurance which is Betaseron. Gave me the CD to watch and sent RX to pharmacy. Of course I come home and read all teh possible side effects and its making me want to do nothing now. I am so med paranoid (and Im a Nurse for Pete's sake!

Hard to answer your question without more information. Why do you have only those four choices? Avonex (which I’ve used for 11 years) and others are notably absent from your list. Avonex, Rebif, and Betaseron have been around longest and have the strongest safety profiles. If your MS is more aggressive, then you may be more inclined to consider Gilenya, Tecfidera, Aubagio, or Tysabri. All of the DMDs are discussed from a neutral perspective at the link below: http://www.nationalmssociety.

I have been on Betaseron since 1995. I have not had an attack since I started using the Betaseron. 3 1/2 year ago I slipped on the stairs and landed hard on my tailbone. A pain shot up through my back and gave me a terrible headache. Over the next few days, my leg started going numb. Went to the doctor and he sent me for x-rays and gave me muscle relaxants. Nothing on the x-ray. Sent me to my neurologist. He examined me and said it was MS and had me take three courses of solumedrol.

So the doc tells me I don't have a UTI. That's the good news. The bad news is that I'm still experiencing muscle spasms and spasticity on Betaseron. I thought this would go away when the fever resolved, but it hasn't. Who else on here is taking Betaseron (or some sort of interferon?) And if so, did you have problems with muscle stiffness, and did it resolve?

Please consult a neurologist who will diagnose the disease through a series of MRI, clinical examination and history. A lumbar puncture may be advised if necessary. Hope this helps you. Take care and regards!

I am going to be starting Betaseron soon. I have read up on it quite a bit, but am curious to know if any of you are currently taking this, have been on it, etc... and if so, what was it like for you? My biggest concern about this one is that everything I read warns of extreme depression. That is already a daily struggle for me, pretty bad. Sure hope I don't get worse with this medication. I hate getting in those ruts of depression. For me, it can last for months on end...

I started on Betaseron within a month of the diagnosis. I have symptoms from the old lesions but never had another clinical exacerbation. I stopped taking the Betaseron after 6 years (two months ago). Two more MRIs after diagnosis showed no new lesions. The second MRI (a year after diagnosis) looked like "classic M.S." (I was told by an M.S. specialist). The third MRI (last year) showed some of the lesions were smaller. Question: by whatever criteria is being used now, is this M.S.?

My Dr. wants me to start the new oral meds after the baby is born. I was on Betaseron for one year before we conceived. In that year, I had three relapses that required steroids. He said that ment that the Betaseron was not effective. One of the relapses really does not caount against the treatment because it was the 10th week of the treatment. I guess I am ok with trying the new meds. What do you all think? Would you try it? Do you think that it is a good idea?

The first thing he came up with was Novantrone, and after reading up on it I declined that due to a long history in the family of heart problems (mother, father, brother & sister died of congestive heart failure). He was not pleased with my decision and got very snarky so I have made an appointment with a new neuro. I've done some reading up on what is out there but could use some input on the "newer" stuff. Thanks a ton for listening.

I was just diagnosed last week and was given the option of which DMD I wanted to be on - I chose Betaseron. The insurance I am on does not carry it anymore and put me on Extavia (which is the same thing with a different name). I did ask the Nero which one she preffered and she said Avonex because it is just once a week but I didn't want the inter muscular needles (can't stand needles as it is).

He said that he believes in a higher dose - high frequency shot....either rebif or betaseron. His preference is betaseron....ultimately more meds being injected than Rebif, and much lower instances of injection site problems. The negative is slightly higher chance of antibodies being built up. The efficacy is about the same. So the MS specialist said Betaseron and we now have a box of the stuff sitting on our kitchen table. How did you end up with Rebif?

Betaseron history

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