Graves disease remission and recurrence
Common Questions and Answers about Graves disease remission and recurrence
graves-disease
d with Graves in March 2006. I have been on MMI(methimazole) for 2.8 yrs. I started off on 30 mgs. and went very very hypo right away. I have gained 38 pounds in 2.8 years and feel dreadful. When dx'd my TSI was 243 <129. My FT4 for was 1.86(.8-1.85) and FT3 was 2.60 <2.00. I really never had very high FT's. They have always stayed low but my TSH has been low forever. I think I have many blocking antibodies because of my TBII is 31% <16%.
I really thought I was losing my mind, I have had this for about 4 yrs and just now was diagnosed with Graves disease. My Dr put me on Methimazole and after 3 weeks had a severe reaction and was covered head to toe with a horrible insanely itchy rash. Mr Endo told me I have a couple options radio active iodine or somthing else which he did not tell me what. My question is how has the radio active iodine worked for others?
They have removed me off of my medicine one time to see if my Graves disease had went into remission and within two months it came back with TSH levels of 0.003...basically non-existant TSH levels. They put me back on my 10mg Methmazole and within 3 weeks my levels were normal. That is pretty much a health summary of my graves disease for the past five-six years lol.
I recently was diagnosed with hyperthyroidism and Graves Disease, although my blood test was negative. Four weeks ago I started on thyroid medicine. Looking for answers for this disease, I went to the book store and bought a book titled "Living Well with Graves Disease and Hyperthyroidism." In this book it mentions that aspartame can mock the same symptoms of Graves.
I have talked to my doctor, and had a chest and abdominal CT scan today and appointment with him on Tuesday to discuss what is next, treatment options and recurrence in general. It took 2 years to regrow my hair and regain my strength, and I just did not expect to be dealing with recurrence as my prognosis was 90% no recurrence. Recurrence seems to be a whole other ball game, with new rules and many different treatments.
This looks like possible recurrence (of Graves' hyper), but surprised the TSI is normal. Given symptoms, would re-test in 6-weeks to see trend and consider beta-blocker for high heart rate in the interim.
I ended up with two thyroid storms from graves/hyper, NOT fun at all. I did the RAI, but the graves/hyper was to far advanced for it to help me. I ended up having to have surgery anyway after the RAI.
My heart rate was 140 sitting down, my eyes bulged out, I was down to 88lbs despite eating non-stop. Trust me get it treated before it gets worse. Thyroid storms are not any fun...
But you can always get a second opinion from an endo if it puts your mind at ease.
I was recently diagnosed with Graves' Disease and Hyperthyrodism by a Naturopath. Here is what my blood results showed:
THS: 12.3
T3 39
T4 12.3
Free Thyroxine Index 4.8
When I had my THS tested last year, it was perfectly normal. I'm confused! Can anyone tell me what this means?
Recurrence of Hodgkin’s disease can happen any time after successful treatment. The treatment of recurrence is same and people often go into remission again. Apart from this neck lymphnodes can swell in infection of the mouth, ear, etc too. Since you are going for PET scan, things will be clear after that.
Hope this helps. Please let me know if there is any thing else and do keep me posted. Take care!
I was diagnosed with Graves disease 11 years ago. My endo prescribed Methimazole, which I was allergic to, so he told me he didn't want to prescribe me anything else because sometimes the allergy kills the thyroid. It apparently did, because all of a sudden I was hypo and I had to go on synthroid. Since then, I lost my health insurance and got handled by my PCP instead of the endo (cheaper).
Graves is an autoimmune disease. AI diseases are like roller coasters with highs and lows. Think of other AI diseases like rheumatoid arthritis, lupus, diabetes, etc.....they have times when they "flare" and times of "remission" where they are in active. It seems very plausible to me that you very right and probably are in remission -- just makes sense! But, the question is, like the other diseases, how long will it last? I hope a good long, long time!!! Congratulations!
Recommended
