Graves disease remission years
Common Questions and Answers about Graves disease remission years
graves-disease
I just went to a new doctor. I saw 2 doctors(endos) they said continue taking these meds and test in 6 weeks. They also agreed that my tests really don't fit Graves disease anymore. WHAT IS WRONG WITH ME? I had my cortisol tested in August and it was normal 17 after a fast. Maybe it's piuitary related. All I know is I don't feel well at all.
Thanks.
I really thought I was losing my mind, I have had this for about 4 yrs and just now was diagnosed with Graves disease. My Dr put me on Methimazole and after 3 weeks had a severe reaction and was covered head to toe with a horrible insanely itchy rash. Mr Endo told me I have a couple options radio active iodine or somthing else which he did not tell me what. My question is how has the radio active iodine worked for others?
Hi,
I have Graves Disease diagnosed first when I was 38 years old. I was in remission for 12 years after 2 years of meds. Then in remission second time for 5 years. Both times I took PTU. It seems that a major physical change in my body triggers it, which of course causes stress, another major trigger.
Last year I had chemo for ovarian cancer. Now it seems off again. Doctor is talking about me taking methimazole this time. Waiting for new test results.
Good luck.
I was diagnosed with Graves disease 11 years ago. My endo prescribed Methimazole, which I was allergic to, so he told me he didn't want to prescribe me anything else because sometimes the allergy kills the thyroid. It apparently did, because all of a sudden I was hypo and I had to go on synthroid. Since then, I lost my health insurance and got handled by my PCP instead of the endo (cheaper).
so to speak. Some ppl like myself have walked around with this disease 10+ years without the proper diagnosis. Also if you read the stats, the remission rate is in the 90's I believe. I have the antibodies but I've been in remission for the most part of this disorder. I just hate reading stories of how people's endo's are pushy and rush ppl into something.
Graves Disease is never cured BUT it is managed better without a thyroid or after RAI.
You still have the antibodies but no thyroid for it to attack.
As for meds, you swap one lot for another.
You go from anti-thyroid meds to a T4 medication so basically you are on meds for life.
The thyroid regulates every organ in your body and if no thyroid, meds have to do the job.
Hyperthyroidism is a lot easier to manage without a thyroid.
the author Elaine Moore, who wrote books on Graves says that normal people have no tsi or 2 percent, I think. Mine was 109 at diagnosis, even though the normal goes up to 125, that's bull! Some just don't feel symptoms till they reach that. I had an uptake scan too, which was normal but on the high side. I have heard the TRab test or the TBII is supposed to show remission. My doc argues this, he says it's just for diagnosing Graves. What was your TSI? What are your labs?
Graves is an autoimmune disease. AI diseases are like roller coasters with highs and lows. Think of other AI diseases like rheumatoid arthritis, lupus, diabetes, etc.....they have times when they "flare" and times of "remission" where they are in active. It seems very plausible to me that you very right and probably are in remission -- just makes sense! But, the question is, like the other diseases, how long will it last? I hope a good long, long time!!! Congratulations!
Now I believe to be in hypo state. I know that Graves disease can go into spontaneous remission but I have not read about cases of spontaneous remission in 6 months or even going into hypothyroidism in 7-8 months. This usually takes years. Is it so impossible for mine to be a case of thyroiditis or iodine induced thyrotoxicosis? Any experiences you may share? Thanks so much!!
I have had graves disease for 5-6 years now. I take one 10 mg of Methimazole at night time and that is all. I have been very stable on my medicine for years now. I have also been very lucky to not have any problems with my eyes or other symptoms of that nature. I always get concerned when thinking about pregnancy because I want to make sure it is safe for me to conceive. Also, I know that your thyroid can get worse and better during and after pregnancy.
We noticed some anomalies in the test results which would seem to call into question the
My niece was diagnosed with Graves Disease and put on some medication but not synthroid. After 2 years her doctor says the Graves Disease is gone and she was taken off of medication. I do not understand this for I had the testing and then an ablation and now I wonder if I needed it. I had the uptake test and they said it revealed Graves. I am told I have Graves controlled and will always be hypothyroid. I am confused.
Graves is an auto immune disease which likely in your case your TPO antibodies are attacking your thyroid. Eventually if this is the case - your thyroid will stop working or will not produce well enough without medication.
It would be interesting if you could post your actual thyroid blood panels here to see the ranges you are at and were at.
Graves never goes away as stated . It only falls in and out of remission.
75mcg, I have recently been taken off the synthroid because the endo thinks my Graves disease is coming out of remission. What does this mean? My last TSH on 27Oct12 was <0.01L nad my T4,FREE is 1.2. The endo has repeated the TSH, T4,FREE and also ordered the T3,FREE nad TSI. I haven't received those results yet. Is it possible I have Thyroid Cancer now, or is the Grave's disease just coming out of remission and what should my next steps be.
Is it possible for Graves to turn into Hashimoto's disease? I tested positive for TPO 562 & positive for ANA a few weeks ago. All thyroid levels are within normal range at this time except for the TPO, I am extremely tired, muscle aches and pains, rash all over body (it comes and goes) unable to focus, chronic infections, low grade fever daily.
I was diagnosed with Graves in 2007 but, in remission for the last couple of years.
Did Methimazole for three years thinking I would go into remission since my Grandma did after two years. My mom had graves and did RAI. I am three months post TT and feel great. Wish I hadn't waited around for 'remission" (tried going off meds at year one, disaster then tried weaning year two...no good either) I used this forum and read a lot to make sure I was making the best decision for me. Good luck!
Hello,
I have a seemingly incurable thyroid problem, short of ablating my gland. Over the last 5 years, my TSH has fluctuated between 4 and 22 with no meds.
I am very overweight, yet am always hot and shakey feeling. I am also tired alot. I've been to 4 endocrinologists and 2 said I am hypo with hashi's and two said I have Graves' Disease. 3 years ago I tested positive for TSI 3 times with a score of 175, 165 and 180 with a range of 0 to 125.
How many of us here have Graves Disease as I notice that Hashi's is more common.
Correct me if I am wrong.
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