gleevec for gist

I have been on Gleevec since Oct. of 2000. I was in one of the original clinical trials for it, and I am still on it to this day. I am doing very well with it, and you can ask me any questions you might have.

My mum has been taking Glivec for close to 20 years for her leukemia. Recently, she has been in and out of hospital for critically low sodium level. This has occurred for about a year. Anyone experienced similar problems or know of any research showing causal link?

Hi there. It is important to be empathic, and let your brother know that you are always there for him. However, you should not overdo this, since this might lower your brother's self esteem further and cause him to have self-pity. CML is a manageable disease given the appropriate medications. Not all CML's are candidate for Gleevec. Only those who tested positive for the philadelphia chromosome or the bcr-abl gene would be candidates to receive gleevec.

Hi, I don't know the answer -- but since both CML and Gleevec toxicity produce anemia because of marrow suppression, maybe it's not possible to tell the difference. E.g., both would show a low reticulocyte count. This full text paper on anemia from Gleevec https://onlinelibrary.wiley.com/doi/full/10.1002/ajh.23879 shows that other signs such as red blood cell size can vary, so that doesn't seem to help. Sorry.

Is it possible that after taking gleevec for only two weeks WBC droped from 36.7 to 7? All other blood counts are also came back to normal range. Could doctor make mistake in diagnosis of CML? Maybe I should get seg second opinion?

I was diagnosed with CML and given Gleevec 400 ml. After taking gleevec for 2 weeks doctor took additional blood test. My WBC dropped from 36.5 to 7.1 and all other blood counts came down to normal range. I'm wondering if gleevec could give such fast hematological response or I was possibly misdiagnosed originally. I don't and didn't have any symptoms, my spleen and liver weren't enlarged, no enlarged lymph. Should I get second opinion asap? Please, help me.

Hi. Response to imatinib (gleevec) can be dramatic just like what you experienced. Myelosuppression with neutropenia (decrease in neutrophils) and thrombocytopenia (decrease in platelet count) can be a side effect of treatment. Usually, discontinuation of drug intake is advised until the blood counts increase. You should have your white blood cell count repeated after 1-2 weeks and see if it already improves. You should report to your doctor if you experience any symptoms like fever.

Am on Gleevec 400mg, now having problems with blisters on the palm. What can I do about it?

I was diagnosed last year and was immediatley put on gleevec 400mg/day.At my last consult my metabolic stats had risen,hence blood tests to determine if the gleevec is no longer working.I am still in firstphase and wonder what my options are if the gleevec is no longer an option.Amin pretty good form,just very tired and a lot of bone pain.

I have CML and was treated with Gleevec for 4 years and achieved remission. I have for the past several months been experiencing sudden onset of weakness which last for hours, to days. My blood pressure which has remained under control for several years with atenolol has been running 145/105 and higher for the past three to four months. I have a feeling of fullness in my stomach, and I have sporatic episodes of mild coughing, this occurs maybe once a week.

You might find he starts to be able to tolerate the pill. Gleevec is first choice for treating CML, and if he is doing good in every other way then encourage him that he is doing great. I hope this helps you. I would be glad to help you with any other questions.

i was diagnosed with cml in march of 2009 and was also taking 150mg of elavil at bedtime to control migraines for like 10 years. then this past dec. a heart test showed i had prolonged qt of the heart so i was stopped 'cold turkey' by a dr and its been down hill ever since. i have had the shakes, loss of appetite and constant nausea. i wake up evey morning shaky really bad.

s post - the pill is called Gleevec. It is primarily for leukemia, but it is one of the treatments my doc at MD Anderson has in his back pocket ready to give me if the time comes that I need it. Becky, I know you are facing the fact that you are out of chemo's to try. But I'm wondering about Gleevec. I don't think it is an approved ovarian cancer treatment, but right now is critical. Wonder if your doc would consier trying it. I hope the Vitamin C infusions are helping.

I'm a 42 female and had a GIST in my stomach that the surgeon removed along with a part of my stomach and also my gallbladder was removed almost 3 months ago. The GIST came back as non-cancerous. I just started experiencing moderate pain right under my right side under the last rib right where my gallbladder was. The pain comes and goes every 4 seconds and lasted for 4 hours. It started out earlier today with being sore around that area and then the pain started.

Ive been recently diagnosed with crohns and all my work experience is outside in rough conditions or food service and call center all of which my dr has said are too high risk for my meds because my condition has been undiagnosed for 15-20years

Congrats

I saw my doctor who tested me for h.pylori (negative) and started me on a PPI (lansoprazole), which did seem to help for a while; although I would have episodes of nausea, I did not actually vomit as often. After a while the episodes of nausea became more frequent and I noticed I often would develop a terrible headache after being nauseated.

Yes simply eat away but make sure you are eating ....... Lettuce, Carrots , apples, cottage cheese, blueberries, melon, tomatoes, cucumber, chicken, Turkey, Fish, .....You get the gist of what I am saying you can graze all day its what you graze on that matters, so pile in the fridge with a lot of healthy foods and eat...

sorry for the garble above.

I should mention that I have CML but it has been in remission for the last two years and I am no longer taking Gleevec. I am scheduled to be looked at by a group that kills the nerve endings in the heart that causes AF but there is an 18 month waiting period. My question is how many times can I be cardioverted and what is the downside of having it so often?

Darn it. I'm on a borrowed computer until mine is fixed and I don't have PDF (no memory to download it either). Can you tell us the gist of it?

Howdy, folks. I don't know about you guys, but there are times when I have a problem that's so touchy and personal, I'm embarrassed to talk about it with my usual login. So here's a login for anybody that wants to post about a personal problem, but doesn't want to reveal their name. Username: EmbarrassedUser Password: password If the moderators think this is a bad idea, by all means remove this post.

Gleevec for gist

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