friends of the arava institute

Hi stranger! I have not taken this med but wanted to say hello and that I have missed you! Also want to bump this up to increase it's visibility.

I just wanted to say that the arava was the best drug i have taken up until i was put on the embrel. I live in B.C, Canada and we are given the cheapest drugs at first and if they don't work we get put on the next cheapest and this is how we eventually may find a drug that works for us. It takes along time going this route but this is the only way medical will cover us. My next drug will be rituxan, which is suppose to work well.

I have looked both of the drugs you mentioned up on the internet. All of them have awful side effects My son is very reluctant to try other meds as when he tried Risperidone just over a week ago he had an allergic reaction and we ended up in a&e!

I have the same concern.. I've been on a generic - Levothyroxine - for ~9 years and have developed a head tremor over the course of the last 2. It's the same sort of tremor my mother has. She was diagnosed and treated 30 years ago and has taken the same generic for 15. My sister has been taking the same thing for as long as I have, but has no tremor.

Has anyone heard of ** The Chiari Institute** in Great Neck New York? There is a lot of information on this site for those of you who need to learn more info. This site is by far the best website I've found on CM! and other Chiari situations. I hope you find this site as usefull as I have. http://www.chiariinstitute.com/chiari_malformation.

A division of the National Academy of Sciences, the Institute of Medicine announced study results in 2010 proving that chronic viral hepatitis is in need of resources to match its toll on the public health system. The researchers concluded that more funds are required to boost knowledge and awareness, surveillance and healthcare services for chronic viral hepatitis.

Hi, I was recently diagnosed with psoriactic arthritis and the doctor put me on Arava. I've been on it for 4 weeks with no relief. In fact, the pain has increased in all of my joints and my toes have decided to join in on the fun as well. My question is has anyone had any experience with this drug in the amount of time it takes to start working? Is it usually immediate or does it take time to "build up" in your system before it begins to work?

I know I have all the symptoms and do get worse when I am off of my Arava but I also wonder if I could have Lupus because I have a lot of the symptoms of it and my sister has it. My mother has fibro so I wonder if maybe that is what I have instead as well. Things are continuing to get get worse and my dr is wanting to start injection therapy for my symptoms. I just want to be sure I have ra before I begin these injections they really scare me!

My pain hasnt been relieved totally with this med and the rheumatologist wants me to start on Arava in combination. Im scared of the hep c coming back with both of these meds. Opinions needed.

ugh The thing is, most Drs look to the herniation as it is Chiari, but Chiari is the malformation of the skull, and it is too small which forces the tonsils to herniated....a 2mm herniation can cause symptoms as it is the obstruction and the width not how long the tonsils r....but how it is affecting the person. Find true Chiari specialists they do their own research and have a better understanding of how it affects us...

I'm curious of all of those who have gone to and been treated by the Chiari institute (if you're here on this board). How long ago did you go? Who is/was your neurosurgeon? Did you have surgery? If yes, why? If no, why not? Overall, were/are you happy with them and your care?

d want none other than Dr. Rotake at The Chiari Institute to do the surgery. I know there was a scandal, years ago, but it seems as reputable a place as any (no more, no less). I've also read wonderful things about Dr. Oro in Colorado. Has anyone had personal experience with either? We live in northern Virginia but would be willing to travel. Thanks for any insight or experiences shared!

He has been going severly downhill since January and has lost 40 pounds, has constant mucous drainage that he chokes on especially after meals, and has severe shortness of breath. Can these symptoms be a result of the medications he is taking? Is it safe for him to take two synthetic DMARDS at the same time?

We have to really be on the watch every time we add a new medication. I worry the most about people who require multiple meds. Think I will start taking B-12. Thanks again.

I had 2 chiar decompression surgeries recently one in march 2008 and one in april 2008. I was diagnosed in january 2008 and looked into the institute. A relative of mine is in the medical field and did some asking around, there seem to be alot of problems with patients that come out of there, having to go back for more surgeries, things going wrong. The are funded based on research so you are pretty much a guinnepig...

s post about the Chiari Institute - anyone have information about costs for the evaluation, information about their evaluation experience or anyone on one of those research trials through the universities? I have had almost a month of lower head pain, mild nausea,etc. My major symptom was waking up with the room spinning, EXTREME nausea, weakness.

I posted a thread this afternoon when I received a letter from the Roswell Park Cancer Institute In Buffalo, where Dr. Odunsi has had success with the Ovarian Cancer Vaccine. This is a well known fact that can be proven and I always state my sources. Some of us become jaded with so much info that we now don't believe much that we read.

Can delaying treatment for auto-immune issues, increase the risk of permenent neuro symptoms? Me - 47 female various diagnosis including SLE, Sjogren's, Grave's, GERD larynx, hypothyroidism, 5x5x4 thyroid nodule, dysphasia, angioedema, mouth dryness makes talking and swallowing difficult, long tract spinal issues, insomnia, and most recently some scary issues...

Well I just wanted to share some good news. The Chiari Institute has gotten back to me after only 2 weeks after mailing the paperwork and is interested in seeing me! Thank God - I will finally get some professional opinions sometime soon. The nurse I spoke to said I just have to mail my most recent brain MRI CD to them and she will present my case to a doctor and call me back with an appointment!

The hida scan in one of the best tests for your gallbladder.

On another note, ur dr does not seem to recognize chiari 0 which is chiari with a herniation of less then 5mm, chiari by definition is not the herniation, but the malformation of the skull....the herniation and overcrowding is a result of the malformation....so u can have chiari with 1mm herniation and the symptoms u have mentioned. TCI will let u know if u r a surgical candidate or not.....

I had hair fall, then finally frank alopecia and discontinued the MTX one month ago. During the last month of treatment, I asked that my folic acid be changed to folinic acid (Leukovorin). Not sure if it helped the hair loss or not, but it helped my fingernails. I finally discontinued the MTX ~1 month ago . About 1 week after stopping MTX, I stopped my folinic acid and my hair loss seems to be worse and also my nails are splitting and my tongue is sore.

To facilitate and advance patient care Research the pathophysiology of neuro-immune diseases such as ME/CFS, fibromyalgia, atypical MS, and autism Develop therapeutics, diagnostics and prevention strategies for this spectrum of diseases To advance and support medical education and physician training To find out more about this research institute, visit: http://www.wpinstitute.

I wanted to recommend those of you that are having trouble with family and friends not understanding how living with Chronic pain/conditions work. If you will Google "Spoon theory", you will find a sight by a patient that lives with Chronic pain. She doesn't have Chiari, but rather Lupus, which has some similarities in symptoms. This has helped me to understand a little better, what my daughter lives with each and every day. I hope this is helpful to some of you!

William Mellor, president of the Institute for Justice, a libertarian legal firm; and Kris Alan Mauren, director of the Acton Institute, a Michigan-based conservative think tank. Donors Trust is the only honey-pot of its kind for right-leaning donors. But on the left, there's the Tides Foundation, which gives out tens of millions of dollars each year to thousands of left-leaning groups in the US and overseas (including Mother Jones' nonprofit arm, the Foundation for National Progress).

Friends of the arava institute

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