My experience with Forteo is that the calcium does not rise much and these are not common side effects - but it is possible. Also, would re-evaluate pre-Forteo PTH and calcium levels to make sure you did not have mild primary hyperpara before starting Forteo. If still in doubt, sometimes a break from the medication and a future re-challenge can help establish cause-effect.
I have been on Forteo daily injections for 1 year and I have experienced considerable joint pains which did not exist prior to treatment. My left hip and knee, my right knee and my hands have been getting worse each month. Has anyone else experienced similar reactions?
My doctor told me that I have Osteoporosis and wants me to try Forteo an injection for two years. Has anyone tried this drug and what were your side effects, if any. I don't want to make my stomach problems worse than there already are.
I have severe osteoporosis and am trying to take Forteo. I started out with half dose and have worked up to a full dose. The full dose 2 days in a row was disabling. My doctor suggested every other day. So I let the previous trial work its way out of my system for 5 days and tried another full dose. This is three days after the dose and I am weaker each day. I move in slow motion. My doctor is puzzled. Anyone had a similar experience?
Just was informed that I have osteoporosis. My doctor wants me to use Forteo, an injection that you use for two years.
For almost 2 years, I have been, and continue to be, treated for Fibro, Osteoarthritis, Senile Osteoporosis (daily injection of Forteo), high blood pressure and low/none vitamin D, and periods of low white cells. Was checked for the usual, RA, Lupus etc. Nothing showed up. Previous health-worked fulltime around 50 hours a week or more, constantly going and doing, did many family dinners, active runner, won divisional 5k first place and masters and weight trained. BMI is around 20.
As for myself, I am a patient suffering from severe osteoporosis. My doctor, realizing I cannot afford Forteo ($950 per month!), has suggested I try to find how I can take the equivalent, generic version, which is Bonista.
Please, if anyone can tell me how to get ahold of this medication, any address, emails of sellers, etc! I would be so grateful!
This discussion is related to <a href='/posts/show/1230787'>Bonista-side effects</a>.
Hi
You probably know by now, but hypoparathyroidism (HP) is rare. It can occur due to low Parathyroid Hormone (PTH), inability to form active PTH and inability of kidneys to respond to PTH. Low PTH usually is a complication of damage to parathyroid gland following thyroid surgery or neck surgery or any damage to gland for any reason. Inability to form active PTH is either acquired or congenital.
I have not seen anyone post a PTH level this low. I am confused because one site says low PTH and high calcium means the parathyroid is doing what it should when calcium is high, but also implies that this is not hyperparathyroidism. That makes sense - hyper means high and my PTH is low. So why is my calcium level so high? The only info I can find indicates that I have cancer but does not say what kind and where.
I didn't know what forum to ask this question...but...Is it possible to have a PTH test when there is vitamin D deficiency?
Calcium came back slightly elevated, it was 10.7 mg/dl (8.3 - 10.5)
Doctor had me come in a week later to test calcium again along with PTH
The results were: Calcium: 10.1 mg/dl (8.3 - 10.5)
Intact PTH: 6 pg/ml (10-69)
2 years ago when I had routine blood work done, my calcium was within the normal range(don't remember the exact number, same lab), but 2-3 years before that, I remember my doctor telling me my calcium was slightly elevated(same lab).
Hi-- When you say Medicare, I assume it is Medicare Part D, administered by an insurance company like Blue Cross, etc? If so, you might be in for sticker shock. I had a similar experience w/ Forteo, via Part D, they wanted $5K for 3 months. I went directly to Lilly, and qualified for pro bono meds for 2 years, the limit of tx on Forteo. My understanding is patients with cirrhosis get priority. Other Gilead experienced persons, and there are a few here, can tell you more.
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