I am losing my hair, gaining weight and now severe leg cramoing....I stopped injections today after 6 months of injections........
My doctor told me that I have Osteoporosis and wants me to try Forteo an injection for two years. Has anyone tried this drug and what were your side effects, if any. I don't want to make my stomach problems worse than there already are.
I saw the breast cancer question posted by a member here mention she was taking Bonista, the medication for Osteoporosis. As far as I have researched, the only serious risk known for the teriparatide is bone cancer, not breast cancer. Hope this helps!
As for myself, I am a patient suffering from severe osteoporosis. My doctor, realizing I cannot afford Forteo ($950 per month!), has suggested I try to find how I can take the equivalent, generic version, which is Bonista.
t been active on the forum since this thread was posted. You might do a google search for a class action suit stemming from the use of Forteo injections.
Medications themselves can be classified as antiresorptive or bone anabolic agents. Teriparatide (Forteo) is also approved for the treatment of postmenopausal women who have severe osteoporosis and are considered at high risk for fractures. The medicine is given through daily shots underneath the skin and you can give these shots even at home. Another advantage is that it can be given in patients who cannot tolerate oral biphosphonate drugs.
I have been on Forteo daily injections for 1 year and I have experienced considerable joint pains which did not exist prior to treatment. My left hip and knee, my right knee and my hands have been getting worse each month. Has anyone else experienced similar reactions?
I do not/have not ever taken estrogen replacement. I did have Aredia/Forteo injections for the treatment of the osteoporosis. The lump/mass is my breast was found to be "prominent glandular" tissue....no sign of mass/calcification...the "lump" under my arm and in my right groin come and go. My ribs under my arm (upper part) of my ribcage is very tender.
In my case, I began having steroid injections (and so far, two epidural injections) for severe erosive osteoarthritis in my cervical and lumbar spine (also have it in my hands).
It's my belief that the steroids caused the osteoporosis, but only in that limited area. Why? Perhaps because that right leg and hip were immobilized in a cast for a number of months when I was a young child following a traumatic injury.
2) Will Bisphosphonates be sufficient in this case, or are Teriparatides needed ? Teriparatide injections in India are quite expensive and monthly treatments for a year will double her monthly spending.
3) A second opinion was taken from a family doctor and he suggested taking Teriparatide injections alone. Does that not seem wrong - since parathyriod hormone will also increase resorption if calcium is deficient in the body ?
BMD test results:
Spine: .816 gm/cm2 T score -3.
Thanks for your feedback. My case has baffled most doctors. I drink alot of water, eat a healthy diet and don't smoke or drink. The only meds I take are for my bones (Forteo) as I found out that I had extreme osteoporosis in Nov. 2008. I have had my circualtion checked several times and it is reduced in my "weaker" foot. There is no blockages and I have no rare diseases....
My problem is only becoming worse and noone knows why....
I'm a 59 y/o postmenopausal female that was recently diagnosed with osteoporosis with a T score of -3.2. Was sent to an endocrine doc and did several blood tests as well. The doc wanted to start me on hormone therapy and injections based on my bone density test. I was prescribed the estrogen Duavee 20 mg daily and Prolia 60 mg shots every 6 months. Has anyone had experience with Duavee or Prolia?
As japdip indicated, they work quite well for osteoporosis, but they also carry some risks that have led to an FDA warning, so it is important to weigh the risk-benefit ratio when deciding about using them.
For almost 2 years, I have been, and continue to be, treated for Fibro, Osteoarthritis, Senile Osteoporosis (daily injection of Forteo), high blood pressure and low/none vitamin D, and periods of low white cells. Was checked for the usual, RA, Lupus etc. Nothing showed up. Previous health-worked fulltime around 50 hours a week or more, constantly going and doing, did many family dinners, active runner, won divisional 5k first place and masters and weight trained. BMI is around 20.
1) steroids can worsen osteoporosis, and 2) the effect of the injections wears off in time, and the time can vary greatly.
Basically, if I were your mother, and could make my own medical decisions, I would opt for surgery.
Good luck to both of you!
By the way, I am a doctor, if that matters.
P.S. Ask the neurosurgeon what their mortality (death ater surgery) and morbidity (complications after surgery) percentages are.
I'm a 59 year old woman who has started to randomly and for no apparent reason, gasp for breath. It comes out of nowhere and disappears as quickly as it comes. I've recently discovered that I may have been suffering with side effects from Prolia injections for osteoporosis that's caused some weird bites/blisters/scarring on my forearms so I've discontinued taking it but the skin issues continue. I'm wondering, could the gasping somehow be related?
Hi Kzam
Welcome to the Pain Mangement Forum. I am sorry to hear about your mom's painful condition.
I think you are talking about several different things, There are different treats for osteoporosis one of the more popular and common are bisphosphonates. They are given generally prescribed orally and include Fosamax, Actonel and Boniva. They can cause some severe stomach distress as they did for my father. When this happens there are injectable forms of bisphosphonates.
Gosh, Elaine, I need to take calcium, about1500 units a day, because I have osteopenia (bone thinning but not bad enough to be osteoporosis). I was on Boniva for several years, but recently switched to Reclast infusions. I've been doing well without significant further bone loss.
This kind of thing runs in my family so I don't want to mess around with it.
I am in the process of many test now and the only abnormalty found so far is an elevated level of calcium in my blood, a result of Forteo injections. My blood pressure is perfect! Can you give me any idea what is happening to me and if there is anything I can do to help myself this mystery is solved?
that s a very dangerous low level with very high mortality risk even in healthy persons and vitamin d injections are the best for this situation, my baseline was 11ng/ml a little better than yours and from my experience of 3 years trying to make it to optimum levels only 10.000-20.
the high estrogen levels of pregnancy if anything would do good things for osteoporosis. The answer to your question about a surrogate, with your husband's sperm and your eggs being possible, is 'yes' and in fact this is a very frequent arrangement. I am just not sure you will need a surrogate.
//philaholisticclinic.com/natural-treatment-for-osteoporosis/ Because supplmenting with anything can impact you, we do recommend you consult with someone. Even a nutritionist. Calcium, vitamin D, and magnesium are important for bone health. Recommendations of what amount to take would be best with someone that knows your medical history. Even a nutritionist could be of benefit to you. Are you doing weight bearing exercise by the way? This video is helpful. https://health.clevelandclinic.
I know with my mom, it did not work that way for her. She was on bone drugs, calcium/Vit.D for 20 yrs total and still developed osteoporosis with 2 compression fractures in her back. Finally at 79, (she's 80 now), they said, no more bone drugs, they aren't working. She started out with Fosamax, and after awhile when side effects start from that one, and Actonel was available, they put her on Actonel and she was on Actonel all the way up until it was stopped at 79.
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