I have been on Forteo daily injections for 1 year and I have experienced considerable joint pains which did not exist prior to treatment. My left hip and knee, my right knee and my hands have been getting worse each month. Has anyone else experienced similar reactions?
My doctor told me that I have Osteoporosis and wants me to try Forteo an injection for two years. Has anyone tried this drug and what were your side effects, if any. I don't want to make my stomach problems worse than there already are.
I have severe osteoporosis and am trying to take Forteo. I started out with half dose and have worked up to a full dose. The full dose 2 days in a row was disabling. My doctor suggested every other day. So I let the previous trial work its way out of my system for 5 days and tried another full dose. This is three days after the dose and I am weaker each day. I move in slow motion. My doctor is puzzled. Anyone had a similar experience?
Just was informed that I have osteoporosis. My doctor wants me to use Forteo, an injection that you use for two years.
As for myself, I am a patient suffering from severe osteoporosis. My doctor, realizing I cannot afford Forteo ($950 per month!), has suggested I try to find how I can take the equivalent, generic version, which is Bonista.
Please, if anyone can tell me how to get ahold of this medication, any address, emails of sellers, etc! I would be so grateful!
This discussion is related to <a href='/posts/show/1230787'>Bonista-side effects</a>.
Hypercalcemia is a diffcult diagnosis to work up. However there are clear flow chart step by step instructions on what to do next. If you would like to reply with an email address I will scan and email to you.
There is no way on this forum to attach anything.
It appears checking the Parathyroid is next. Remember this is in no way connected to the thyroid other than it is physically sits next to it in the brain. Its a totally different thing.
My DH has been hospitalized twice for hypercalcemia in the past 6 months (levels 14, 13).Both times his Pth is almost nonexistent at less than 0.25 which rules out a parathyroid tumor. Head to toe bone scans and bone xrays are normal as are abdominal and chest Ct scans and chest xrays and abdominal ultrasounds. Ruled out Familial type of hypercalcemia, ruled out multiple myeloma as well as pancreatic cancer, thyroid and parathyroid cancer, bone cancer, chest cancer. His spleen is enlarged.
I think that in light of the fact that your mother and brother also have hypercalcemia, you should look into "Familial Hypocalciuric Hypercalcemia" (FHH) is also known as Familial Benign Hypercalcemia. There is a lot of information written about it. What is your PTH level?
A calcium/creatinine clearance ratio of <0.01 is suggestive of FHH. Have you had this test done?
I also have high ionized calcium but sometimes inappropriately normal and sometimes normal PTH.
bones , groans, emotional overtones
Ovarian cysts are common and that one is tiny.
I would definately get a follow up scan perhaps a pelvic MRI
If a cause of hypercalcemia is not found, you should have that ovary removed.
There is an extremely rare cancer called a small cell cancer that produces hypercalcemia.
I have chronic leukocytosis (elevated WBC), elevated RBC, Hypercalcemia, elevated platelets, and chronic elevated D Dimer. I'm Extremely tired, yet can't sleep due to pain in hips and sternum. I am nauseous the majority of the time with some episodes of vomiting. Muscles twitch often. I am having issues with concentration lately. I have a minimal appetite with abdominal pain and tachycardia what could be wrong? Totally freaked out ER doctor wants me to see a hematologist/ oncologist.
I've been reading about placental calcification and can't seem to find an answer to this question. I've had mild hypercalcemia for a few years and have aslo had 2 late miscarriages (consecutively) at 18 weeks. Can hypercalcemia cause placental calcification or am I way off track ? I don't smoke, so that's not a factor. Except the elevated calcium (usually about 10.9 to 11.0) I am a healthy woman who has had healthy, uncomplicated pregnancies before this calcium issue.
I just don’t see any references anywhere to conditions that exist when calcium is high and PTH is low. Everything I have read about hypercalcemia talks about high calcium with high PTH or hypocalcemia with low calcium and low PTH. Anybody have any experience or knowledge about conditions that might arise in a generally healthy person with high calcium and low PTH? Thank you!
Please go to Parathyroid.com and read -it has TONS of info about hypercalcemia and its symptoms, as well as parathyroid disease and some other possibilities. Hypercalcemia is exactly what brought me here to begin asking questions and I discovered I had a parathyroid tumor (not cancer and only a big deal if you don't get it removed).
I do not think are any real correlations between hypercalcemia at the level you are describing and heart attacks. We do sometimes see arrhythmias of the heart in patients with hypocalcemic (low calcium) and could possibly see an arrythmias (abnormal heart rhythm) in a patient with hypercalcemia but I think this would be at a higher level such as 14-15 or so.
ve had my calcium checked and, as I stated, my calcium levels have always been high. I had hypercalcemia but the doctor pulled me off vitamin D3 (800 IU daily) and my PTH levels are always normal. I've read that excess vitamin D (up to 50,000 IU daily) can be a sign of primary hyperparathyroidism.
If such a small (comparatively speaking) dose can cause hypercalcemia, doesn't that lead one to a diagnosis of primary hyperparathyroidism?
Hi-- When you say Medicare, I assume it is Medicare Part D, administered by an insurance company like Blue Cross, etc? If so, you might be in for sticker shock. I had a similar experience w/ Forteo, via Part D, they wanted $5K for 3 months. I went directly to Lilly, and qualified for pro bono meds for 2 years, the limit of tx on Forteo. My understanding is patients with cirrhosis get priority. Other Gilead experienced persons, and there are a few here, can tell you more.
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