I have been on Forteo daily injections for 1 year and I have experienced considerable joint pains which did not exist prior to treatment. My left hip and knee, my right knee and my hands have been getting worse each month. Has anyone else experienced similar reactions?
My doctor told me that I have Osteoporosis and wants me to try Forteo an injection for two years. Has anyone tried this drug and what were your side effects, if any. I don't want to make my stomach problems worse than there already are.
I have severe osteoporosis and am trying to take Forteo. I started out with half dose and have worked up to a full dose. The full dose 2 days in a row was disabling. My doctor suggested every other day. So I let the previous trial work its way out of my system for 5 days and tried another full dose. This is three days after the dose and I am weaker each day. I move in slow motion. My doctor is puzzled. Anyone had a similar experience?
As for myself, I am a patient suffering from severe osteoporosis. My doctor, realizing I cannot afford Forteo ($950 per month!), has suggested I try to find how I can take the equivalent, generic version, which is Bonista.
Please, if anyone can tell me how to get ahold of this medication, any address, emails of sellers, etc! I would be so grateful!
This discussion is related to <a href='/posts/show/1230787'>Bonista-side effects</a>.
Hi-- When you say Medicare, I assume it is Medicare Part D, administered by an insurance company like Blue Cross, etc? If so, you might be in for sticker shock. I had a similar experience w/ Forteo, via Part D, they wanted $5K for 3 months. I went directly to Lilly, and qualified for pro bono meds for 2 years, the limit of tx on Forteo. My understanding is patients with cirrhosis get priority. Other Gilead experienced persons, and there are a few here, can tell you more.
Medications themselves can be classified as antiresorptive or bone anabolic agents. Teriparatide (Forteo) is also approved for the treatment of postmenopausal women who have severe osteoporosis and are considered at high risk for fractures. The medicine is given through daily shots underneath the skin and you can give these shots even at home. Another advantage is that it can be given in patients who cannot tolerate oral biphosphonate drugs.
Thanks for your feedback. My case has baffled most doctors. I drink alot of water, eat a healthy diet and don't smoke or drink. The only meds I take are for my bones (Forteo) as I found out that I had extreme osteoporosis in Nov. 2008. I have had my circualtion checked several times and it is reduced in my "weaker" foot. There is no blockages and I have no rare diseases....
My problem is only becoming worse and noone knows why....
I am in the process of many test now and the only abnormalty found so far is an elevated level of calcium in my blood, a result of Forteo injections. My blood pressure is perfect! Can you give me any idea what is happening to me and if there is anything I can do to help myself this mystery is solved?
He scheduled a CT for confirmation. The CT confirmed the non-union. He wrote a prescription for Forteo, and the use of a bone growth stimulator, stating that if, after an additional 8 weeks there is still no sign of bone fusion, he would do a bone graft and replace the hardware.
I feel as though he is not listening to my complaints of pain, edema and the inability to sleep secondary to the pain and discomfort.
I do not/have not ever taken estrogen replacement. I did have Aredia/Forteo injections for the treatment of the osteoporosis. The lump/mass is my breast was found to be "prominent glandular" tissue....no sign of mass/calcification...the "lump" under my arm and in my right groin come and go. My ribs under my arm (upper part) of my ribcage is very tender.
I was on a two year course of Forteo (Parathyroid hormone) and after I quit taking the Forteo, I began losing weight with a decreased appetite for a total of 45 lbs.
Had also stopped taking Lexapro in reducing doses prior to all this because it seemed to stop working. I was taking it because of the mood swing side effect of the Prednisone and to help with my fibromyalgia (which is quiet, now). Even though it was weaned, I developed withdrawal symptoms of big mood swings.
In fact, everything was normal except for his neurological problems. So they sent him home and told him to try Forteo. Well, Forteo has a side effect which is increased risk of bone cancer, so he stopped it. And I put him on Strontium, which is a supplement that builds bone density.
Strontium is used in Europe and a pharmaceutical company has a patent on Strontium Ranelate, which is Strontium with an artificial substance linked to it.
He sent me to clinic that specializes in balance and dizziness. I had VNG (Videoelectronystagmography) and CDP (Computerized Dynamic Posturography) tests done and was told I have inner ear damage which could have been the result of a stroke I had five years ago. Dizziness can have a lot of causes. It might help you to look at the web site of my therapist, www.nomorevertigo.com.
Does anyone know why we get dizzy with chiari? I have been doing so well with little dizziness. I don't know if I exhausted myself this weekwnd and that's why its back full force. So bummed because I was actually feeling somewhat normal for a while. I wasn't even moving last night when out of nowhere my head felt weird for about 3 seconds. Now today having episodic dizziness and funny feeling in head. Ugh! Disappointed and frustrated but who isn't with chiari.
Dizziness is common throughout pregnancy. Because of the blood being directed to the placenta, the blood getting back to mom isn't top priority any more. I had it bad until about 14 weeks. But continue drinking water in case you're dehydrated and make sure you blood sugar isn't low so eat something when you feel that way. But if it's none of those things it's just the blood flow. It stinks.
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