I took Forteo for 10 months. and i can barely walk. i took Tymlos for the first 6 months and was fine, and then Forteo for 10 months. my strength is gone, my feet hurt wearing shoes, i have stomach pain when exercising, and ave thigh muscle cramps, neck pain, and can't sleep. I had confusion when driving, so i told my doctor i'm done with this. I know where i'm going these days, but I now use a walker around the house, elastic knee braces to walk on my own.
I have severe osteoporosis and am trying to take Forteo. I started out with half dose and have worked up to a full dose. The full dose 2 days in a row was disabling. My doctor suggested every other day. So I let the previous trial work its way out of my system for 5 days and tried another full dose. This is three days after the dose and I am weaker each day. I move in slow motion. My doctor is puzzled. Anyone had a similar experience?
thanks but that site is about thyroid disease not parathyroid disease. Typically parathyroid levels are elevated in vitamin D deficiency; however, that's secondary hyperparathyroidism and they treat people empirically for D deficiency (and presumed secondary hyperparathyroidism) as long as their calcium is within the normal range. In primary hyperparathyroidism Vitamin D and calcium are not indicated I guess until after surgery.
I had hyperparathyroidism and it was my understanding that was separate from my thyroid issue. I'm not sure that is clinically correct though.
Hope you get more answers.
One of the rules of primary hyperparathyroidism - "All patients with parathyroid disease have calcium levels and PTH levels that go up and down. Fluctuating levels of calcium are typical of parathyroid disease." As your calcium levels are stable, this is a good indication that you have secondary hyperparathyroidism.
I have worked with this site for many years assisting people to get the medicines that they need. You should check and see if you qualify for the Forteo assistance program: http://www.needymeds.org/drug_list.taf?_function=name&name=Forteo
Good luck! I am a breast cancer patient in a drug study taking the osteoporosis drug, Zometa. There is some promising data that suggests osteoporosis drugs may help prevent breast cancer patients having recurrances of cancer as bone cancer.
For almost 2 years, I have been, and continue to be, treated for Fibro, Osteoarthritis, Senile Osteoporosis (daily injection of Forteo), high blood pressure and low/none vitamin D, and periods of low white cells. Was checked for the usual, RA, Lupus etc. Nothing showed up. Previous health-worked fulltime around 50 hours a week or more, constantly going and doing, did many family dinners, active runner, won divisional 5k first place and masters and weight trained. BMI is around 20.
I know that muscle cramping is a symptom of hyPOparathyroidism, but can it also be a symptom of hyPERparathyroidism? I've been having lower right abdomen cramps and increased leg cramps, esp. at night. I've pretty much got the diagnosis of hyperparathyroidism, we're just looking for a good localization scan.
Thanks so much!
I had a BMD issue a couple of years ago (suffered 3 hip fractures over 2 years) and after seeing 7 different doctors my Primary Care seemed to put a ton of things together and believed I was not absorbing calcium and may estrogen levels were super low and virtually non existent. I was put on Ogestral and Forteo and knock on wood- no more injuries and a BMD increase of 22% in 1 yr. However, I started having what I thought was food allergies.
I have elevated levels of calcium and PTH in my blood. When I read about the symptoms of primary hyperparathyroidism on Parathyroid.com, I found that my symptoms during several years fit well to primary hyperparathyroidism (although I have other diseases, too). Maybe I have had higher than normal calcium level even for many years. Nobody knows.
Last year I thought that there must be a strange cause for the flimmer. Now I suspect hypercalcemia. Infections have also been suspected.
If the calcium and PTH are both high - then this is primary hyperparathyroidism. There are rare syndromes of pituitary tumors and parathyroid tumors that coexist (MEN syndrome - in this case, MEN 1). The FSH would be high due to the pituitary problem. Checking other pituitary hormones would be helpful and consider a pituitary MRI.
However, there could be another explanation. The PTH could be high due to a vitamin D deficiency (commonly seen in the autoimmune disease called celiac sprue).
Hi there - I am a 24 year old female with a history of fibromyalgia/chronic pain (w/ many of the symptoms of hyperparathyroidism). I went in for a physical a couple of weeks ago and for the first time ever, had a high calcium of 10.7. The Dr. repeated the test and today it was normal at 9.4.
I did a lot of research when I first saw that it was elevated and I was convinced that I had hyperparathyroidism after reading about the symptoms and others' experiences.
High calcium and and PTH level that is not very low means it is extremely likely you have hyperparathyroidism. "
In addition, "The most common symptoms of hyperparathyroidism are chronic fatigue, body aches, difficulty sleeping, bone pain, memory loss, poor concentration, depression, and headaches.
First, thanks much for everyone's time in reading and in advance for any responses!
My questions:
What is the definition of low-normal versus normal on the PTH INTACT blood tests? My level came up as 17 with a normal range of 10-65. My calcium topped 11 last week, but has been 10 and above with possibly related symptoms and worsening GERD for the last two years.
Usually the calcium is high w/ primary hyperparathyroidism (caused by a tumor). So if your calcium is "normal" and PTH is high and vit D low - most commonly the PTH is high due to the low vit D --- aka secondary hyperparathyroidism. But if Ca is high-normal (10 or above usually) then early primary hyperparathyroidism is possible.
I have been diagnosed with depression and atrial arrythmia (sp?). I have had joint and bone pain, severe at times, and muscle weakness since summer of '08.
My research has shown that hyperparathyroidism symptoms include depression, atrial arrythmias, joint and bone pains, as well as the muscle weakness.
My main concern at this point is, what should I expect from the above treatments to "cure" the hyperparathyroidism, thereby, curing the symptoms?
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