Ddavp and von willebrand disease
Common Questions and Answers about Ddavp and von willebrand disease
ddavp
The symptoms of von Willebrand disease include excessive bleeding, especially in the nose and gums. The condition can also cause sufferers to bruise easily, typically in unusual locations. Symptoms of von Willebrand disease can be very mild, and for this reason, the condition often goes undetected.
Bruising can sometimes be a symptom of other illness, such as an irregularity in the liver or the blood clotting mechanism.
Hi all,
This is my first post in this community. Following an approximately 8 month (and counting) history of recurrent petechiae, my doctor finally referred me to a hematologist for further evaluation. The hematologist listened to my concerns and told me that she wanted to test me for von Willebrand disease, but she expected the testing to come back negative as I "should have other symptoms besides petechiae if it's von Willebrand's.
von Willebrand disease maybe? Does she have frequent nosebleeds often?
Google von Willebrand. It's a disorder that causes the blood to not clot very quickly, so little injuries turn into bigger bruises than you expect. As I understand it, it's treatable my medication.
He ordererd a few tests for me which were negative for Von Willebrand but my APTT stayed high and my TSH was stil 0,022 and that's when he orderd me to lower the medication. During all that time my menstruation stopped completely (my gynaecologist ordered some test too and says that I'm now postmenopauzal). This all happened in january 2009. My Ft4 and my T3 *they don't measure the Ft3 in the Netherlads on a regulary base* was normal with sometimes a minor going up or down.
My doctor suspects I might have Von Willebrand and has referred me to see a hematologist and do some blood work. She said "We should test to see if you have it and if you can then have kids".
As you might understand, that was unsettling for me.
Is there a chance that VW or any other blood disorder for that matter could cause sterility or infertility?
Here is an excerpt from an article I found on easy bruising.
“ People tend to bruise more easily as they age because blood vessels become weaker and the skin thins.
Easy bruising may also run in families, so people whose relatives bruise easily may notice that they do as well.
It can be difficult for a person to assess whether they have more bruises than usual or bruise more easily than most other people.
If you are concerned about your von Willebrand disease (-please correct me if I misinterpret what you are writing when you say vwb -- von Willebrand disease is usually listed as vWD, so maybe I have it wrong) - if it is von Willebrand disease you are talking about, it seems like excessive bleeding at the period is more a problem with vWD than not having a period when expected. Unless you have vWD type 3, there is not considered to be an unusual risk of bleeding in the joints, etc.
My husband has been diagnosed with von Willebrand disease. My youngest son has symptoms and labwork that suggest the same. I have never had easy bruising overall, I do have heavy menstrual bleeding but always attributed that to Polycystic Ovarian Syndrome.
i found it he had /has von willebrand disorder.
Second colonoscopy scheduled for last November to finally remove the polyp. Bowel prep was good, and the colon looked good (no inflammation and no nodules), however, the polyp was sessile in nature and therefore they could not remove it. We were referred to general surgery.
Surgery scheduled for Feb 2010 - no bowel prep needed, they would cleanse him on the table. Two hours later the surgeon came out and told me they couldn't find the polyp - basically had a sigmoidoscopy.
Mine is partial so it ebbs and flows a bit and I do have to adjust my DDAVP dose sometimes. Without DDAVP my fluid consumption is 4 or more gallons a day. At first, I kept a fluid intake and output diary. Also I weighed myself every morning to see if I was taking to much medication and/or not consuming the right amount of fluids.
And yes, for me the best approach has ended up to take DDAVP just at night so that I can sleep without having to get up every 1/2 hour to drink and pee.
never knew. my mother said I had von Wilhems but I was tested when I was an adult and it was negative so i really have no idea. I am scheduled to start the coumadin clinic next week and I guess I need to talk to them.
Thanks for the input. I am pretty sure all is well. I think I am just psyching myself out.
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