About 6 months ago, I was finally diagnosed and started taking cyclosporine 100 mg 2x day. After a week, I could eat like a normal person—just about anything I wanted. It was great, it even allowed me to travel to Europe. The cyclosporine I was taking was a powder in a capsule, apparently this has been taken off the market and instead I took the same medication, but it was in the form of a capsule with alcohol. Unfortunately, after a short time, I was right back to before treatment.
Yes I took Cyclosporine for my aquagenic urticaria, it helped so much but not enough to have a normal life :S but maybe for you its going to be different...
I am still on 100 mg 2x daily cyclosporine. My cyclosporine through levels have been lower, the last time they were at 79. I Have been on 300 mg ursodiol 3x daily for biliary stricture since tx. I lowered the dose to 300mg once daily but just recently raised it back to 300x 3 daily because right side discomfort an increase in bilirubin. My headaches and fluid in ears have gotten better, still have the vision issues but heart palpitations have also lessened.
I use genteal and the bottle seemed stopped up. I took the bottle tip off and found " muck" stuff growing in the bottle like in a bottle of water that's been setting out for several months. The tip had a long string like thing in it. I pulled it out and will go back to the pharmacy to tell them. It needs to be reported as contaminated. But can't seem to find email or a phone for Novartis pharmaceuticals. Any ideas.
Check out your eye drops.
She was completely unresponsive to antihistamines although she continues to take many. She has been on an immune suppressant called cyclosporine that was working fairly well but had to go off quickly due to bad kidney response. She is now on cellcept, another immune suppressant, but it is not working well. They want to start her on xolair and her doctors have started working with our insurance company to try to get it approved. They are telling us about $6000/month for the 2 shots.
The specialist reviewed all of the options with us - cyclosporine, pilocarpine or tacrolimus with sirolimus. She said that very rarely has she seen any dog respond to cyclosporine after not responding to tacrolimus. She also said that because our dog doesn't have a dry, goopy nose, that pilocarpine wouldn't be a first choice. She recommended a mix of tacrolimus with sirolimus. She said sirolimus is new. I have not been able to find anything about this drug on the internet.
Close to five years post liver transplant. No rejections, cyclosporine mono -therapy .Also take 300 mg ursodiol 3x daily for bile duct stricture. Vascular hyper-tensions are becoming a real concern. ie heart, palpitations . fluid in ears , vision problems that aren't related to my actual eyes, the opthamologist confirmed, Migraines that have actually gotten better lately. kidney function is still adequate. My liver is doing very good especially with hep-c..
I'm sorry to hear about your epilepsy. I've got it, too. I think Novartis makes Tegretol. I went to their website (http://www.novartis.com/) but couldn't find a patient monograph.
According to http://www.merck.com/mmpe/lexicomp/carbamazepine.html, one of the "Adverse Reactions" is "Hepatic: Abnormal liver function tests, hepatic failure, hepatitis, jaundice".
Thank you Steph for taking the trouble to look it up for me, I did try googling it but wasn't really getting anywhere.
and the vet will probably prescribe cyclosporine drops to help the eye produce more tears. Before you use the cyclosporine drops, be aware that they will sting your dogs eyes, and long term use may contribute to kidney disease...talk this over with your vet.
Since your dog is 12 years old, please have annual bloodwork done on him to assess liver and kidney functions...bloodwork should be done on all senior dogs.
Best Wishes for you and your dog.....
In an additional 33 patients, glomerular and tubular NEP protein levels from renal graft biopsies were significantly higher among the 13 patients receiving cyclosporine + EC-MPS than among the 12 patients receiving cyclosporine + azathioprine or 8 patients receiving cyclosporine alone. Glomerular NEP expression inversely correlated with glomerulosclerosis and proteinuria, and tubular NEP expression inversely correlated with interstitial fibrosis.
I had a h1n1 vaccination novartis -preservative free back in Nov 15th to be exact. I received hot sensations in arms shoulders neck from a preservative free vaccination. I have tingles,numness on extremities throught the night since 5 days after innoculation. During the day I have had it change from the hot sensations-alomost gone. To numbness in pinky finger,left foot for 2 weeks to right foot most recently for 2 weeks. Hope there will be an end soon to this madness.
Hello Rott,
Welcome to the Pain Management Forum. I am glad that you found us and took the time to post.
I am so very sorry to hear that this manufacturing error has affected you. It's always frightening when we have to change from a medication that we have become comfortable with and that works!!
I have been searching for the exact facts on the recall. It appears that the primary concern is that the non-narcotic medications (listed below) may contain the narcotic.
I am currently under St Thomas hospital for this, they are stating I should take Cyclosporine for 6 months, I was wondering if someone on here has taken this treatment and it has worked for them??, I am not convinced on this medication as I have read so many bad things about it.
My consultant has stated that 70% of people whilst on cyclosporine will be clear, one third will have total remission,one third will be same as before, one third will be worse once the treatment has stopped.
We immediately put her on an antibiotic ointment and cyclosporine. It has been almost 10 days and while there is less discharge, she is still having some trouble opening her eye, she just keeps it closed (unless she gets excited). At some times you look at her and she looks completely fine, others times she can barely open her eye. Is this normal for KCS? Should we have seen some major improvement by now?
I was switched to cyclosporine and Myfortic. When the Incivek was started my cyclosporine was dropped to 25 mg once per day due to their interaction. Due to my previous non-response and to the multiple variations of the HCV I carry my odds were considered to be about 30%, maybe 40% at best. At the end of week 4 the HCV RNA was not detectable. The only additional side effect is that the anemia came quicker this time. I will start Procrit injections probably sometime this week.
t swelling and foamy urine. Now that I have a diagnosis, I am on pill forms of Prednisone every other day and Cyclosporine 2x every day. I have been on the meds for over 1 1/2 weeks and noticed that the foamy urine amount has doubled, my face swells unbelievably, and walking is difficult, as the bottom of my feet and ankles cause me severe pain. I checked with my Nephrologist and she states that it will take a little while for my body to adjust to the medicine.
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