I was like this for 3 months. My pain managment Doctor at that time confirmed the RSD had went into my left side, arm and leg. Im on at least 10 plus medications, ranging from schedual 2's to schedual 3's. I have done research on possible help and any form of relief of this and came across the AMA and it saying that medical marijuana was very helpful with patients suffering from RSD. Please help or tell me if this is correct and also any other form of help that might work.
I have been taking percocet for 5 years now for RSD. started at 5/325 3x a day, and 5 years later am taking 6-8 10/325. I have been tapering fast, like 2 5/325 a day, and feel poopy, to put it kindly, but making myself function as best I can. My hubby is very caring and understanding about it. I know these pills help me with my pain, but I in the last month caught myself taking 8 a day instead of the prescribed 6 a day. so lo and behold, I am almost out with almost a week to go.
So he wants me to switch over to a pca pain pump with dilaudid then discontinue the oxy and then switch to eurozone. They will also give me clonidine for panic attacks, phenobarbital for anti seizures, IV fluids and zofran for nausea and I will be hooked up at all times to a heart monitor. Oh yeah and I also have multiple sclerosis.
Have any of you got off your meds this way.? I'm supposed to be in the hospital about a week and then ill be on AutoZone if it works for pain.
Probable RSD? What!? Don't just go for that diagnosis. Having RSD is different from believing you have RSD. I did bone scans and other tests to verify RSD and I did have it for sure after a foot surgery.
You don't want to succumb to an RSD diagnosis that's not well established for one. For two the mind is very powerful with RSD. I went to see a podiatrist who claimed good luck with getting surgery patients past RSD.
apparently unk now at the time , I had this before my carpal tunnel surgery.. would the surgery worsen the rsd? Rsd is in both hands...I had emg done, so I definitely had carpal tunnel. My orthopedic surgeon noticed the pain, swelling, reddness and warmth in both hands when I started seeing him, approx. 4 months before the ct surgery. He told me it was unrelated to carpal tunnel..but went ahead with surgery. I am currently seeing a pain management specialist to help with the rsd...
Are there any treatment options for CRPS or RSD other than painkillers or in combination with painkillers that can help someone who has had the disease for over two years? Does anyone have a story about CRPS or RSD that has a happy ending? What are the best medications and treatment options? Any information would be a really huge help. Currently I am taking Methadone, Lyrica, Cesamet, Baclofen, Citalopram as well as Hydromorphone for breakthrough.
ve has RSD since 2000 when I went into the hospital for a kidney infection and ended up on the RSD nightmare road. I've done nerve blocks, narcotics, denial, counseling. I am very lucky to live in an area that has doctors who understand and are sympathetic to RSD. I finally found a pain care facility that actually cares about their patients not just the money. I agree with the statements that stress worsens the condition, I am living proof of that.
I was diagnosed with RSD in my hands in 1996 and it spread to my feet in 1997 after C3-4 laminectomy. Reading from a 2005 medical report I have "post laminectomy syndrome with significant ridicular component in both upper extremities and RSD with the primary focus in the left upper extremity and cervival facet arthropathy." The report also indicates I have severe occipital neuraligia.
Hi,
If RSD progresses, or shows no response to medication, a widely employed therapeutic intervention for RSD is cervical or lumbar paravertebral sympathetic block with anesthetic injections such as mepivacaine or bupivacaine. The pain relief may be extremely good, for a time more than the action of the anesthetic.
Some patients may be cured by a surgical procedure that involves excision of one or more sympathetic nerves, also called as sympathectomy.
ve had about 5 stellate ganglion blocks, some help the RSD, for a little while or for a certain area but never have I had total relief. I just started 75 mcg Fentanyl patch and switched over to 15 mg. morphine, 1-2, 4 times a day as needed. I'm using a compounding cream that does help a little bit, and some lidoderm patches that help a tiny bit. I've never been on nortriptyline (and forget at the moment what that does.) I'm not familiar with Lorcet or avinza at all.
As you are a learned person I'm sure you researched RSD throughly and came to the conclusion that it is definitely not a diagnosis that you want. Since your injury is still fairly recent I don't think doctors will be able to make a RSD diagnosis yet. I would still go to your doctors though and ask for any and all tests that they have for it if you think it is a definite possibility, however there are no definitive tests for it.
Did you injure your leg in some way? Some of it sounds like it could be rsd. Have you seen anyone for it? You can rule out restless leg by drinking some tonic water with quinine or eating potassium-rich foods like bananas and potatoes. There's also an OTc homeopathic pill called Restful Legs by Hylands. Talk to your primary and see what they think.
If RSD is present, could you get what feels like a wasp sting in different parts of the body e.g. foot, leg, side of face etc. Pains in the eye.
I am taking clonidine for my Subutex withdrawal. It has definetly helped with the anxious creepy crawly feeling. It also helped with hot flashes.
I wasn't given any info on not to mix it with pain meds, but you may want to call you doctor to find out. Or even a pharmacist might be able to tell.
good luck!
The RSD has spread from my thumb to hand, wrist and up to my elbow. I now have treatments for the RSD which help for a while. I do know that RSD can spread from one area to many.
Have you seen a pain specialist? That may be a good place to start. You also could have more than one thing going on. Some of your symptoms sound like fibromyalgia..
Whatever you have going on, though, you need to see a doctor who is willing to listen to you.
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