betaseron nurse

I've been on Betaseron since a year after I was diagnosed in 2000. On August 20th, I quit taking Betaseron cold turkey when I finally received my new oral medication Tecfidera. For the last few days I have been dealing with horrible body aches, diarrhea, cold sweats & the inability to eat (not feeling sick, just not being hungry or interested in eating). I do not have a fever, a cough, allergies or anything else I can conclude to be at fault for these annoying symptoms.

I should really say "absentmindedly". I have a Betaseron app on my iPhone and I got an alert today to take my injection, so without even thinking or checking the calendar on the app, I immediately prepped and administered my injection. Two hours later, I got another alert because I forgot to record the injection so I looked at the calendar and realized, oops, I injected myself yesterday as well. Anybody else ever make this mistake?

Well the Beta Nurse just left. I did my first dose of Betaseron today. More anxiety over possible side effects then teh shot itself, Shots dont really bother me as I am a nurse. But still have the anxiety over side effects. Shot itself wasnt bad, not itch or redness like I had with teh copaxone. I took ibuprophen, and hopefully I dont get any flu like symptoms. Will do next shot on Saturday.

t have a direct answer to your question since I do not take Betaseron but perhaps you could call and speak to the MS nurse or call the nurse affiliated with your Betaseron, I think all the DMD manufacturers have a nurse to contact with such questions. I hope they can give you an answer soon.

Am I doing something wrong? I talked to my Beta Nurse about it and she said it was unusual for someone with my skin tone (warm/olive) to have such highly visible marks.

He did warn me about the miscarage risk. The last visit, he said to get off Betaseron 1 month before ttc. The BetaPlus nurse said give it two months. My husband and I discussed this. The current plan is to get off the Betaseron at the end of next week. That would be 2 wks in to the last pack of bc pills. We are planning to use alternate methods of bc for the next cycle. That would put me off of Betaseron 8 wks prior to the hoped for conception, and off the bc pills for 6 wks.

Yes i think Betaseron does that too, I will call my Beta nurse in the morning to find out, this is only the second one i have wasted, can anyone also tell me what i am doing wrong, as the last three shots i have given my self have all bled, even though they sent me another top for the auto injector, they sent me size 10 and i used that instead of the 12, as she thought i may be a little on the thin side for the size 12, but it still bled a little, i use the ice pack before i inject as she tol

Hi, Well, I didnt handle the copaxone well due to injection site reactions and now my Neuro has me starting Betaseron. I am extremly nervous about this. I am a Nurse, dont have a problem with the inection itself, but what scares me is the possible side effects of feeling flu like symptoms. I am having a hard enough time working now on nothing, how do I work and maintain if I feel like I have the flu all the time? Does anyone have any experience with this?

I have been off of Betaseron for about 2 weeks now and my eyes are back to being very uncomfortable. Before I started Avonex eye pressure and pain was a huge problem. Now it is is starting again.

m not on betaseron, but am glad to hear you are making a change to see if you can find a combination to slow your MS. Getting the new MRI done on the stronger machine is so important for your baseline... it will give your new neuro a good view as to where you are coming from. And you're right, it might show where you have new damage that is causing your changes.

I just received my letter stating that I can receive Betaseron for $50 a month. We have to pay up front on our insurance, so I filled out the form for patient assistance (upon Betaseron rep's recommendation). I found the form by googling "Betaseron Patient Assistance Program". Have you been directed to the form?

Have any of you experienced hair loss after starting BetaSeron? I have been on it only a short time, and have already begun losing mine. I would appreciate any input from the experts. Thank you.

My husband has been on Betaseron, IVIG, and Tasabyri. He built up antibodies on the betaseron and tasbryi.

....is 3 months long enough to know if the Tecfidera is having any effect? Does anyone have any idea? Thankfully, I have a 3 month follow-up with a new neuro on Monday. Unfortunately, I have had and continue to develop increasing mobility issues with my right leg (which will be entirely new). My partner thinks the Techfidera isn't doing anything and wants me to go back on Betaseron............. :: sigh ::.

Hi Mandy - I wondered where you went. Mild-shild huh? Have you any imaging lately? See if you've had improvements w/lesions? I've heard all good things about betaseron/feron. One of the top MS Docs here in Jersey prescribes it primarily over the others.

t had any issues (knock on wood). Also, have you asked for suggestions from the shared solutions nurse? They are avail 24/7.

I just received a copy of my latest blood workup. I've been on Betaseron for six months. The following were flagged: ALT is 56 (range 1-32) AST is 44 (range 10-40) Globulin 2.6 (range 2.9-4.3) Albumin/Globulin ration 1.7 (range 0.5-1.5) Is this something to be concerned about?

I started on betaseron (betaferon here in UK) 2 weeks ago, so have so far injected 7 times. On nearly all the injection sites I have a slightly raised red area, approx 1 1/2 - 2 centimetres in diameter, not at all itchy or bothersome in any way. Where I did the first 2 injections I now only have very small marks, more like tiny bruises. I suppose I am looking for someone to tell me it is ok to ignore this. I don't want to go to the doc or MS nurse and risk the drug being stopped.

I got some good information from my Betaseron nurse, actually - she says that she has a friend with FM, who gets regular massages as a prescription. I need to start pestering my neuro for PT and massage - this is ridiculous.

My Neuro wants me to switch from Rebif to Betaseron. I have been taking Rebif since March 09 and have had to do one round of Solu Medrol in May and will find out tomorrow if I have to do another. I also have pretty bad injection site reactions which is why the Neuro wants the switch. I guess Rebif has acid in the injection and it makes the site reactions worse? My question is, I am under the impression that Betaseron is not pre mixed and also that there is not an auto injector?

ve been trying to figure out what to do about health insurance. My neurologist and I were discussing Betaseron and gawking at the out-of-pocket cost. Luckily he was nice enough to waive the fee for my next visit, but we haven't figured out a solution for the medication. He told me to come back when I got insurance so I could get a proper diagnosis and a prescription. Does Medicaid cover Betaseron?

Betaseron nurse

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