betaseron for ms

m not on betaseron, but am glad to hear you are making a change to see if you can find a combination to slow your MS. Getting the new MRI done on the stronger machine is so important for your baseline... it will give your new neuro a good view as to where you are coming from. And you're right, it might show where you have new damage that is causing your changes.

I have been off of Betaseron for about 2 weeks now and my eyes are back to being very uncomfortable. Before I started Avonex eye pressure and pain was a huge problem. Now it is is starting again.

I'm not DX with MS, however from what I understand the DMD'S can't stop the progression of MS, however it may slow down the MS.

It always improved things previously when I had an attack (before I went on Betaseron). I had not had an MS attack ever since I had been on the Betaseron and then suddenly I'm having this severe an attack just after I fall down the stairs? It really doesn't make sense to me.

Why did you go off of your Betaseron? Did your neurologist suggest this? There's no such thing as benign MS. MS is so unpredictable that it can turn on a dime into something aggressive, or you can experience relief from attacks for years (like for you). I don't think anyone knows why this happens for people this way. Maybe the Betaseron was keeping you from experiencing attacks. The purpose of the medicine is to just that.

Thanks for your response! I only have those four because my MS is progressive so I needed to get switched onto a stronger medication,I was on copaxone and it wasn't working for me unfortunately. I've been researching all the medications and looking at the side effects I'm unsure which drug would be the best for me. I can't go on avonex because my doc said its not strong enough, that it would just be like going back on copaxone.

re taking your Coumadin for the positive serology for a positive serology of aCL IgG/IgM and Reynauds and taking Betaseron for your MS (even prophylactically while waiting for a diagnosis) that it can cause a little anxiety. It's one medication counteracting another. I would be concerned too. Are you going to talk to your doctor about this?

My hubby has insurance, but our out of pocket costs were still quite a bit every month for his Betaseron. We contacted them, and actually got it set up where we now pay 0. And it worked out that any other people who are also insured by my hubby's same employer can also get this assistance. No one had ever asked about it before we did. And it took several months for us to ask, because I mistakenly assumed since we had insurance,we wouldn't qualify. Always pays to at least ask.

Or usually the same for everyone? Found out last week I have ms and hoping whatever the treatment that my symptoms will go away.(weakness,twitches,). I would love to walk normal and not feel like I might fall while walking. Thanks for any advice!

I am 45. I've had RRMS for 20 yrs. Ihave had SPMS for 5 yrs(?). I am EDSS 8 or more. I'm on LDN, baclofen, (alertec) midafinil, 4 aminopyridine. I'm off betaseron now for about a year because I can't get funding because apparently I've progressed too far. Comments? Neuro and MSclinic just say "too bad..***** to be you". I see a feeding tube in my near future. My kids are 7 & 9. Any treatments to try and slow this thing down?

And yes, there’s a chance it might not work out for you, but MS progression definitely won’t work out for you, and so you are right to try to attack your MS with something. I have a ton of experience with Avonex, and it has served me well for more than eight years. I don’t like needles, so I did try Gilenya for a couple of weeks, but I came back to what’s tried and true for me. Others have lived well on other drugs.

s effectiveness in delaying the development of CDMS, for individuals with a first event suggestive of MS. An interim analysis of the study's 481 participants showed a 45-percent risk reduction in the treated group compared to the placebo group. Due to the effectiveness of the treatment, the researchers recommended that the placebo portion of the study be discontinued early, and all patients be switched to active treatment.

Sorry for the diagnosis. Glad you got an answer. I do not know what to say about the Betaseron. Have you talked to your Neurologist's office? Are they pushing for it or nother DMD?

Wife if is doing well with her ms....me not so much. Starting betaseron in a couple weeks . Everybody told me I HAD to get another opinion....so I did. Told me the same things my original neuro told me and wanted an LP. Didn't like dr and not going back but did the LP to apease my family (will never ever ever have another one).

I have been noticing that its harder for me 2 hold it when I have to pee and smetimes it leaks (which again could be ms related). I'm just worried and really can't do a test yet.. any1 have any ideas?

I lost it then, about the part where he told me since I was on Betaseron last year (only for about 6 mos), he said since it didnt help me then, thats more proof I dont have MS. Um, DUH, it made me feel like I had terminal flu sx! He says, the betaseron would have made me better. I said, "That statement makes no sense!" He said, "You know what, if you are going to talk down to me, then this conversation is over!

When I had an allergic reaction to Copaxone after being on it for a couple of years I went on Betaseron. Now, for a couple of years, I've been having strange feelings with my heart - the fluttering associated with Afib, slight pressure, thudding beats I can feel, especially at night when I lie down to go to sleep. My doctor says to put up with it, but it scares me with the bad heart history in my family. Has anyone experienced this and what did you do?

knowing that you finally can get treatment for serious symptoms and validating you have a serious disease . . . but, knowing that MS will be a part of your life from here on out. Having plenty of support, sure does help! The people on this forum are a great source for that. I also have found a couple of people with MS (besides my own sister!) that I visit with frequently, and they've been there when I just didn't want to burden my family with anything else.

Hi Ryan, I want to ask your advice on ativan for longterm treatment of some of the symptoms of MS. I have had Multiple Sclerosis diagnosis since 2001. Took Betaseron for 3 years and quit due to horrible side effects. I have remained stable with not much changes since 2001 except for severe anxiety panic attacks that the specialists feel are connected to the brain lesions I have. I take beta blockers and also 1/2 to 1 mg of Ativan daily.

I was diagnosed with MS in Sept. 2006, I was put on Betaseron for a while, but had to discontinue because I never got over the flu like symptoms. I was then put on Copaxone which I did well on, but then stopped taking on my accord. My LP came back negative, but my MRI shows lesions in my cerebellum and brain stem.

The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron. It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me. My husband is insisting it is cuz I am not taking my shots. I don't see how that can be. We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs.

Interesting factoid tucked into their little summary sheet: those being treated for MS (if -- big IF lately -- IF I read it correctly) make up one-sixth of one percent of the "general population" from which their statistics were drawn. I wonder what a car would cost if it was custom made for 0.17% of consumers? What about clothing made too large (or small) for 99.87% of the population? Just letting the mind wander. I have a feeling somebody's getting ripped off.

Betaseron for ms

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