betaseron and ms

m not on betaseron, but am glad to hear you are making a change to see if you can find a combination to slow your MS. Getting the new MRI done on the stronger machine is so important for your baseline... it will give your new neuro a good view as to where you are coming from. And you're right, it might show where you have new damage that is causing your changes.

at first it was just like spotting but now its aot like a period (as of today). I am on betaseron and I didn't know if it could mess with your period like tha or make your breasts sore.. (fatigue is a normal ms symptom tho so that doesn't concern me except its been worse lately). Plus.. I have been noticing that its harder for me 2 hold it when I have to pee and smetimes it leaks (which again could be ms related). I'm just worried and really can't do a test yet..

I have been off of Betaseron for about 2 weeks now and my eyes are back to being very uncomfortable. Before I started Avonex eye pressure and pain was a huge problem. Now it is is starting again.

I have been on Betaseron for 2 years with no side effects and am happy with it. Obviously with the NHS I have no choice about the change. Any insight would be greatly appreciated.

It always improved things previously when I had an attack (before I went on Betaseron). I had not had an MS attack ever since I had been on the Betaseron and then suddenly I'm having this severe an attack just after I fall down the stairs? It really doesn't make sense to me.

Hi Mandy - I wondered where you went. Mild-shild huh? Have you any imaging lately? See if you've had improvements w/lesions? I've heard all good things about betaseron/feron. One of the top MS Docs here in Jersey prescribes it primarily over the others.

Why did you go off of your Betaseron? Did your neurologist suggest this? There's no such thing as benign MS. MS is so unpredictable that it can turn on a dime into something aggressive, or you can experience relief from attacks for years (like for you). I don't think anyone knows why this happens for people this way. Maybe the Betaseron was keeping you from experiencing attacks. The purpose of the medicine is to just that.

Avonex (which I’ve used for 11 years) and others are notably absent from your list. Avonex, Rebif, and Betaseron have been around longest and have the strongest safety profiles. If your MS is more aggressive, then you may be more inclined to consider Gilenya, Tecfidera, Aubagio, or Tysabri. All of the DMDs are discussed from a neutral perspective at the link below: http://www.nationalmssociety.org/Treating-MS/Medications Choose a medicine that you can adhere to the dosing schedule.

Well, as some of you guys may remember, I had a blood clot in my leg last October. This was right behind my right knee, which is the knee with all the problems - weakness, numbness. I also have phlebitis in my left leg. I also have Reynaud's, apparently since 2009. Well, I hadn't been taking my Betaseron, because I'd read some anecdotal evidence that indicated there was a connection between blood clots, reynaud's, and Betaseron.

The last time I had Medicaid my doctors were always complaining about how they covered close to none of the prescriptions I needed (unrelated to MS). United Health One seems decent since my neurologist is in that network and the Betaseron co-pay is $65. My school doesn't offer insurance, so that's not an option. Any recommendations for NY or FL insurance? Something I could get fast? And what's the deal with insurance if I go to school in one state but come home to another?

ve kicked around the CRABs here, a lot. Copaxone, Rebif, Avonex, and Betaseron are the primary four. Your doctor didn't offer Tysabri as your fifth, did he? I like the Decision Maker tool in the uk that walks you through the drugs and helps you figure what is important for you. You can access this at http://www.msdecisions.org.uk welcome to the world of drugs aand bills. I'm glad to hear you are getting treatment for your CIS. Congrats on that one.

I am currently taking Lyrica and Betaseron. How can I tell when the MS may be relapsing with the pain from fibro there?

However, being on an Interferon MS med does often cause miscarriage. The interferons are Avonex, Rebif and Betaseron. Copaxone is not known to increase risk of miscarriage, but it must carry the warning. Pregnancy is not dangerous for women with MS. In fact, there is some data that over time it may be beneficial to the course of the disease. I would recommend that you be tested for the MS mimic that does cause increased miscarriages.

Unfortunately, none of our currently FDA approved medications have demonstrated that they work in such advanced MS. Did the Betaseron help you recently (there is a $50 maximum copay program)? Rituximab may be an option for you (off-label) and you can speak to your neurologist about it. Some people would suggest trying Copaxone because of the limited data from their Primary Progressive MS (PPMS) trial. Fingolimod (FTY720) is entering trials for PPMS and you may want to see if you qualify.

Both medicines you list have strong safety profiles and stood the test of time (although the Extavia brand is newer, but I believe is is the same as Betaseron), as have a few other medicines you don’t list. And you can always change your mind later, although you should give a drug at least a few months to work. And yes, there’s a chance it might not work out for you, but MS progression definitely won’t work out for you, and so you are right to try to attack your MS with something.

A phase II study extension shows that 68 to 73 percent of the participating MS patients remain relapse-free, and 89 percent are free from active brain lesions, after three years of treatment.

Hi tammy and welcome to this side of the diagnostic mountain. I'm sorry you have joined our dx'd club, but at least you have a name for what is bothering you. As for the prescription, Alex and Julie are so right that you can let the neuro's office take the next go at your insurance company. Please do not despair about this glitch - if nothing else, there are patient assistance programs from all of the pharmaceutical companies that will also help with the drug cost.

The report stated that IgG/AlB greater than .26 indicate an elevated csf-igG level. Mine was 3.7. Then it stated how many % of people with ms or other nuero problems have a high level of this. So not sure what it all means.

I've been on Rebif for over 4 years -- about a year ago I began having symptoms similar to yours. Had a full workup; was told it's premature ventricular contractions -- not really dangerous -- 3 different cardiologists said most folks just put up with it. I asked for treatment, and now take a low-dose beta blocker. I will say, though, that it's not easy to tell the difference between heart "flips" and MS twitches etc.

I have MS and Neuropathy. I am currently on Tysabri. Previously I was on Betaseron and IVIG. When I went to Tysabri my doctor took me off IVIG and now my Neuropathy is worse, my feet and legs are on fire. Does any one know if it is safe to be on Tysabri and IVIG at the same time? My doctor said she would need to consult with other doctors before she would add IVIG to my treatment.

I do indeed have MS per the MS specialist. Oh, and he even told me that a negative LP does NOT rule out MS. While I'm not excited about the news (who would be) I am relieved to finally know for sure. I also found out I had deficits in areas that I didn't realize. I guess I've been compensating for them. I'm also not sure I would have been scheduled for cognitive testing until I totally lost my train of thought while speaking to him....more than once......lol.

Betaseron and ms

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