at first it was just like spotting but now its aot like a period (as of today). I am on betaseron and I didn't know if it could mess with your period like tha or make your breasts sore.. (fatigue is a normal ms symptom tho so that doesn't concern me except its been worse lately). Plus.. I have been noticing that its harder for me 2 hold it when I have to pee and smetimes it leaks (which again could be ms related). I'm just worried and really can't do a test yet..
I've been on Betaseron since a year after I was diagnosed in 2000. On August 20th, I quit taking Betaseron cold turkey when I finally received my new oral medication Tecfidera. For the last few days I have been dealing with horrible body aches, diarrhea, cold sweats & the inability to eat (not feeling sick, just not being hungry or interested in eating). I do not have a fever, a cough, allergies or anything else I can conclude to be at fault for these annoying symptoms.
I'm three weeks into Betaseron . . . and am pleased to hear all of the positive news.
The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron. It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me.
My husband is insisting it is cuz I am not taking my shots. I don't see how that can be. We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs.
Hi and welcome. What a good question. I have no idea what is a teratogenic agent and can't investigate that this morning because I have to get ready for work. But I don't want you waiting for more replies until later today.
What I do know is I have heard this discussion before- most of the time in reference to the woman being on treatment. The topic of the man on MS disease modifying drugs has also been discussed but the answers are much less clear.
Okay, he lives in the UK and has MS. He takes beta-interferon and would love to start a family with his wife but is concerned about hisself. I haven't found any information on males that take it other than men who are concerned if they would be fertile or if the beta would harm the child.
Do any of you have any info about males,MS, the meds, and their ability/inability to have children/healthy children?
Thanks and BIG Hugs to all of you!
MostlyShell
P.S.
Hi there,
I'm glad they are keeping an eye on your liver enzymes since you are on betaseron. They should run a CBC and thyroid too every so often. Sometimes they don't run the thyroid panel though as a general rule and you may have to request it.
Doesn't seem they ranges are extremely out of the average, but none the less it's good Dr. is keeping a watch - though they should have called you and not the other way around. Seems to be the norm these days for many, unfortunately.
I used Betaseron and now Gilanya. I have better results so far with gilenya. Origionally, I chose Betaseron over Avonex because I would rather have less side effects more often that be completely wiped out once a week as a mother of little ones. The Gilenya does not seem to cause such a problem. I hope that you can get the med that best suits you approved with your insurance. Sometimes the doctors office has to get ugly with the insurance on your behalf. Best wishes to you!
Avonex (which I’ve used for 11 years) and others are notably absent from your list. Avonex, Rebif, and Betaseron have been around longest and have the strongest safety profiles. If your MS is more aggressive, then you may be more inclined to consider Gilenya, Tecfidera, Aubagio, or Tysabri. All of the DMDs are discussed from a neutral perspective at the link below:
http://www.nationalmssociety.org/Treating-MS/Medications
Choose a medicine that you can adhere to the dosing schedule.
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d be getting your dr to sort out this problem for you. To me its part of his/her job to get you what you need 