Hi
Lord that is too sad that you cannot afford your medication, is there anyway that you can get assistance with it, have you also tried calling the drug company as i know sometimes you can get on a program with them where the medications are cheaper, until i find out how much mine is gonna cost, i will be trying that route
Tyler
my neuro and I decided not to chance it because of the respiratory effects as I have asthma/copd and gilenya can diminish lung function :) So, do you have asthma? That could be why your other neuro said it wasn't for you..he must have had his reasons.
Hi there,
Adding on a belated welcome! I sure hope you find out what is going on w/this new problem. I hope it's not the Avonex. Let us know too how it goes w/reaching out to the company ref. this problem. I did not get much help from the manuf. of Rebif where my allergic reaction was concerned. They are helpful in other ways, just not regarding the not so common late affects.
Other than this, how are you doing w/your MS? Hope to see you around.
t take any meds for years til after I had my first child. I started avonex was on that for about year then had my second child then went back on avonex then lost my insurance had to stop meds for about a year. Now I am on rebif have had at least three attacks in one year but no new lesions. Was wondering if anyone is on gileyna and if so how long and how is it doing for you I start soon and worried.
My sister started Tysabri about 2 months ago, and she had some tingling in her foot (the foot that has foot drop). I've heard really good things about this drug--things like 60% effectiveness rate (compared to the 30% rate of the ABC drugs).
She's complained, so far, of having a headache on the day of her infusion and then it goes away. I've not heard any other complaints. She's wanting me to go on it, but I was just diagnosed and haven't given Copaxone a fair shake.
Hi I am new to MS. My doctor prescribed Avonex. I have little to no drug insurance. I went to a site which offered discount coupons. I called them to ask them if this is a come on price or is this within reason the price every month. They would not give me an ansewr. Does someone here have any experience with this?
I have been a pincushion with this drug for 14 years. Prior to avonex it was beta which I had to stop because of welts (no where left to inject)
Its really getting to me. I don't want to be a baby,but the shots are really getting on my nerves.
I can't tell if avonex If is doing anything. I wish I had the words to explain. I really don't feel better and I think it is because i have had this disease for so long. Any suggestions? anyone? Thanks you!!
After at least of 5 weeks of worsening effects from Copaxone and 8 weeks total, it's all over between us. I truly tried. Almost went to counseling. Arbitration was an option, and so on.
The bottom line is that I had terrible allergic reactions that snowballed. I tried several kinds of antihistamines, plus Singulair, and a bunch of different creams. All I got were hives, bruises, welts, rashes and misery.
DX on 2/14...started Avonex last week with nurse helping and did fine. This week I thought I did okay but noticed the plunger did not go completely down. It was the 1/2 dose. Since I am inclined to over analyze, trying not to panic. Figure I'll be taking more next week...but since you all seem like you know your stuff...thought I'd ask the experts. Thanks.
Ugh
Tomatoman - definitely get your neuro to fight your insurance company for this. It is doable, promise! My ins. company wanted me to switch to Avonex, and another, not remembering at the moment. And, no go. Docs office got the exemption.
Let us know how you make out. This is unacceptable care for a serious disease.
I have been on Avonex for the last 15 years and have finally reached my limit. I am taking a 6 week break from the Avonex and will be starting Copaxone at the end of April. I actually have two questions: 1) Has anyone taken a break from their medication for that long (and if so, any consequences) and 2) Has anyone switched from Avonex to Copaxone, and if so, how did you do?
To counteract the damage the drug does I did some research and take supplements to counteract the issues caused by the very thing(s) that are supposed to help. Question is, would a complete stoppage of pharmaceutical meds be a smart thing to do? I will say that progression has been slowed.....who's to say it's because of the pharmaceuticals? I am 55 yrs old, the mother of four raised primarily solo. Have endured much strife in life as have all others.
My insurance prescription coverage only covers generic drugs and since there is no generic drug for Copaxone it would cost me $10,000 for a 3 month supply! I obviously do not have that kind of money, not really sure who could afford that but anyway... I was working with Shared Solutions and their medication assistance only to be told that I was inelidgeable for the assistance.
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