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Avonex and hair loss

Common Questions and Answers about Avonex and hair loss

avonex

Avatar f tn m pretty sure that I have seen someone on this site ask about hair loss with Avonex, maybe they will see this and answer you.
1746440 tn?1311509508 t find much about this as a side effect on-line) or am I in that lucky 4% of Avonex users who have hair loss. If it is the Avonex, will it stop as my body gets used to the drug? Good God I hope so! Any insight is appreciated, as this is really stressing me out.....which can also cause hair loss!!!
649926 tn?1297657780 Hi! I am sorry for all of you that are also suffering hair loss. As if we don't have enough to deal with! My family thought that I was making a big deal out of nothing until I washed my hair and ran my hands through and came away with a full hand of hair. We are not talking your usual hair loss here!
559187 tn?1330782856 Well, I was on Copaxone a couple of months only (horrible allergy) and have been on Avonex for going on 3 years, and no unusual hair loss. This is just anecdotal, of course, but I haven't read any reports of this about the CRABs and they've been around a long time now. Didn't know Gilenya caused this. Ugh!
Avatar f tn Since then I have had burning sensation and sharp like pains that feel like nerves bursting thats quite painful and muscle spasms have started to move my finger. (very creepy) Well I went to my hair dresser tonight and she told me my hair is FALLING OUT! I thought I was noticing it getting thin, but I'm only 25! Non of my family has hair loss issues! all sets of grandparents and parents don't even have receeding hairlines.
1040373 tn?1273687488 Also know that we all go through times of predominant hair loss and times of predominant hair gain every year. The thyroid is the first thinkg I would have checked out. Hyperthyroidism causes thinning and loss and hypothyroidism cause slowed hair growth and coarseness.
Avatar f tn AS PROMISED, I WENT AND READ THE PAMPHLET THAT COMES WITH THE AVONEX AND I DID NOT FIND ANYTHING IN IT THAT MENTIONS CALCIUM DEFIENCY. I EVEN READ IT TWICE TO SEE IF I WAS MISSING SOMETHING, BUT DID NOT FIND ANYTHING. LIKE I SAID IN MY PREVIOUS POST, I WILL BE SEEING MY NEURO ON TUESDAY AND WILL MAKE IT A POINT TO ASK HER ABOUT IT. WILL LET YOU KNOW WHAT SHE HAS TO SAY.
4735388 tn?1358539687 Hi, I have been on Gilenya for about a year and a half. There seems to be some common side effects. I take it in the evening as it can increase your fatigue. But taking it in the evening, it doesn't seem too bad. Several of us have experienced some hair loss (though they won't tell you it's due to the Gilenya). I've only heard about about a couple of individuals who have had the abdominal pain, but I have not experienced that.
1168718 tn?1464983535 t have your rx yet, that tells you the problem goes back to your neurologist and the Avonex reps and you can deal with them on Monday. It is so frustrating to know that you are so close, but then have to wait and wait some more to start treatment. I know from my own personal experiences.
Avatar f tn I used Avonex for 396 shots (7+ years), and after going to Gilenya on Halloween I’m going back to Avonex this month. The flu-like side effects of Avonex are most common, but often easily minimized. Some keys are to keep hydrated, inject in the afternoon or evening (preferably Fri/Sat if you work a standard week) and use drugs such as Tylenol, Advil, Aleve, etc. For me the side effects lessened over time. However, I know of others that found them intolerable.
Avatar f tn I have used Avonex for years, and I consider it a “success” because my condition has not deteriorated and I haven’t had a relapse in years. But you will find Copaxone, Rebif, and Betaseron users that will tell you the same thing. On the other hand, others take those medications and still face significant disease progression and/or find the drug side effect intolerable. Many users of newer oral drugs also find success, although those drugs have not yet stood the test of time.
198419 tn?1360242356 They no longer talk about remissions. I will be on chemo the rest of my life. I am still riding and walking the dogs. The next chemo I go on in February is going to be rough and once a week. I will lose my hair again. I have liked having hair. People can't tell I am sick. I am hoping for five years. It will be four in May.
587890 tn?1295473081 I have had MS for 10 years and I just stopped my AVONEX so I can try and get pregnant I know it sounds stupid but there is no studies on avonex and pregnancy so I just thought I would ask if any one else has been on some treatment or off to get pregnant? and how long were you off your meds ?
1936411 tn?1333831849 Thanks, Candy. I am NOT looking forward to hair loss (hope I'll be one of the lucky ones). Sorry to hear that you're deadling with the side effects. I've heard a lot of people swearing by Biotin to combat the hair loss, but I haven't done any research to see if there exists any unbiased substantiation of those claims. Have you tried anything to fight the hair loss, and if so, have you had any luck?
Avatar f tn Not much in the way of side effects except that a lot of hair loss for the first 3-4 months. It went away after that and haven't had anything else that I could really call a side effect. I am nearing my one year anniversary and that means I'll have to start paying my copay for it. If you don't already, Novartis has a program where you don't even have to pay the copay for the first year. I have put that saved money to good use for sure. Check out the group on FB.
Avatar f tn ) and still have a safe and fulfilling sex life. Your best bet is to discuss this with your doctors and possibly and Infectious Disease Doctor. The doctors may recommend vaccinating your partner. They may also consider the risk of contracting HPV to be a low risk exposure and do nothing. Most people with MS can be vaccinated with "non-live virus" vaccines. Gardasil is a VLP (Virus Like Partials) vaccine (so it is safe) protecting against infection by HPV types 16, 18, 6, and 11.
Avatar f tn Only in the past 20 days, hair fall has gone up. Does hair straightening dry out the hair causing lack of moisture and thus hair fall?? I truly hope that this is temporary as you mentioned!!
Avatar f tn I just finished Sovaldi and olysio and no hair loss at all, in fact hair looked great I do have hypothyroid which is familial, mother , daughters have it, Check your thyroid levels That can effect hair loss, dryness etc( even my eye brows and under arms thinned from hypothyroidism ) You may need to be on thyroid medication such as synthyroid if it is off
Avatar f tn My hair has ALWAYS been so thick and moisturized and healthy and now its dry and frizzy and falling out! Its awful im so embarrassed it literally never stops falling out.
Avatar n tn If your thyroid gland is overactive or underactive, your hair may fall out. This hair loss usually can be helped by treatment thyroid disease. Hair loss may occur if male or female hormones, known as androgens and estrogens, are out of balance. Correcting the hormone imbalance may stop your hair loss. Many women notice hair loss about 3 months after they've had a baby. This loss is also related to hormones.
Avatar f tn Does Lithium cause Hair Loss? I just recently started it and I was wondering if it could be the reason my hair is breaking off so bad...I'm 22 I'd rather keep my hair...
382218 tn?1341181487 When I was on Avonex for three years, I did not have one new lesion appear in that whole time and no brain volume loss. But that was over 5 years ago. I do believe, however, that Avonex was really good for the MS and kept my lesion load at bay with some shrinking of the spinal lesion. I had on average 2-3 relapses per year. Even after going off of Avonex, it was 2 more years with no DMD;s before they started to see an increase in lesions again.