tysabri solumedrol

Okay, I've had MS for 13 years. I was just taken off Tysabri in July, I was on that for almost 5 years. I now have to go on Gylena in January, but before I start the new drug...I have to do 6 months of iv steroids. 3 days every month with NO taper! I have just finished my second round...and I'm ready to through in the towel. The side affects of the steroids are at this point almost not worth doing. They are trying to prevent a relapse since I am not on any MS therapy.

Hi T- Did you have any reaction to the first 11 Tysabri infusions? I=Did you also have the IV Solumedrol each time? Generally speaking things like rashes are not associated with MS. I wonder of you had some reaction to the steroids.

I will have another MRI at that time. I have to wait for the SoluMedrol to exit my system. I guess it takes 4 to 6 weeks. Then a follow up and go from there. He recommends Tysabri if sI want to switch right now. However, depending on what he sees on the MRI it may not be a choice but the only recourse. So, any input on Tysabri would be appreciated. I have mostly good days, but too much activity on Sunday made me a slug yesterday! I woke up refreshed this morning and took a short walk.

My MS doc always gives a small dose of Solumedrol, which is much larger than a usual prednisone dose, to his new Tysabri patients. They get the IVSM in the first hour. Then they get the Tysabri in the next hour. His experience says that the mini-dose of IVSM helps the Tysabri get to work faster by cutting any inflammation in our system. He does that for the first three Tysabri doses when just beginning this therapy. I hope you are less itchy today and can reach your doctor in the morning.

Sitting here having just had a gram of solumedrol pumped into me and now having my tysabri cocktail. I asked to se the NP because my right leg has decided it would stop working correctly and was just along for the ride- step, drag, step, drag was my recent gait. Definitely in need of steroids to kick start the healing but a quick dip also shows I have a UTI. That's the first one in at least 18 months.

There seems to be a pattern to my I chose to have solumedrol for 5 days (my normal for an attack these days) and of course the specialist calls me that day with an appt 5 days later. They are 200 miles away, but we got to see great friends. So the specialist saw me in pretty much top form, but due to my history, recommended Tysabri. I had my first treatment and got a sinus infection that night. It took 8 days for the infection to heal after I finally had antibiotics.

Thanks for checking in on behalf of your sister. the solumedrol (IVSM0 can leave some residual problems, but from this distance it is hard to guess in her case. It is much too soon to call this a new relapse- the time frame for that would be 30 days or more from the previous one. It also can take several weeks for the complete effect of the IVSM to kick in and for the central nervous system to settled, again.

Hey All! New here to posting, but have been reading quite a bit! Great info! My question is, I had a relapse over the summer, major numbness/weakness on my right side, pain (allydonia) all over, my arm felt cold when it wasn't, major sensory issues. This eventually resolved with the help of Soulmedrol and time. This was my 3rd relapse in a year and a half, so my doc started me on Tysabri in the fall. I have had 5 infusions so far.

Hello I am a 25 year old female and four weeks ago I was diagnosed with optic neuritis, I was admitted to the hospital for 5 days of IV solumedrol therapy (1000 mg a day). After the treatment my vision mostly came back and the eye pain was completely gone. At the same time I also had a burning arm pain in my right arm with numbness and tingling into my fingers. During my hospital stay I had an MRI of my head, which was normal.

Do you know why your doctor wants to start you on Tysabri rather than one of the more first-line treatments?Tysabri is usually used when less 'extreme' measures haven't worked, or when secondary progressive MS is pretty clearly evident. Not saying that is how things work on paper, but in the real world most often T is considered only after other treatments have seemed to be ineffective.

So the UCSF trip was great and the specialist and I had a big talk about Tysabri and agreed it is the best treatment for me short term until the MS oral treatment comes out. We talked about the Touch program you have to be involved in with Tysabri and that I would have to come back at 3mo, and then every 6 mo. I thought "great, our friends have a nice house 1 mi from the hospital this will be wonderful" plus I would be able to be seen by the specialists again.

The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron. It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me. My husband is insisting it is cuz I am not taking my shots. I don't see how that can be. We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs.

She worked abroad, but she experience to have flare, so came back, and met her neuro. He suggest to take solumedrol, which may help to recover. After the third day, she experienced her balance is better ('nose and index finger test') and her double vision is a little better. She said, she dont tell me, about her 'swallowing experiences' maybe now it is better. What you experienced? - side effect of solu medrol?

I sure hope this round of steroids gets things calmed down. How are you doing with your sleep? I couldn't sleep at all while on Solumedrol and had to be given short term sleeping pills. One thing was for sure, I had so much energy that on the third day of my IV steroids, I bowled my first 200 game. Unfortunately, that was the last night I ever bowled again. The MS took over and robbed me of something I dearly loved. Please keep us informed about progress.

thanks,this is just very frustrating as all of you know from your own situations. New MRIs will be done in the next month or so to see where I am at - my neuro said we shouldn't just assume the tysabri isn't working, but do a thorough evaluation.

I was on betasaron and woke up with severe leg and vertical face pain. I was pale, very fatigued and weak. Dr. Took me off betasaron, told me I was a no go on tysabri because my ms was too active and put me on monthly solumedrol and Copaxone. My dr. Has not told me what type of ms I have. I have not had one day that I have felt well. I always have some level of fatigue, numbness, tingling, Myclonus, stiffness, pain. Some days are worse than others.

Searching, I found you and am excited that there is a group that may actually be able to answer some of my questions. The first thing he wants to do is put me on solumedrol for 5 days, I am not currently in a flair. Any reason I should put myself through that if I am not currently having symptoms?

I know steroids can make you susceptible to infections, but has anyone developed a UTI on solumedrol? I had the unmistakable first inklings of one a bit ago. I rushed out for cranberry juice and a blueberry smoothie (blueberries are supposed to have the same effect as cranberries, and it's a good excuse for a fruit smoothie!!) and I'm hoping I can keep it at bay this way, but I guess I'll know in a few hours. These things tend to come on fast for me.

I am scheduled Monday to do an IV for three days of Solumedrol. Has anyone else done that and if so, what is your opinion. I am alittle nervous about it.

Neurologist came in this morning and said spine was clear but based on my history, clinical presentation and brain MRI, he is pretty sure it is ms. I am starting solumedrol today in the hospital and he is starting the paperwork to get me on copaxone. He said it cost 44,000 dollars a year so I am hoping my insurance will cover it. Nonetheless, I have a neurologist I trust and believed and listened to me. He was also a little impressed with my knowledge of ms related things. So...

at this point are going to be Tysabri or Gilenya. Both sound awful. Details later, this is not what this post is about. I "agreed" to a course of Solumedrol this past Thursday. Home Health care is supposed to start coming tomorrow. I got the delivery on Friday night (10:00 in a blizzard) poor delivery man. Well, this weekend I pretty much slept the entire time. I am feeling better and Ha vent had any double vision since Saturday. Do you think I should cancel the steroids?

Tysabri solumedrol

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