tysabri cost

http://www.tysabri.com/tysabri-cost-and-support.

From your question I am not sure if you are talking about the cost of the Tysabri or the cost of the infusion center (or wherever you get your monthly IV's done). Have you talked to the BioGen folks about assistance with this cost? You could also maybe apply to NORD, but I understand that is a time consuming process. Before you make a final decision, please go to your neurologist and have this discussion with your doctor.

Hi I was diagnosed with MS in May of 2001. My neurologolist wants to me to try Tysabri. I have already tried the shots for ms and they don't work to well with me. But I already have most of the side of effects that go with tysabri. Please help me.

Will Tysabri help me if I can't walk very good at all? It's everyday all day,I think I have progressed from RRMS to Secondary progressive.

t give you the most bang for your buck - my copay for Avonex for 3 months was something like $60. My Tysabri cost, after Medicare and United Health Care AND getting Tysabri assistance for the drug (I could get it for $10) ended up being over $600 PER INFUSION. I asked and asked and asked what the charge would be before I started - and they said after insurance probably $50-60. They would NOT give me a number. They didn't bill me for the first infusion until I had gotten 3.

Ok, a while back I told all of you that I was going to try tysabri and that I would tell you my experiences with it...well, the whole thing has been such an ordeal that I just haven't had the energy to write about it but I think it is important to share. Bear with me. It started out as a complete financial nightmare. Where I live, there is only once infusion center that is approved by the TOUCH program to dispense tysabri. It is a cancer center owned by a large corporation.

Friday I called my neuro to find out if they want me to do a washout period on Tysabri, as they are considering me for the new drug out in March. I've ben on Tysabri almost a year and JC+ from the start The nurse told me my test showed 1.03. which means nothing to me. Anyone know anything about this test?

Thank you so much for your input. I cannot believe the cost of Acthar. I was reading that in 2007 it cost less than $3,000 for 5 mL (I guess it depends on the dosage but that might be five days' worth). Then the cost jumped to $29,000 for the same 5 mL vial! My insurance denied it, go figure. Acthar said that my insurance company denies their first attempt every time, that they always have to appeal. I guess I'm hoping they will approve it.

From my understanding due to the laws governing Medicare a lot of assistance programs are not allowed to help out with the co-pays.

I get four more shots so maybe I will be able to move for a bit. Acthar is an old drug and used to be rather inexpensive. Sadly the cost has skyrocketed...My insurance paid about $28,000.00 for just five days. After taking the shots then I will be taken off Rebif, steroids and Acthar for three months to prepare for Tysabri. I am anxious to start....and hoping the Acthar will keep me mobile for a month or so. If not family knows we are going to need help.

The Biogen Idec lunch talk I went to today was very interesting and quite a different approach than the usual tons of slides about Tysabri. It focused on what those numbers in clinical trials really mean. Of course it was directed at explaining why the Avonex number and Tysabri numbers are what they appear to be, but it really got me thinking.

Until recently, I had both traditional medicare, and a full secondary in a full secondary insurance that was provided through my husband's employer. Then, my husband and I found out how much his employer (a small business) was paying to have me on the plan... We were paying a portion of it, but his employer was paying close to $1200 per month- just for me. Our consciences just couldn't let it go on anymore, so we decided that I would get onto a MedAdvantage plan instead.

No one covers it, but many insurance companies have lowered the cost. It cost me $225 a month last year and this year is down to $85 a month. There are also clauses about medicare bumping you off their lists and so on, so read the fine print and save some time later.

You might find this of interest- I have always wondered why we startt out wit hthe weakest drugs to treat our MS instead of going at it as agressively as possible - Biogen Idec and Elan Submit Applications for First-Line Use of TYSABRI in anti-JCV Antibody Negative Patients with MS http://tinyurl.

Hi, all. As you all know, I have recently started Tysabri. My co-pay on my Medicare Advantage plan was $192. While I could almost make this, recent problems have stretched my funds. In May I applied to the Chronic Disease Fund for help. I was awarded help and they pay all but a $30 copay. They run out of money each year near the end, but take new applications at the beginning of each year.

Here is what my neuro had to say about that, as many of you told me, many people who are JC+ take Tysabri. He explained that the TOUCH program allows them to monitor patients making it much safer. He did however tell me that I would be allowed to stay on Tysabri for only a year at best. Then he told me that although people feel great on it, as soon as they stop taking it they "crash and burn", meaning they feel terrible and begin having many relapses. Well that sure turned me off!

Next stage is for NICE (National Institute for Clinical Excellence) to make the decision as to whether it is a cost-effective treatment. Yet again our health reduced to cost - lol. Link here: http://www.msrc.co.uk/index.

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