tysabri infusion cost

From your question I am not sure if you are talking about the cost of the Tysabri or the cost of the infusion center (or wherever you get your monthly IV's done). Have you talked to the BioGen folks about assistance with this cost? You could also maybe apply to NORD, but I understand that is a time consuming process. Before you make a final decision, please go to your neurologist and have this discussion with your doctor.

My sister started Tysabri about 2 months ago, and she had some tingling in her foot (the foot that has foot drop). I've heard really good things about this drug--things like 60% effectiveness rate (compared to the 30% rate of the ABC drugs). She's complained, so far, of having a headache on the day of her infusion and then it goes away. I've not heard any other complaints. She's wanting me to go on it, but I was just diagnosed and haven't given Copaxone a fair shake.

A day before the infusion they call me and tell me it is going to cost me 1200 to get the infusion - payment up front or at least some form of pay plan. ?????????????? what happened to $400? They tell me that that was the medicare price and someone quoted my price wrong. I'm like " three different times someone gave me the wrong price?" I cry. I yell at a lot of people. I tell them they are ripping me off.

http://www.tysabri.com/tysabri-cost-and-support.

Hi Miche- Welcome to the group :-) Tysabri is a Disease Modifying Drug (DMD). It is given to help slow, if not stop, the progression of MS. It is not geared towards relieving current symptoms. It is supposed to help prevent new symptoms from developing or current symptoms from worsening, but not making existing symptoms better. That's the official story. Many Tysabri users report a performance boost just after infusions and a drop off in performance just before the next infusion.

Hopefully it is something else, and not really the Tysabri. Has this happened every time you have had an infusion? You mentioned you were on antibiotics - if you've been sick or had an infection of some sort, that could definitely be a big part of how you are feeling. I know the longer I'm on Tysabri, it seems I get sick easier - and when I do, it hits harder and lasts longer than it used to.

I was hoping to find out as much as possible since I know that some places can charge you more per infusion. I think my cost will be 15% so it makes a big difference to me what the overall cost will be. Thanks so much for reading this. Good luck to everyone!

After waiting for insurance to approve and waiting for rebif to clean out of my body I had my first tysabri infusion on June 3rd, 2014. By the next day I could tell that it was easier to get up and my balance seemed better. I didn't notice anything else but was excited about what improvements I would have in the future. I felt the same after infusion #2 but was hoping for more. After my third infusion I had a bad headache for 2 days and didn't feel any improvements.

t give you the most bang for your buck - my copay for Avonex for 3 months was something like $60. My Tysabri cost, after Medicare and United Health Care AND getting Tysabri assistance for the drug (I could get it for $10) ended up being over $600 PER INFUSION. I asked and asked and asked what the charge would be before I started - and they said after insurance probably $50-60. They would NOT give me a number. They didn't bill me for the first infusion until I had gotten 3.

My neurologist told me that after the first infusion I would feel good and then the closer it got to the end of the month I would feel bad again. She after the third infusion I would have a level amount of Tysabri in my blood. I guess she was right because I don't feel sick any more after the infusion....just very sleepy. Hang in there and remember there are alot of people praying for you. Keep us updated on your prgress.

This price is in line with the cost of the injectables. Gilenya is the big $$ winner with a cost of $60K a year. Keep us posted, Sarah.

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.

As I type my 12th Tysabri in fusion is flowing into me! It's hard to believe that it's been a year since my diagnosis. I've learned more about MS and life with a life long disease. I've made a few minor changes to accommodate it, but fortunately my life is largely unchanged. Believe it or not, learning I have MS has explained a lot of seemingly unrelated issues. In that sense my DX came as something of a relief :-) Here's looking forward to 12 more Tysabri juice boxes!

So I just finished my 2nd infusion about a week ago and was wondering what people's side effects were from that. My body felt like I had a severe flu for like 3 days :( . How long also does it take to notice the drug is working for you .

I am having a side effect from , I think, from my 1st Tysabri infusion 3 days ago. About 15 minutes into the infusion, I became extremely nauseous. It got really bad, and I needed a bucket. Got better, and has been coming in waves ever since. I spoke with NP at neuros office yesterday. Called in an anti-nausea medication. That is giving me a bad bad headache. The NP told me she had never heard of nausea as a side effect. She thinks it is coincidental. Has anyone here experienced that?

Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.

I will be having my fourth Tysabri infusion on Monday. I have been keeping a journal ...It is called "Hoping for a Miracle"...lol...At any rate, I had my first infusion a bit too late and landed in the hospital for thirty days. The day I was released I had my second. Now infusion two and three seemed to give me three weeks of great hope.

If your first infusion is next week, then I would try and hold off the steroids as long as possible, othersise your Tysabri infusion will have to be delayed. With the TOUCH program they are really careful. Way to go with your gig in S.F - hope it goes well for you.

Tysabri infusion cost

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